Literature DB >> 23377734

"I wouldn't look at it as stress": conceptualizations of caregiver stress among low-income families of children with asthma.

Natalie R Sampson1, Edith A Parker, Rebecca R Cheezum, Toby C Lewis, Ashley O'Toole, Adriana Zuniga, Jean Patton, Thomas G Robbins, Carla C Keirns.   

Abstract

Low-income caregivers of children with asthma experience multiple stressors, likely worsening family health. As part of Community Action Against Asthma's community-based participatory research partnership, researchers conducted 40 qualitative semi-structured interviews and quantitative surveys with low-income caregivers of children with asthma in Detroit, Michigan. Participants described daily childhood asthma experiences and completed scales including the Peds Quality of Life Family Impact Module and Zarit Burden Caregiver Scale. Quantitative scale findings suggested participants are moderately stressed or affected by their child's illness. While there was some accordance between qualitative and quantitative findings, qualitative findings additionally captured many relevant life stressors, seemingly overlooked or conflated in scale responses. Many participants described asthma as part of childrearing, rather than as a stressor or burden. Findings encourage improvement of clinical, psychometric assessments used to measure and address stressors that shape health for many families with children with asthma.

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Year:  2013        PMID: 23377734      PMCID: PMC3984898          DOI: 10.1353/hpu.2013.0021

Source DB:  PubMed          Journal:  J Health Care Poor Underserved        ISSN: 1049-2089


  27 in total

1.  The Zarit Burden Interview: a new short version and screening version.

Authors:  M Bédard; D W Molloy; L Squire; S Dubois; J A Lever; M O'Donnell
Journal:  Gerontologist       Date:  2001-10

2.  Issues in identifying asthma and estimating prevalence in an urban school population.

Authors:  Noreen M Clark; Randall Brown; Christine L M Joseph; Elizabeth W Anderson; Manlan Liu; Melissa Valerio; Molly Gong
Journal:  J Clin Epidemiol       Date:  2002-09       Impact factor: 6.437

3.  Validation of qualitative research in the "real world".

Authors:  Priscilla M Pyett
Journal:  Qual Health Res       Date:  2003-10

Review 4.  Family influences on pediatric asthma.

Authors:  Astrida Seja Kaugars; Mary D Klinnert; Bruce G Bender
Journal:  J Pediatr Psychol       Date:  2004-10

5.  African American grandparents raising grandchildren: a national study using the Census 2000 American Community Survey.

Authors:  Meredith Minkler; Esme Fuller-Thomson
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2005-03       Impact factor: 4.077

6.  The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties.

Authors: 
Journal:  Soc Sci Med       Date:  1998-06       Impact factor: 4.634

7.  Trends in asthma prevalence, health care use, and mortality in the United States, 2001-2010.

Authors:  Lara J Akinbami; Jeanne E Moorman; Cathy Bailey; Hatice S Zahran; Michele King; Carol A Johnson; Xiang Liu
Journal:  NCHS Data Brief       Date:  2012-05

8.  The impact of childhood asthma on parental quality of life.

Authors:  Jill S Halterman; H Lorrie Yoos; Kelly M Conn; Patrick M Callahan; Guillermo Montes; Tia L Neely; Peter G Szilagyi
Journal:  J Asthma       Date:  2004-09       Impact factor: 2.515

9.  Chronic stress and major depression.

Authors:  N Breslau; G C Davis
Journal:  Arch Gen Psychiatry       Date:  1986-04

10.  The PedsQL Family Impact Module: preliminary reliability and validity.

Authors:  James W Varni; Sandra A Sherman; Tasha M Burwinkle; Paige E Dickinson; Pamela Dixon
Journal:  Health Qual Life Outcomes       Date:  2004-09-27       Impact factor: 3.186

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  3 in total

1.  Stress and Quality of Life in Urban Caregivers of Children With Poorly Controlled Asthma: A Longitudinal Analysis.

Authors:  Melissa H Bellin; Philip Osteen; Joan Kub; Mary E Bollinger; Mona Tsoukleris; Laurie Chaikind; Arlene M Butz
Journal:  J Pediatr Health Care       Date:  2015-05-30       Impact factor: 1.812

Review 2.  Neighborhood-Level Factors Related to Asthma in Children Living in Urban Areas.

Authors:  Kelli DePriest; Arlene Butz
Journal:  J Sch Nurs       Date:  2016-10-22       Impact factor: 2.835

3.  Improving Care of Inner-City Children with Poorly Controlled Asthma: What Mothers Want You to Know.

Authors:  Melissa H Bellin; Angelica Newsome; Cassie Lewis-Land; Joan Kub; Shawna S Mudd; Rachel Margolis; Arlene M Butz
Journal:  J Pediatr Health Care       Date:  2018-03-12       Impact factor: 1.812

  3 in total

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