Literature DB >> 23369261

Ethical, legal, and social issues in the translation of genomics into health care.

Laurie Badzek1, Mark Henaghan, Martha Turner, Rita Monsen.   

Abstract

PURPOSE: The rapid continuous feed of new information from scientific discoveries related to the human genome makes translation and incorporation of information into the clinical setting difficult and creates ethical, legal, and social challenges for providers. This article overviews some of the legal and ethical foundations that guide our response to current complex issues in health care associated with the impact of scientific discoveries related to the human genome. ORGANIZING CONSTRUCT: Overlapping ethical, legal, and social implications impact nurses and other healthcare professionals as they seek to identify and translate into practice important information related to new genomic scientific knowledge.
METHODS: Ethical and legal foundations such as professional codes, human dignity, and human rights provide the framework for understanding highly complex genomic issues. Ethical, legal, and social concerns of the health provider in the translation of genomic knowledge into practice including minimizing harms, maximizing benefits, transparency, confidentiality, and informed consent are described. Additionally, nursing professional competencies related to ethical, legal, and social issues in the translation of genomics into health care are discussed.
CONCLUSIONS: Ethical, legal, and social considerations in new genomic discovery necessitate that healthcare professionals have knowledge and competence to respond to complex genomic issues and provide appropriate information and care to patients, families, and communities. CLINICAL RELEVANCE: Understanding the ethical, legal, and social issues in the translation of genomic information into practice is essential to provide patients, families, and communities with competent, safe, effective health care.
© 2013 Sigma Theta Tau International.

Entities:  

Mesh:

Year:  2013        PMID: 23369261     DOI: 10.1111/jnu.12000

Source DB:  PubMed          Journal:  J Nurs Scholarsh        ISSN: 1527-6546            Impact factor:   3.176


  7 in total

Review 1.  Application of omics in hypertension and resistant hypertension.

Authors:  Jiuqi Guo; Xiaofan Guo; Yingxian Sun; Zhao Li; Pengyu Jia
Journal:  Hypertens Res       Date:  2022-03-09       Impact factor: 3.872

2.  Achieving Equity in an Evolving Healthcare System: Opportunities and Challenges.

Authors:  Joni Strom Williams; Rebekah J Walker; Leonard E Egede
Journal:  Am J Med Sci       Date:  2016-01       Impact factor: 2.378

3.  The Global Landscape of Nursing and Genomics.

Authors:  Kathleen A Calzone; Maggie Kirk; Emma Tonkin; Laurie Badzek; Caroline Benjamin; Anna Middleton
Journal:  J Nurs Scholarsh       Date:  2018-04-02       Impact factor: 3.176

4.  A blueprint for genomic nursing science.

Authors:  Kathleen A Calzone; Jean Jenkins; Alexis D Bakos; Ann K Cashion; Nancy Donaldson; W Gregory Feero; Suzanne Feetham; Patricia A Grady; Ada Sue Hinshaw; Ann R Knebel; Nellie Robinson; Mary E Ropka; Diane Seibert; Kathleen R Stevens; Lois A Tully; Jo Ann Webb
Journal:  J Nurs Scholarsh       Date:  2013-01-31       Impact factor: 3.176

5.  Understanding Genomic Knowledge in Rural Appalachia: The West Virginia Genome Community Project.

Authors:  Jennifer A Mallow; Laurie A Theeke; Patricia Crawford; Elizabeth Prendergast; Chuck Conner; Tony Richards; Barbara McKown; Donna Bush; Donald Reed; Meagan E Stabler; Jianjun Zhang; Geri Dino; Taura L Barr
Journal:  Online J Rural Nurs Health Care       Date:  2016

Review 6.  Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review.

Authors:  Melissa Raspa; Rebecca Moultrie; Laura Wagner; Anne Edwards; Sara Andrews; Mary Katherine Frisch; Lauren Turner-Brown; Anne Wheeler
Journal:  J Med Internet Res       Date:  2020-05-21       Impact factor: 5.428

Review 7.  Precision health: A nursing perspective.

Authors:  Mei R Fu; Emma Kurnat-Thoma; Angela Starkweather; Wendy A Henderson; Ann K Cashion; Janet K Williams; Maria C Katapodi; Karin Reuter-Rice; Kathleen T Hickey; Veronica Barcelona de Mendoza; Kathleen Calzone; Yvette P Conley; Cindy M Anderson; Debra E Lyon; Michael T Weaver; Pamela K Shiao; Rose E Constantino; Shu-Fen Wung; Marilyn J Hammer; Joachim G Voss; Bernice Coleman
Journal:  Int J Nurs Sci       Date:  2019-12-24
  7 in total

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