Literature DB >> 23347413

Narrative in cancer research and policy: voice, knowledge and context.

Sarah Atkinson1, Sara Rubinelli.   

Abstract

The potential applications of narrative within medical practice are attracting increased interest. In particular, personal narratives afford rich insights into how encounters with cancer and the associated provision of care are experienced, understood and represented. Such first-person accounts are practically useful in indicating improvements to cancer care and politically significant in providing a means to enable the patient voice and legitimising experiential knowledge alongside a biomedical paradigm. However, personal narratives are necessarily and always constructed in particular social and political contexts and through existing 'meta-narratives' relating to cancer, health, illness and a flourishing life. The present paper first examines work on personal cancer narratives to critically review the opportunities for narrative within cancer care. We then reflect on the crucial role of meta-narratives of cancer as framings within which personal narratives can be both enabled and constrained.
Copyright © 2012 Elsevier Ireland Ltd. All rights reserved.

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Year:  2012        PMID: 23347413      PMCID: PMC4241714          DOI: 10.1016/S1040-8428(13)70004-0

Source DB:  PubMed          Journal:  Crit Rev Oncol Hematol        ISSN: 1040-8428            Impact factor:   6.312


  19 in total

1.  Rejecting medical humanism: medical humanities and the metaphysics of medicine.

Authors:  Jeffrey P Bishop
Journal:  J Med Humanit       Date:  2008-03

2.  The medical humanities today: humane health care or tool of governance?

Authors:  Alan Petersen; Alan Bleakley; Rainer Brömer; Rob Marshall
Journal:  J Med Humanit       Date:  2008-03

3.  Disruption foreclosed: older women's cancer narratives.

Authors:  Chris Sinding; Jennifer Wiernikowski
Journal:  Health (London)       Date:  2008-07

4.  Minding the gap(s): narrativity and liminality in medical student writing.

Authors:  Therese Jones; Felicia Cohn; Johanna Shapiro
Journal:  Lit Med       Date:  2012

5.  Relating information needs to the cancer experience. 2. Themes from six cancer narratives.

Authors:  B van der Molen
Journal:  Eur J Cancer Care (Engl)       Date:  2000-03       Impact factor: 2.520

6.  Breast talk in breast cancer narratives.

Authors:  K M Langellier; C F Sullivan
Journal:  Qual Health Res       Date:  1998-01

7.  Expressive metaphors in cancer narratives.

Authors:  Carola Skott
Journal:  Cancer Nurs       Date:  2002-06       Impact factor: 2.592

8.  Life is never the same: childhood cancer narratives.

Authors:  R L Woodgate
Journal:  Eur J Cancer Care (Engl)       Date:  2006-03       Impact factor: 2.520

9.  Cancer narratives and the cancer support group.

Authors:  Kyla M Yaskowich; Henderikus J Stam
Journal:  J Health Psychol       Date:  2003-11

Review 10.  'A local habitation and a name': how narrative evidence-based medicine transforms the translational research paradigm.

Authors:  Rishi K Goyal; Rita Charon; Helen-Maria Lekas; Mindy T Fullilove; Michael J Devlin; Louise Falzon; Peter C Wyer
Journal:  J Eval Clin Pract       Date:  2008-10       Impact factor: 2.431

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  7 in total

1.  Rethinking "Patient Testimony" in the Medical Humanities: The Case of Schizophrenia Bulletin's First Person Accounts.

Authors:  Angela Woods
Journal:  J Lit Sci       Date:  2012

2.  Patient narratives representing patient voices to inform research: a pilot qualitative study.

Authors:  Joan S Ash; Erika Cottrell; Lauren Saxton; Lucas Newman; Eric Gebhardt; Mark Helfand
Journal:  Stud Health Technol Inform       Date:  2015

3.  Incorporating Patient Narratives to Enhance Audiological Care and Clinical Research Outcomes.

Authors:  Khaya D Clark; Angela C Garinis; Dawn Konrad-Martin
Journal:  Am J Audiol       Date:  2021-08-19       Impact factor: 1.636

4.  Every Story Is Different: Experiences With Body Changes Related to Cancer.

Authors:  Linda Cole; Julie Easley; Leslie Grightmire; Ellil Mathiyan Lakshmanan; Sharon J Matthias; Karen McBoyle; Emily Piercell; Amelia Purdy; Nancy Schneider; Richard J Wassersug; Rosemary Martino; Margaret I Fitch
Journal:  Front Psychol       Date:  2022-05-23

5.  'The medical' and 'health' in a critical medical humanities.

Authors:  Sarah Atkinson; Bethan Evans; Angela Woods; Robin Kearns
Journal:  J Med Humanit       Date:  2015-03

6.  Imagined futures in living with multiple conditions: Positivity, relationality and hopelessness.

Authors:  Lindsay-Ann Coyle; Sarah Atkinson
Journal:  Soc Sci Med       Date:  2017-12-18       Impact factor: 4.634

7.  Exploring patient information needs in type 2 diabetes: A cross sectional study of questions.

Authors:  Colleen E Crangle; Colin Bradley; Paul F Carlin; Robert J Esterhay; Roy Harper; Patricia M Kearney; Vera J C McCarthy; Michael F McTear; Eileen Savage; Mark S Tuttle; Jonathan G Wallace
Journal:  PLoS One       Date:  2018-11-16       Impact factor: 3.240

  7 in total

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