Literature DB >> 23334404

Human capabilities, mild autism, deafness and the morality of embryo selection.

Pier Jaarsma1, Stellan Welin.   

Abstract

A preimplantation genetic test to discriminate between severe and mild autism spectrum disorder might be developed in the foreseeable future. Recently, the philosophers Julian Savulescu and Guy Kahane claimed that there are strong reasons for prospective parents to make use of such a test to prevent the birth of children who are disposed to autism or Asperger's disorder. In this paper we will criticize this claim. We will discuss the morality of selection for mild autism in embryo selection in a hypothetical in vitro fertilization (IVF) situation where preimplantation genetic diagnosis is performed and compare this with a similar selection for congenital deafness. To do this we first discuss relevant human differences. We then introduce the principle of human capabilities (PC) and compare this principle with the principle of procreative beneficence (PB) introduced by Savulescu and Kahane. We apply the two principles to selection for mild autism and selection for congenital deafness. We argue that PC allows for the selection for mild autism but rules out selection for congenital deafness. PB will not give clear answers; the ruling of PB depends to a large extent on expected social, cultural and political developments. We will argue that PC is preferable to PB. We will discuss arguments for the value of mild autism for individuals who have this condition and argue that they are able to lead a life with human dignity provided autism-friendly social circumstances are present. Neither PC nor PB yields strong reasons for prospective parents to seek to prevent the birth of children who are disposed to mild autism spectrum disorder.

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Year:  2013        PMID: 23334404     DOI: 10.1007/s11019-013-9464-6

Source DB:  PubMed          Journal:  Med Health Care Philos        ISSN: 1386-7423


  20 in total

1.  The extreme male brain theory of autism.

Authors:  Simon Baron-Cohen
Journal:  Trends Cogn Sci       Date:  2002-06-01       Impact factor: 20.229

Review 2.  Genetic dilemmas and the child's right to an open future.

Authors:  D S Davis
Journal:  Hastings Cent Rep       Date:  1997 Mar-Apr       Impact factor: 2.683

3.  Dysfunctional core beliefs, perceived parenting behavior and psychopathology in gender identity disorder: A comparison of male-to-female, female-to-male transsexual and nontranssexual control subjects.

Authors:  Lajos Simon; Unoka Zsolt; Dora Fogd; Pál Czobor
Journal:  J Behav Ther Exp Psychiatry       Date:  2011-03

Review 4.  What aspects of autism predispose to talent?

Authors:  Francesca Happé; Pedro Vital
Journal:  Philos Trans R Soc Lond B Biol Sci       Date:  2009-05-27       Impact factor: 6.237

Review 5.  Talent in autism: hyper-systemizing, hyper-attention to detail and sensory hypersensitivity.

Authors:  Simon Baron-Cohen; Emma Ashwin; Chris Ashwin; Teresa Tavassoli; Bhismadev Chakrabarti
Journal:  Philos Trans R Soc Lond B Biol Sci       Date:  2009-05-27       Impact factor: 6.237

Review 6.  Autism or autisms? Finding the lowest common denominator.

Authors:  Emily L Williams; Manuel F Casanova
Journal:  Bol Asoc Med P R       Date:  2010 Oct-Dec

7.  Autism as a natural human variation: reflections on the claims of the neurodiversity movement.

Authors:  Pier Jaarsma; Stellan Welin
Journal:  Health Care Anal       Date:  2012-03

8.  Male-to-female transsexuals have female neuron numbers in a limbic nucleus.

Authors:  F P Kruijver; J N Zhou; C W Pool; M A Hofman; L J Gooren; D F Swaab
Journal:  J Clin Endocrinol Metab       Date:  2000-05       Impact factor: 5.958

9.  Asperger's syndrome: differences between parents' understanding and those diagnosed.

Authors:  Juanne Clarke; Gudrun van Amerom
Journal:  Soc Work Health Care       Date:  2008

10.  Autistic autobiography.

Authors:  Ian Hacking
Journal:  Philos Trans R Soc Lond B Biol Sci       Date:  2009-05-27       Impact factor: 6.237

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