Literature DB >> 21482485

Associates of stigma in an incident epilepsy population from northern Manhattan, New York City.

Emily B Leaffer1, Ann Jacoby, Emma Benn, W Allen Hauser, Tina Shih, Peter Dayan, Robert Green, Howard Andrews, David J Thurman, Dale Hesdorffer.   

Abstract

OBJECTIVE: Stigma is associated with prevalent epilepsy, but its association with incident epilepsy is unknown.
METHODS: We identified 209 children and adults with incident seizures from the diverse impoverished community of northern Manhattan. We interviewed 94 participants, aged 16 and older, about lifetime history of depression, health status, medical history, and stigma.
RESULTS: At baseline, 18 (22.5%) participants reported experiencing stigma. Stigma was reported by 9 (50.0%) with depression and 9 (14.5%) without depression (P=0.002). At 1 year, 7 (8.1%) participants reported experiencing stigma. Stigma was reported by 5 (31.3%) with depression versus 1 (1.6%) without depression (P<0.0001). At both time points, odds of stigma increased when lifetime history of depression and fair/poor health was present.
CONCLUSIONS: Previous work revealed negative effects of prevalent epilepsy on stigma. In the low-income, predominantly Hispanic community of northern Manhattan, we found incident epilepsy was associated with stigma when lifetime history of depression or fair/poor health was present.
Copyright © 2011 Elsevier Inc. All rights reserved.

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Year:  2011        PMID: 21482485     DOI: 10.1016/j.yebeh.2011.03.007

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  5 in total

Review 1.  Research implications of the Institute of Medicine Report, Epilepsy Across the Spectrum: Promoting Health and Understanding.

Authors:  Dale C Hesdorffer; Vicki Beck; Charles E Begley; Malachy L Bishop; Sandra Cushner-Weinstein; Gregory L Holmes; Patricia O Shafer; Joseph I Sirven; Joan K Austin
Journal:  Epilepsia       Date:  2013-01-07       Impact factor: 5.864

2.  Peer support groups as an intervention to decrease epilepsy-associated stigma.

Authors:  Melissa A Elafros; Julius Mulenga; Edward Mbewe; Alan Haworth; Elwyn Chomba; Masharip Atadzhanov; Gretchen L Birbeck
Journal:  Epilepsy Behav       Date:  2013-03-01       Impact factor: 2.937

3.  Examining perceived stigma of children with newly-diagnosed epilepsy and their caregivers over a two-year period.

Authors:  Jennifer E Rood; Janet R Schultz; Joseph R Rausch; Avani C Modi
Journal:  Epilepsy Behav       Date:  2014-08-28       Impact factor: 2.937

Review 4.  Genetic testing in the epilepsies-developments and dilemmas.

Authors:  Annapurna Poduri; Beth Rosen Sheidley; Sara Shostak; Ruth Ottman
Journal:  Nat Rev Neurol       Date:  2014-04-15       Impact factor: 42.937

Review 5.  Depression and anxiety in people with epilepsy.

Authors:  Oh-Young Kwon; Sung-Pa Park
Journal:  J Clin Neurol       Date:  2014-07-03       Impact factor: 3.077

  5 in total

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