S Schreiber 1 , C Ehrensperger , S Koscielny , A Boehm , W Kubitza , E Meister , F Pabst , H J Vogel , J Oeken , A Dietz , S Singer , A Meyer . Show Affiliations »
Abstract
BACKGROUND: Cancer support groups provide information and coping resources as well as represent patients' interests. To date it is unknown how often cancer patients post-laryngectomy use support groups and in which parameters users of support groups differ from non-users. MATERIAL AND METHODS: In a multicentre study, 224 laryngectomees were asked about their support group membership. Further, possible predictors for membership one year post-surgery were assessed. Data were collected with a semi-structured interview and standardized instruments. RESULTS: Overall, 23% of the laryngectomized patients are actively involved in cancer support groups. The probability of a membership increases if patients are well-educated, are living in good economic conditions and in a partnership, if they perceive low family support and wish additional counselling with a physician. CONCLUSION: A cancer support group seems to "buffer" family support perceived to be insufficient. However, support group users are living more frequently in a partnership and in good economic conditions compared to non-users. Physicians and speech therapists are important mediators to cancer support groups. They particularly should inform laryngectomees who are living in bad economic conditions and who are not living in a partnership about the availability of cancer support groups. © Georg Thieme Verlag KG Stuttgart · New York.
BACKGROUND: Cancer support groups provide information and coping resources as well as represent patients ' interests. To date it is unknown how often cancer patients post-laryngectomy use support groups and in which parameters users of support groups differ from non-users. MATERIAL AND METHODS: In a multicentre study, 224 laryngectomees were asked about their support group membership. Further, possible predictors for membership one year post-surgery were assessed. Data were collected with a semi-structured interview and standardized instruments. RESULTS: Overall, 23% of the laryngectomized patients are actively involved in cancer support groups. The probability of a membership increases if patients are well-educated, are living in good economic conditions and in a partnership, if they perceive low family support and wish additional counselling with a physician. CONCLUSION: A cancer support group seems to "buffer" family support perceived to be insufficient . However, support group users are living more frequently in a partnership and in good economic conditions compared to non-users. Physicians and speech therapists are important mediators to cancer support groups. They particularly should inform laryngectomees who are living in bad economic conditions and who are not living in a partnership about the availability of cancer support groups. © Georg Thieme Verlag KG Stuttgart · New York.
Entities: Disease
Species
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Year: 2012
PMID: 23247549 DOI: 10.1055/s-0032-1329979
Source DB: PubMed Journal: Laryngorhinootologie ISSN: 0935-8943 Impact factor: 1.057