Literature DB >> 23180334

The case for conserving disability.

Rosemarie Garland-Thomson1.   

Abstract

It is commonly believed that disability disqualifies people from full participation in or recognition by society. This view is rooted in eugenic logic, which tells us that our world would be a better place if disability could be eliminated. In opposition to this position, I argue that that disability is inherent in the human condition and consider the bioethical question of why we might want to conserve rather than eliminate disability from our shared world. To do so, I draw together an eclectic, rather than systematic, configuration of counter-eugenic arguments for conserving disability. The idea of preserving intact, keeping alive, and even encouraging to flourish denoted by conserve suggests that disabilities would be better understood as benefits rather than deficits. I present, then, a reading of disability as a potentially generative resource rather than unequivocally restrictive liability. In other words, what I consider here is the cultural and material contributions disability offers to the world.

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Year:  2012        PMID: 23180334     DOI: 10.1007/s11673-012-9380-0

Source DB:  PubMed          Journal:  J Bioeth Inq        ISSN: 1176-7529            Impact factor:   1.352


  3 in total

1.  Humanitarianism and the pornography of pain in Anglo-American culture.

Authors:  K Halttunen
Journal:  Am Hist Rev       Date:  1995-04

2.  Authenticity and ambivalence: toward understanding the enhancement debate.

Authors:  Erik Parens
Journal:  Hastings Cent Rep       Date:  2005 May-Jun       Impact factor: 2.683

3.  Quality of life following spinal cord injury: knowledge and attitudes of emergency care providers.

Authors:  K A Gerhart; J Koziol-McLain; S R Lowenstein; G G Whiteneck
Journal:  Ann Emerg Med       Date:  1994-04       Impact factor: 5.721

  3 in total
  9 in total

1.  Introduction: Childhood and Disability.

Authors:  Erica K Salter
Journal:  HEC Forum       Date:  2017-09

2.  Rethinking disability: the social model of disability and chronic disease.

Authors:  Sara Goering
Journal:  Curr Rev Musculoskelet Med       Date:  2015-06

3.  Ethical principles for the use of human cellular biotechnologies.

Authors:  Paul Root Wolpe; Karen S Rommelfanger
Journal:  Nat Biotechnol       Date:  2017-11-09       Impact factor: 54.908

4.  Eugenic World Building and Disability: The Strange World of Kazuo Ishiguro's Never Let Me Go.

Authors:  Rosemarie Garland-Thomson
Journal:  J Med Humanit       Date:  2017-06

5.  Attitudes of people with inherited retinal conditions toward gene editing technology.

Authors:  Lily Hoffman-Andrews; Ronit Mazzoni; Michelle Pacione; Rosemarie Garland-Thomson; Kelly E Ormond
Journal:  Mol Genet Genomic Med       Date:  2019-06-12       Impact factor: 2.183

6.  The problem with reproductive freedom. Procreation beyond procreators' interests.

Authors:  Giulia Cavaliere
Journal:  Med Health Care Philos       Date:  2020-03

7.  A Disability Bioethics Reading of the FDA and EMA Evaluations on the Marketing Authorisation of Growth Hormone for Idiopathic Short Stature Children.

Authors:  Maria Cristina Murano
Journal:  Health Care Anal       Date:  2020-09

8.  What we talk about when we talk about pediatric suffering.

Authors:  Tyler Tate
Journal:  Theor Med Bioeth       Date:  2021-01-05

9.  COVID-19, disability and the context of healthcare triage in South Africa: Notes in a time of pandemic.

Authors:  Emma L McKinney; Victor McKinney; Leslie Swartz
Journal:  Afr J Disabil       Date:  2020-08-18
  9 in total

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