Literature DB >> 23171311

The perceptions and experiences of adolescent siblings who have a brother with autism spectrum disorder.

Michael A Petalas1, Richard P Hastings, Susie Nash, Deirdre Reilly, Alan Dowey.   

Abstract

BACKGROUND: There is a dearth of research on the perspectives of adolescent siblings growing up with a brother or sister with an autism spectrum disorder (ASD).
METHOD: Semistructured interviews were used to elicit the perceptions and experiences of 12 typically developing adolescents with a brother with an ASD. Interpretative phenomenological analysis was used.
RESULTS: The data analysis of the siblings' perceptions yielded 6 themes: (a) difficulties and negative impact of their brother's condition on themselves and their family, (b) how others' reactions to their brother negatively affected them as siblings, (c) how their histories with their brothers contextualised their present circumstances, (d) the varying degrees of acceptance and tolerance towards their brothers, (e) positive perceptions and experiences with their brothers, and (f) their thoughts and worries about the future.
CONCLUSIONS: The main implications are for supports to adolescent siblings by helping them to develop skills in managing others' reactions and openly discussing concerns about their brother's future.

Entities:  

Mesh:

Year:  2012        PMID: 23171311     DOI: 10.3109/13668250.2012.734603

Source DB:  PubMed          Journal:  J Intellect Dev Disabil        ISSN: 1366-8250


  13 in total

1.  Neural processing of intentional biological motion in unaffected siblings of children with autism spectrum disorder: an fMRI study.

Authors:  Alex A Ahmed; Brent C Vander Wyk
Journal:  Brain Cogn       Date:  2013-10-12       Impact factor: 2.310

Review 2.  Family therapy for autism spectrum disorders.

Authors:  Debbie Spain; Jacqueline Sin; Eleni Paliokosta; Marie Furuta; Jonathan E Prunty; Trudie Chalder; Declan G Murphy; Francesca G Happé
Journal:  Cochrane Database Syst Rev       Date:  2017-05-16

3.  Brief Report: Sibling Feelings Toward their Brother or Sister With or Without Autism or Intellectual Disability.

Authors:  Carolyn M Shivers; Casey M McGregor
Journal:  J Autism Dev Disord       Date:  2019-01

4.  Being a girl in a boys' world: investigating the experiences of girls with autism spectrum disorders during adolescence.

Authors:  Elizabeth K Cridland; Sandra C Jones; Peter Caputi; Christopher A Magee
Journal:  J Autism Dev Disord       Date:  2014-06

5.  Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD.

Authors:  Dorothea Iannuzzi; Lucy Fell; Christina Luberto; Brett M Goshe; Giselle Perez; Elyse Park; Sydney Crute; Karen Kuhlthau; Lara Traeger
Journal:  J Autism Dev Disord       Date:  2021-06-13

6.  Lived Experiences of Siblings of Individuals with Autism Spectrum Disorder in India: An Interpretative Phenomenological Analysis.

Authors:  Poornima Viswanathan; M Thomas Kishore; Shekhar P Seshadri
Journal:  Indian J Psychol Med       Date:  2021-07-29

Review 7.  Siblings of Children with Autism: the Siblings Embedded Systems Framework.

Authors:  Hanna Kovshoff; Katie Cebula; Hsiao-Wei Joy Tsai; Richard P Hastings
Journal:  Curr Dev Disord Rep       Date:  2017-05-18

8.  A Psychoanalytical Perspective on the Co-therapeutic Relationship With a Group of Siblings of Children With Autism: An Observational Study of Communicative Behavior Patterns.

Authors:  Mariella Venturella; Xavier Carbonell; Víctor Cabré; Eulàlia Arias-Pujol
Journal:  Front Psychol       Date:  2019-08-08

9.  "Sometimes I Feel Grateful…": Experiences of the Adolescent Siblings of Children with Autism Spectrum Disorder in Malaysia.

Authors:  Shin Ying Chu; Siti Nur Zafirah Binti Kassim; Chun Hong Gan; Veronica Fierro; Caryn Mei Hsien Chan; Deborah Hersh
Journal:  J Autism Dev Disord       Date:  2021-07-10

10.  Sibling Adjustment and Sibling Relationships Associated with Clusters of Needs in Children with Autism: A Novel Methodological Approach.

Authors:  Louise Rixon; Richard P Hastings; Hanna Kovshoff; Tom Bailey
Journal:  J Autism Dev Disord       Date:  2021-01-13
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