Literature DB >> 23141198

Palliative and end-of-life care research: embracing new opportunities.

Noreen M Aziz1, Jeri L Miller, J Randall Curtis.   

Abstract

The past two decades have witnessed dramatic advances in palliative and end-of-life care research with increased understanding of the burden of life-limiting diseases on patients, families, clinicians, and our healthcare system; and researchers have documented palliative care interventions that improve patient and family outcomes and reduce the costs of care (Detering, Hancock, Reade, & Silvester, 2010). These advances have led to a new era of palliative and end-of-life care research and practice with widespread recognition of its accomplishments and successes. Consequently, we now have an important opportunity to reassess our recent successes and challenges and to identify the goals and benchmarks that will ensure ongoing robust advances in this now-recognized and critical scientific area. High-quality palliative and end-of-life care will be best informed by methodologically strong research efforts that generate a body of evidence with the capacity to support and direct care and effect changes in practice. It is in this context that the National Institute of Nursing Research conceptualized and led a Summit titled The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research in August, 2011. In this summary article, we present brief overviews of the six articles chosen for this Special Issue of Nursing Outlook, examine their key conclusions, articulate gaps and needs, and discuss next steps in palliative and end-of-life care research through the lens of these six topics. Published by Mosby, Inc.

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Mesh:

Year:  2012        PMID: 23141198      PMCID: PMC3499046          DOI: 10.1016/j.outlook.2012.08.006

Source DB:  PubMed          Journal:  Nurs Outlook        ISSN: 0029-6554            Impact factor:   3.250


  48 in total

1.  Nurses' use of palliative care practices in the acute care setting.

Authors:  E H Bradley; E Cherlin; R McCorkle; T R Fried; S V Kasl; D V Cicchetti; R Johnson-Hurzeler; S M Horwitz
Journal:  J Prof Nurs       Date:  2001 Jan-Feb       Impact factor: 2.104

2.  Enhancing communication between oncologists and patients with a computer-based training program: a randomized trial.

Authors:  James A Tulsky; Robert M Arnold; Stewart C Alexander; Maren K Olsen; Amy S Jeffreys; Keri L Rodriguez; Celette Sugg Skinner; David Farrell; Amy P Abernethy; Kathryn I Pollak
Journal:  Ann Intern Med       Date:  2011-11-01       Impact factor: 25.391

Review 3.  Evidence-based approaches to pain in advanced cancer.

Authors:  Sydney Morss Dy
Journal:  Cancer J       Date:  2010 Sep-Oct       Impact factor: 3.360

4.  Spirituality of parents of children in palliative care.

Authors:  Caprice Knapp; Vanessa Madden; Hua Wang; Charlotte Curtis; Phyllis Sloyer; Elizabeth Shenkman
Journal:  J Palliat Med       Date:  2011-03-08       Impact factor: 2.947

5.  Conducting outcomes research in pediatric palliative care.

Authors:  Caprice Knapp; Vanessa Madden
Journal:  Am J Hosp Palliat Care       Date:  2010-03-12       Impact factor: 2.500

6.  Use of Theoretical Frameworks as a Pragmatic Guide for Mixed Methods Studies: A Methodological Necessity?

Authors:  Bronwynne C Evans; David W Coon; Ebere Ume
Journal:  J Mix Methods Res       Date:  2011-10-01

7.  Clinical decision support technology to increase advance care planning in the primary care setting.

Authors:  Ericka E Tung; Kristin S Vickers; Kandace Lackore; Rosa Cabanela; Julie Hathaway; Rajeev Chaudhry
Journal:  Am J Hosp Palliat Care       Date:  2010-11-07       Impact factor: 2.500

8.  Effects of coaching patients with lung cancer to report cancer pain.

Authors:  Diana Wilkie; Donna Berry; Kevin Cain; Hsiu-Ying Huang; Julia Mekwa; Frances Lewis; Betty Gallucci; Yu-Chuan Lin; Angela Chia-Chen Chen; Nai-Ying Ko
Journal:  West J Nurs Res       Date:  2010-02       Impact factor: 1.967

9.  Patient knowledge and physician predictions of treatment preferences after discussion of advance directives.

Authors:  G S Fischer; J A Tulsky; M R Rose; L A Siminoff; R M Arnold
Journal:  J Gen Intern Med       Date:  1998-07       Impact factor: 5.128

10.  Searching for "the dying point:" providers' experiences with palliative care in pediatric acute care.

Authors:  Sharron L Docherty; Margaret S Miles; Debra Brandon
Journal:  Pediatr Nurs       Date:  2007 Jul-Aug
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  18 in total

1.  Identifying Key Priorities for Future Palliative Care Research Using an Innovative Analytic Approach.

Authors:  Catherine Riffin; Karl Pillemer; Emily K Chen; Marcus Warmington; Ronald D Adelman; M C Reid
Journal:  Am J Public Health       Date:  2015-01       Impact factor: 9.308

2.  Practice-Based Research Priorities for Palliative Care: Results From a Research-to-Practice Consensus Workshop.

Authors:  Karl Pillemer; Emily K Chen; Catherine Riffin; Holly Prigerson; M C Reid
Journal:  Am J Public Health       Date:  2015-09-17       Impact factor: 9.308

Review 3.  Hospice caregiver depression: the evidence surrounding the greatest pain of all.

Authors:  Debra Parker Oliver; David L Albright; Karla Washington; Elaine Wittenberg-Lyles; Ashley Gage; Megan Mooney; George Demiris
Journal:  J Soc Work End Life Palliat Care       Date:  2013

4.  Challenges in Implementing Hospice Clinical Trials: Preserving Scientific Integrity While Facing Change.

Authors:  Debra Parker Oliver; Karla T Washington; George Demiris; Patrick White
Journal:  J Pain Symptom Manage       Date:  2019-10-11       Impact factor: 3.612

5.  Exploring the Challenges that Family Caregivers Faced When Caring for Hospice Patients with Heart Failure.

Authors:  Nai-Ching Chi; George Demiris; Kenneth C Pike; Karla Washington; Debra Parker Oliver
Journal:  J Soc Work End Life Palliat Care       Date:  2018-06-01

6.  Why is high-quality research on palliative care so hard to do? Barriers to improved research from a survey of palliative care researchers.

Authors:  Emily K Chen; Catherine Riffin; M Cary Reid; Ronald Adelman; Marcus Warmington; Sonal S Mehta; Karl Pillemer
Journal:  J Palliat Med       Date:  2014-06-02       Impact factor: 2.947

7.  A Qualitative Inquiry on Palliative and End-of-Life Care Policy Reform.

Authors:  Hannah C Schreibeis-Baum; Lea E Xenakis; Emily K Chen; Mark Hanson; Sangeeta Ahluwalia; Gery Ryan; Karl A Lorenz
Journal:  J Palliat Med       Date:  2016-04       Impact factor: 2.947

8.  Community-based participatory research: understanding a promising approach to addressing knowledge gaps in palliative care.

Authors:  Catherine Riffin; Cara Kenien; Angela Ghesquiere; Ashley Dorime; Carolina Villanueva; Daniel Gardner; Jean Callahan; Elizabeth Capezuti; M Carrington Reid
Journal:  Ann Palliat Med       Date:  2016-07

9.  Intervention to improve care at life's end in inpatient settings: the BEACON trial.

Authors:  F Amos Bailey; Beverly R Williams; Lesa L Woodby; Patricia S Goode; David T Redden; Thomas K Houston; U Shanette Granstaff; Theodore M Johnson; Leslye C Pennypacker; K Sue Haddock; John M Painter; Jessie M Spencer; Thomas Hartney; Kathryn L Burgio
Journal:  J Gen Intern Med       Date:  2014-06       Impact factor: 5.128

10.  Hospice Family Caregiver Involvement in Care Plan Meetings: A Mixed-Methods Randomized Controlled Trial.

Authors:  Debra Parker Oliver; George Demiris; Karla Washington; Robin L Kruse; Greg Petroski
Journal:  Am J Hosp Palliat Care       Date:  2016-07-27       Impact factor: 2.500

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