Literature DB >> 23109469

How do you recruit and retain a prebirth cohort? Lessons learnt from growing up in New Zealand.

Susan M B Morton1, Cameron C Grant2, Polly E Atatoa Carr1, Elizabeth M Robinson3, Jennifer M Kinloch3, Courtney J Fleming4, Te Kani R Kingi4, Lana M Perese4, Renee Liang4.   

Abstract

Growing Up in New Zealand, a longitudinal study following nearly 7,000 children, has faced some unique challenges in identifying, enrolling, and retaining a large and diverse antenatal cohort. Identification of a study region with population demographics that enabled enrollment of an appropriately diverse sample was required as was intensive community and participant engagement in order to promote the study. Complementary methods used included direct engagement with prospective participants and the community and indirect engagement via media. Thus far, retention rates above 95% have been achieved by maintaining a multimethod approach that includes valuing participants and building trusting relationships, strong brand recognition, community engagement, maintenance of participant contact and location records, ensuring high-quality interactions between the participants and the study, pretesting measures and methods prior to the main cohort, and using participant feedback to inform the measures and methods used in future waves of data collection.
© The Author(s) 2012.

Entities:  

Keywords:  New Zealand; child health; cohort; longitudinal studies; recruitment; retention

Mesh:

Year:  2012        PMID: 23109469     DOI: 10.1177/0163278712462717

Source DB:  PubMed          Journal:  Eval Health Prof        ISSN: 0163-2787            Impact factor:   2.651


  16 in total

1.  Paternal Depression Symptoms During Pregnancy and After Childbirth Among Participants in the Growing Up in New Zealand Study.

Authors:  Lisa Underwood; Karen E Waldie; Elizabeth Peterson; Stephanie D'Souza; Marjolein Verbiest; Frances McDaid; Susan Morton
Journal:  JAMA Psychiatry       Date:  2017-04-01       Impact factor: 21.596

2.  Staphylococcus aureus colonisation and its relationship with skin and soft tissue infection in New Zealand children.

Authors:  Mark R Hobbs; Cameron C Grant; Mark G Thomas; Sarah Berry; Susan M B Morton; Emma Marks; Stephen R Ritchie
Journal:  Eur J Clin Microbiol Infect Dis       Date:  2018-07-31       Impact factor: 3.267

3.  Widespread prevalence of a CREBRF variant amongst Māori and Pacific children is associated with weight and height in early childhood.

Authors:  S D Berry; C G Walker; K Ly; R G Snell; P E Atatoa Carr; D Bandara; J Mohal; T G Castro; E J Marks; S M B Morton; C C Grant
Journal:  Int J Obes (Lond)       Date:  2017-09-20       Impact factor: 5.095

4.  Psychometric Properties and Normative Data for the Preschool Strengths and Difficulties Questionnaire in Two-Year-Old Children.

Authors:  Stephanie D'Souza; Karen E Waldie; Elizabeth R Peterson; Lisa Underwood; Susan M B Morton
Journal:  J Abnorm Child Psychol       Date:  2017-02

5.  Antenatal and Postnatal Determinants of Behavioural Difficulties in Early Childhood: Evidence from Growing Up in New Zealand.

Authors:  Stephanie D'Souza; Karen E Waldie; Elizabeth R Peterson; Lisa Underwood; Susan M B Morton
Journal:  Child Psychiatry Hum Dev       Date:  2019-02

Review 6.  Recruitment and retention of pregnant women in prospective birth cohort studies: A scoping review and content analysis of the literature.

Authors:  Ellen Goldstein; Ludmila N Bakhireva; Kendra Nervik; Shelbey Hagen; Alyssa Turnquist; Aleksandra E Zgierska; Lidia Enriquez Marquez; Ryan McDonald; Jamie Lo; Christina Chambers
Journal:  Neurotoxicol Teratol       Date:  2021-03-22       Impact factor: 3.763

7.  Informing retention in longitudinal cohort studies through a social marketing lens: Raine Study Generation 2 participants' perspectives on benefits and barriers to participation.

Authors:  Leesa Costello; Julie Dare; Manon Dontje; Leon Straker
Journal:  BMC Med Res Methodol       Date:  2020-07-29       Impact factor: 4.615

8.  Retention strategies in longitudinal cohort studies: a systematic review and meta-analysis.

Authors:  Samantha Teague; George J Youssef; Jacqui A Macdonald; Emma Sciberras; Adrian Shatte; Matthew Fuller-Tyszkiewicz; Chris Greenwood; Jennifer McIntosh; Craig A Olsson; Delyse Hutchinson
Journal:  BMC Med Res Methodol       Date:  2018-11-26       Impact factor: 4.615

Review 9.  Ethical issues in using the internet to engage participants in family and child research: A scoping review.

Authors:  Stacey Hokke; Naomi J Hackworth; Nina Quin; Shannon K Bennetts; Hnin Yee Win; Jan M Nicholson; Lawrie Zion; Jayne Lucke; Patrick Keyzer; Sharinne B Crawford
Journal:  PLoS One       Date:  2018-09-27       Impact factor: 3.240

10.  The association between maternal and partner experienced racial discrimination and prenatal perceived stress, prenatal and postnatal depression: findings from the growing up in New Zealand cohort study.

Authors:  Laia Bécares; Polly Atatoa-Carr
Journal:  Int J Equity Health       Date:  2016-09-22
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