Literature DB >> 23083543

A sibling-controlled, prospective study of outcomes at home and school in children with severe congenital heart disease.

Christopher G McCusker1, Mark P Armstrong, Mairead Mullen, Nicola N Doherty, Frank A Casey.   

Abstract

OBJECTIVES: The objectives of this study were to compare behaviour problems and competencies, at home and school, in 7-year-old children with congenital heart disease with a sibling control group, to examine the prospective determinants of outcome from infancy, and to explore whether any gains were maintained in our sub-group of children who had participated in a previous trial of psychological interventions in infancy.
METHODS: A total of 40 children who had undergone surgery to correct or palliate a significant congenital heart defect in infancy were compared (Child Behavior Checklist) with a nearest-age sibling control group (18 participants). Comparisons were made between sub-groups of children and families who had and had not participated in an early intervention trial.
RESULTS: Problems with attention, thought and social problems, and limitations in activity and school competencies, were found in comparison with siblings. Teacher reports were consistent with parents, although problems were of a lower magnitude. Disease, surgical, and neurodevelopmental functioning in infancy were related to competence outcomes but not behaviour problems. The latter were mediated by family and maternal mental health profiles from infancy. Limited, but encouraging, gains were maintained in the sub-group that had participated in the early intervention programme.
CONCLUSIONS: The present study is strengthened by its longitudinal design, use of teacher informants, and sibling control group. The patterns of problems and limitations discerned, and differential determinants thereof, have clear implications for interventions. We consider these in the light of our previously reported intervention trial with this sample and current outcomes at the 7-year follow-up.

Entities:  

Mesh:

Year:  2012        PMID: 23083543     DOI: 10.1017/S1047951112001667

Source DB:  PubMed          Journal:  Cardiol Young        ISSN: 1047-9511            Impact factor:   1.093


  12 in total

1.  Coping strategies used by mothers and fathers following diagnosis of congenital heart disease.

Authors:  Abigail C Demianczyk; Colleen F Bechtel Driscoll; Allison Karpyn; Amanda Shillingford; Anne E Kazak; Erica Sood
Journal:  Child Care Health Dev       Date:  2021-10-01       Impact factor: 2.508

2.  Children with Congenital Heart Disease Show Increased Behavioral Problems Compared to Healthy Peers: A Systematic Review and Meta-Analysis.

Authors:  Grace G Finkel; Lena S Sun; William M Jackson
Journal:  Pediatr Cardiol       Date:  2022-06-04       Impact factor: 1.655

3.  Cognitive and attentional functioning in adolescents and young adults with Tetralogy of Fallot and d-transposition of the great arteries.

Authors:  Lexa K Murphy; Bruce E Compas; Kristen L Reeslund; Melissa C Gindville; May Ling Mah; Larry W Markham; Lori C Jordan
Journal:  Child Neuropsychol       Date:  2015-09-20       Impact factor: 2.500

Review 4.  D-transposition of the great arteries: the current era of the arterial switch operation.

Authors:  Juan Villafañe; M Regina Lantin-Hermoso; Ami B Bhatt; James S Tweddell; Tal Geva; Meena Nathan; Martin J Elliott; Victoria L Vetter; Stephen M Paridon; Lazaros Kochilas; Kathy J Jenkins; Robert H Beekman; Gil Wernovsky; Jeffrey A Towbin
Journal:  J Am Coll Cardiol       Date:  2014-08-05       Impact factor: 24.094

5.  "There's no acknowledgement of what this does to people": A qualitative exploration of mental health among parents of children with critical congenital heart defects.

Authors:  Sarah E Woolf-King; Emily Arnold; Sandra Weiss; David Teitel
Journal:  J Clin Nurs       Date:  2018-03-13       Impact factor: 3.036

6.  Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative.

Authors:  Erica Sood; Amy Jo Lisanti; Sarah E Woolf-King; Jo Wray; Nadine Kasparian; Emily Jackson; Mary R Gregory; Keila N Lopez; Bradley S Marino; Trent Neely; Amy Randall; Sinai C Zyblewski; Cheryl L Brosig
Journal:  Cardiol Young       Date:  2021-06-04       Impact factor: 1.093

7.  Associations between Infant and Parent Characteristics and Measures of Family Well-Being in Neonates with Seizures: A Cohort Study.

Authors:  Linda S Franck; Renée A Shellhaas; Monica Lemmon; Julie Sturza; Janet S Soul; Taeun Chang; Courtney J Wusthoff; Catherine J Chu; Shavonne L Massey; Nicholas S Abend; Cameron Thomas; Elizabeth E Rogers; Charles E McCulloch; Katie Grant; Lisa Grossbauer; Kamil Pawlowski; Hannah C Glass
Journal:  J Pediatr       Date:  2020-06       Impact factor: 4.406

8.  Barriers and facilitators to discussing parent mental health within child health care: Perspectives of parents raising a child with congenital heart disease.

Authors:  Melanie K Franklin; Allison Karpyn; Jennifer Christofferson; Linda G McWhorter; Abigail C Demianczyk; Cheryl L Brosig; Emily A Jackson; Stacey Lihn; Sinai C Zyblewski; Anne E Kazak; Erica Sood
Journal:  J Child Health Care       Date:  2021-12-08       Impact factor: 1.896

9.  Life chances after surgery of congenital heart disease: A case-control-study of inter- and intragenerational social mobility over 15 years.

Authors:  Siegfried Geyer; Katharina Fleig; Kambiz Norozi; Lena Röbbel; Thomas Paul; Matthias Müller; Claudia Dellas
Journal:  PLoS One       Date:  2021-02-19       Impact factor: 3.240

Review 10.  EDUCATIONAL SERIES IN CONGENITAL HEART DISEASE: Prenatal diagnosis of congenital heart disease.

Authors:  Lindsey E Hunter; Anna N Seale
Journal:  Echo Res Pract       Date:  2018-07-16
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