Literature DB >> 23025639

Support needs of siblings of people with developmental disabilities.

Catherine K Arnold1, Tamar Heller, John Kramer.   

Abstract

This qualitative study examines the support needs of adult siblings of people with developmental disabilities. A survey completed by 139 siblings of people with developmental disabilities captured the needs of adult siblings through 2 open-ended questions. A grounded theory approach was used, and the sibling responses anchored the analysis, interpretation of findings, and discussion using the constant comparison method. Eleven core variables and 3 overarching themes emerged. Three overarching themes for sibling support needs include: (a) getting disability-related information, (b) getting support for their caregiving role, and (c) enhancing the formal support system to address sibling needs.

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Year:  2012        PMID: 23025639     DOI: 10.1352/1934-9556-50.5.373

Source DB:  PubMed          Journal:  Intellect Dev Disabil        ISSN: 1934-9491


  11 in total

1.  Sibling Relationships: Parent-Child Agreement and Contributions of Siblings With and Without ASD.

Authors:  Megan L Braconnier; Marika C Coffman; Nicole Kelso; Julie M Wolf
Journal:  J Autism Dev Disord       Date:  2018-05

2.  Adult Children's Serious Health Conditions and the Flow of Support Between the Generations.

Authors:  Megan Gilligan; J Jill Suitor; Marissa Rurka; Gulcin Con; Karl Pillemer
Journal:  Gerontologist       Date:  2017-04-01

3.  Exploring the preliminary outcomes of a sibling leadership program for adult siblings of individuals with intellectual and developmental disabilities.

Authors:  Meghan M Burke; Chung Eun Lee; Sarah R Carlson; Catherine K Arnold
Journal:  Int J Dev Disabil       Date:  2018-10-31

4.  Adult Siblings Who Have a Brother or Sister with Autism: Between-Family and Within-Family Variations in Sibling Relationships.

Authors:  Gael I Orsmond; Daniel Fulford
Journal:  J Autism Dev Disord       Date:  2018-12

5.  Residential transitions among adults with intellectual disability across 20 years.

Authors:  Ashley C Woodman; Marsha R Mailick; Kristy A Anderson; Anna J Esbensen
Journal:  Am J Intellect Dev Disabil       Date:  2014-11

6.  Subjective Poverty Moderates the Association Between Carer Status and Psychological Outcomes of Adult Siblings of People with Intellectual and Developmental Disabilities.

Authors:  Nikita K Hayden; Richard P Hastings; Clare Kassa; Frances Danylec
Journal:  J Autism Dev Disord       Date:  2022-03-19

7.  Evaluating strategies to manage and endure challenging behaviors in mucopolysaccharidoses.

Authors:  Nathan Grant
Journal:  Orphanet J Rare Dis       Date:  2021-04-08       Impact factor: 4.123

8.  Exploring the Needs of Spousal, Adult Child, and Adult Sibling Informal Caregivers: A Mixed-Method Systematic Review.

Authors:  Srishti Dang; Anne Looijmans; Giulia Ferraris; Giovanni Lamura; Mariët Hagedoorn
Journal:  Front Psychol       Date:  2022-03-25

Review 9.  Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis.

Authors:  Linda Nguyen; Hanae Davis; Samantha Bellefeuille; Jessica Havens; Susan M Jack; Briano Di Rezze; Marjolijn Ketelaar; Jan Willem Gorter
Journal:  Front Rehabil Sci       Date:  2021-10-05

10.  Mental Wellbeing of Family Members of Autistic Adults.

Authors:  Renske Herrema; Deborah Garland; Malcolm Osborne; Mark Freeston; Emma Honey; Jacqui Rodgers
Journal:  J Autism Dev Disord       Date:  2017-11
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