Literature DB >> 22989602

Transition in Duchenne muscular dystrophy: An expert meeting report and description of transition needs in an emergent patient population: (Parent Project Muscular Dystrophy Transition Expert Meeting 17-18 June 2011, Amsterdam, The Netherlands).

D G M Schrans1, D Abbott, H L Peay, R F Pangalila, E Vroom, N Goemans, J S H Vles, A P Aldenkamp, J G M Hendriksen.   

Abstract

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Year:  2012        PMID： 22989602     DOI： 10.1016/j.nmd.2012.08.009

Source DB:  PubMed          Journal:  Neuromuscul Disord        ISSN： 0960-8966            Impact factor:   4.296


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  8 in total

1.  Achieving Life Milestones in Duchenne/Becker Muscular Dystrophy: A Retrospective Analysis.

Authors:  Andrew Donaldson; Debra Guntrum; Emma Ciafaloni; Jeffrey Statland
Journal:  Neurol Clin Pract       Date:  2021-08

Review 2.  Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan.

Authors:  David J Birnkrant; Katharine Bushby; Carla M Bann; Susan D Apkon; Angela Blackwell; Mary K Colvin; Linda Cripe; Adrienne R Herron; Annie Kennedy; Kathi Kinnett; James Naprawa; Garey Noritz; James Poysky; Natalie Street; Christina J Trout; David R Weber; Leanne M Ward
Journal:  Lancet Neurol       Date:  2018-02-02       Impact factor: 44.182

3.  Role Attainment in Emerging Adulthood: Subjective Evaluation by Male Adolescents and Adults with Duchenne and Becker Muscular Dystrophy.

Authors:  Holly L Peay; Barbara T Do; Neil Khosla; Pangaja Paramsothy; Stephen W Erickson; Molly M Lamb; Nedra Whitehead; Deborah J Fox; Shree Pandya; Kathi Kinnett; Jodi Wolff; James F Howard
Journal:  J Neuromuscul Dis       Date:  2022

4.  Adult care for Duchenne muscular dystrophy in the UK.

Authors:  Sunil Rodger; Katherine L Woods; Catherine L Bladen; Angela Stringer; Julia Vry; Kathrin Gramsch; Janbernd Kirschner; Rachel Thompson; Katharine Bushby; Hanns Lochmüller
Journal:  J Neurol       Date:  2014-12-24       Impact factor: 4.849

5.  European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences.

Authors:  Julia Vry; Kathrin Gramsch; Sunil Rodger; Rachel Thompson; Birgit F Steffensen; Jes Rahbek; Sam Doerken; Adrian Tassoni; María de Los Angeles Beytía; Velina Guergueltcheva; Teodora Chamova; Ivailo Tournev; Anna Kostera-Pruszczyk; Anna Kaminska; Anna Lusakowska; Lenka Mrazova; Lenka Pavlovska; Jana Strenkova; Petr Vondráček; Marta Garami; Veronika Karcagi; Ágnes Herczegfalvi; Katherine Bushby; Hanns Lochmüller; Janbernd Kirschner
Journal:  J Neuromuscul Dis       Date:  2016-11-29

Review 6.  Developing multidisciplinary clinics for neuromuscular care and research.

Authors:  Sabrina Paganoni; Katie Nicholson; Fawn Leigh; Kathryn Swoboda; David Chad; Kristin Drake; Kellen Haley; Merit Cudkowicz; James D Berry
Journal:  Muscle Nerve       Date:  2017-08-29       Impact factor: 3.217

7.  Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences Survey.

Authors:  Pangaja Paramsothy; Adrienne R Herron; Molly M Lamb; Kathi Kinnett; Jodi Wolff; Michele L Yang; Joyce Oleszek; Shree Pandya; Annie Kennedy; Darryl Cooney; Deborah Fox; Daniel Sheehan
Journal:  PLoS Curr       Date:  2018-08-21

8.  Transition from Childhood to Adulthood in Patients with Duchenne Muscular Dystrophy.

Authors:  Eliza Wasilewska; Sylwia Małgorzewicz; Agnieszka Sobierajska-Rek; Joanna Jabłońska-Brudło; Lucyna Górska; Karolina Śledzińska; Joanna Bautembach-Minkowska; Jolanta Wierzba
Journal:  Medicina (Kaunas)       Date:  2020-08-24       Impact factor: 2.430
  8 in total

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