CONTEXT: Although graft and patient survival rates for living kidney donation are improved, some healthcare providers question whether volunteer donors and their informal caregivers are fully informed of the donation process and the risks involved. Donors and their family caregivers have reported that they receive limited information about the predonation and donor recovery process. Offering web-based information and social support is one way to address this gap. STRATEGY: Living kidney donor candidates and their family caregivers participating in the Living Donor Information Network for Caregiving (LINC) have access to a variety of online informational resources and a social support discussion forum throughout their living kidney donation experience. Strategies in the development and implementation of an online information and social-support resource are presented. CONCLUSIONS: Use of the LINC website for information and support may assist health care providers in identifying potential barriers in the current donation process and provide direction for enhancing knowledge and confidence among donors and family caregivers.
CONTEXT: Although graft and patient survival rates for living kidney donation are improved, some healthcare providers question whether volunteer donors and their informal caregivers are fully informed of the donation process and the risks involved. Donors and their family caregivers have reported that they receive limited information about the predonation and donor recovery process. Offering web-based information and social support is one way to address this gap. STRATEGY: Living kidney donor candidates and their family caregivers participating in the Living Donor Information Network for Caregiving (LINC) have access to a variety of online informational resources and a social support discussion forum throughout their living kidney donation experience. Strategies in the development and implementation of an online information and social-support resource are presented. CONCLUSIONS: Use of the LINC website for information and support may assist health care providers in identifying potential barriers in the current donation process and provide direction for enhancing knowledge and confidence among donors and family caregivers.
Authors: Willo Pequegnat; B R Simon Rosser; Anne M Bowen; Sheana S Bull; Ralph J DiClemente; Walter O Bockting; Jonathan Elford; Martin Fishbein; Laura Gurak; Keith Horvath; Joseph Konstan; Seth M Noar; Michael W Ross; Lorraine Sherr; David Spiegel; Rick Zimmerman Journal: AIDS Behav Date: 2006-10-20
Authors: Benita Walton-Moss; L Ebony Boulware; Matthew Cooper; Laura Taylor; Kathryn Dane; Marie T Nolan Journal: Clin Transplant Date: 2007 Jan-Feb Impact factor: 2.863