Literature DB >> 22846455

Association between participation in life situations of children with cerebral palsy and their physical, social, and attitudinal environment: a cross-sectional multicenter European study.

Allan Colver1, Ute Thyen, Catherine Arnaud, Eva Beckung, Jerome Fauconnier, Marco Marcelli, Vicki McManus, Susan I Michelsen, Jackie Parkes, Kathryn Parkinson, Heather O Dickinson.   

Abstract

OBJECTIVE: To evaluate how participation of children with cerebral palsy (CP) varied with their environment.
DESIGN: Home visits to children. Administration of Assessment of Life Habits and European Child Environment Questionnaires. Structural equation modeling of putative associations between specific domains of participation and environment, while allowing for severity of child's impairments and pain.
SETTING: European regions with population-based registries of children with CP. PARTICIPANTS: Children (n=1174) aged 8 to 12 years were randomly selected from 8 population-based registries of children with CP in 6 European countries. Of these, 743 (63%) agreed to participate; 1 further region recruited 75 children from multiple sources. Thus, there were 818 children in the study.
INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURE: Participation in life situations.
RESULTS: For the hypothesized associations, the models confirmed that higher participation was associated with better availability of environmental items. Higher participation in daily activities-mealtimes, health hygiene, personal care, and home life-was significantly associated with a better physical environment at home (P<.01). Mobility was associated with transport and physical environment in the community. Participation in social roles (responsibilities, relationships, recreation) was associated with attitudes of classmates and social support at home. School participation was associated with attitudes of teachers and therapists. Environment explained between 14% and 52% of the variation in participation.
CONCLUSIONS: The findings confirmed the social model of disability. The physical, social, and attitudinal environment of disabled children influences their participation in everyday activities and social roles.
Copyright © 2012 American Congress of Rehabilitation Medicine. Published by Elsevier Inc. All rights reserved.

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Year:  2012        PMID: 22846455      PMCID: PMC3826325          DOI: 10.1016/j.apmr.2012.07.011

Source DB:  PubMed          Journal:  Arch Phys Med Rehabil        ISSN: 0003-9993            Impact factor:   3.966


  27 in total

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2.  A qualitative study of the physical, social and attitudinal environments influencing the participation of children with cerebral palsy in northeast England.

Authors:  K Lawlor; S Mihaylov; B Welsh; S Jarvis; A Colver
Journal:  Pediatr Rehabil       Date:  2006 Jul-Sep

3.  How might districts identify local barriers to participation for children with cerebral palsy?

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Journal:  Public Health       Date:  2005-12-09       Impact factor: 2.427

4.  Environmental factors and their role in participation and life satisfaction after spinal cord injury.

Authors:  Gale Whiteneck; Michelle A Meade; Marcel Dijkers; Denise G Tate; Tamara Bushnik; Martin B Forchheimer
Journal:  Arch Phys Med Rehabil       Date:  2004-11       Impact factor: 3.966

5.  Measuring participation in children with disabilities using the Assessment of Life Habits.

Authors:  Luc Noreau; Céline Lepage; Lucie Boissiere; Roger Picard; Patrick Fougeyrollas; Jean Mathieu; Gilbert Desmarais; Line Nadeau
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6.  Participation of young severely disabled children is influenced by their intrinsic impairments and environment.

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Journal:  Dev Med Child Neurol       Date:  2007-05       Impact factor: 5.449

7.  A subjective measure of environmental facilitators and barriers to participation for people with mobility limitations.

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Review 8.  Children with cerebral palsy participate: a review of the literature.

Authors:  Christine Imms
Journal:  Disabil Rehabil       Date:  2008       Impact factor: 3.033

9.  Study protocol: SPARCLE--a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy.

Authors:  Allan Colver
Journal:  BMC Public Health       Date:  2006-04-25       Impact factor: 3.295

10.  Assessment of data quality in a multi-centre cross-sectional study of participation and quality of life of children with cerebral palsy.

Authors:  Heather Dickinson; Kathryn Parkinson; Vicki McManus; Catherine Arnaud; Eva Beckung; Jérôme Fauconnier; Susan I Michelsen; Jackie Parkes; Giorgio Schirripa; Ute Thyen; Allan Colver
Journal:  BMC Public Health       Date:  2006-11-06       Impact factor: 3.295

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  16 in total

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Authors:  Kristie F Bjornson; Chuan Zhou; Richard Stevenson; Dimitri A Christakis
Journal:  Arch Phys Med Rehabil       Date:  2013-07-05       Impact factor: 3.966

3.  Electronic participation-focused care planning support for families: a pilot study.

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4.  Walking activity of children with cerebral palsy and children developing typically: a comparison between the Netherlands and the United States.

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5.  Relation of stride activity and participation in mobility-based life habits among children with cerebral palsy.

Authors:  Kristie F Bjornson; Chuan Zhou; Richard D Stevenson; Dimitri Christakis
Journal:  Arch Phys Med Rehabil       Date:  2013-11-11       Impact factor: 3.966

6.  How available to European children and young people with cerebral palsy are features of their environment that they need?

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7.  Participation in Physical Play and Leisure in Children With Motor Impairments: Mixed-Methods Study to Generate Evidence for Developing an Intervention.

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8.  Closing the Gap Between Theory and Practice: Conceptualisation of a School-Based Intervention to Improve the School Participation of Primary School Students on the Autism Spectrum and Their Typically Developing Peers.

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Journal:  J Autism Dev Disord       Date:  2021-12-04

9.  European study of frequency of participation of adolescents with and without cerebral palsy.

Authors:  Susan I Michelsen; Esben M Flachs; Mogens T Damsgaard; Jacqueline Parkes; Kathryn Parkinson; Marion Rapp; Catherine Arnaud; Malin Nystrand; Allan Colver; Jerome Fauconnier; Heather O Dickinson; Marco Marcelli; Peter Uldall
Journal:  Eur J Paediatr Neurol       Date:  2013-12-25       Impact factor: 3.140

10.  Predictors of participation of adolescents with cerebral palsy: A European multi-centre longitudinal study.

Authors:  Van Mô Dang; Allan Colver; Heather O Dickinson; Marco Marcelli; Susan I Michelsen; Jackie Parkes; Kathryn Parkinson; Marion Rapp; Catherine Arnaud; Malin Nystrand; Jérôme Fauconnier
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