OBJECTIVES/HYPOTHESIS: Anterior and central skull base lesions and their surgical treatment (endoscopic or open approaches) can affect quality of life. A disease-specific instrument is needed to compare quality of life for different surgical approaches. STUDY DESIGN: Items were generated using a composite strategy consisting of chart review, systematic review of skull base instruments, expert interviews, and qualitative analysis of patient focus groups. A cross-sectional survey study was performed to reduce items based on an item impact score. METHODS: Charts of 138 patients who underwent skull base surgery were reviewed to identify physical items and domains. Five experts were interviewed for item and domain identification. Thirty-four patients were recruited into eight focus groups based on their surgical approach (open or endoscopic) and tumor location (anterior or central). Items were generated using a composite approach and then reduced into a final questionnaire using item impact scores. RESULTS: Chart review identified 47 physical items. Systematic review revealed nine relevant instruments with 217 relevant items. Experts identified 11 domains with 69 additional items. Qualitative analysis of focus groups generated 49 items. A total of 382 items were identified and reduced to 77 items after eliminating overlapping and irrelevant items. Further item reduction using item impact scores yielded 41 items. CONCLUSIONS: The Skull Base Inventory is a disease-specific quality-of-life instrument. Psychometric properties have yet to be tested. It may serve to compare quality of life for endoscopic or open procedures.
OBJECTIVES/HYPOTHESIS: Anterior and central skull base lesions and their surgical treatment (endoscopic or open approaches) can affect quality of life. A disease-specific instrument is needed to compare quality of life for different surgical approaches. STUDY DESIGN: Items were generated using a composite strategy consisting of chart review, systematic review of skull base instruments, expert interviews, and qualitative analysis of patient focus groups. A cross-sectional survey study was performed to reduce items based on an item impact score. METHODS: Charts of 138 patients who underwent skull base surgery were reviewed to identify physical items and domains. Five experts were interviewed for item and domain identification. Thirty-four patients were recruited into eight focus groups based on their surgical approach (open or endoscopic) and tumor location (anterior or central). Items were generated using a composite approach and then reduced into a final questionnaire using item impact scores. RESULTS: Chart review identified 47 physical items. Systematic review revealed nine relevant instruments with 217 relevant items. Experts identified 11 domains with 69 additional items. Qualitative analysis of focus groups generated 49 items. A total of 382 items were identified and reduced to 77 items after eliminating overlapping and irrelevant items. Further item reduction using item impact scores yielded 41 items. CONCLUSIONS: The Skull Base Inventory is a disease-specific quality-of-life instrument. Psychometric properties have yet to be tested. It may serve to compare quality of life for endoscopic or open procedures.
Authors: Ellen Ten Dam; Astrid G W Korsten-Meijer; Rutger H Schepers; Wicher J van der Meer; Peter O Gerrits; Bernard F A M van der Laan; Robert A Feijen Journal: Eur Arch Otorhinolaryngol Date: 2014-10-31 Impact factor: 2.503
Authors: Christopher M Yao; Alyssa Kahane; Eric Monteiro; Fred Gentili; Gelareh Zadeh; John R de Almeida Journal: J Neurol Surg B Skull Base Date: 2017-02-17
Authors: Ricardo Landini Lutaif Dolci; Lígia Tédde de Moraes; Ana Carolina Mayor de Carvalho; Jeniffer Cristina Kozechen Rickli; Jamile Lopes de Souza; Williams Escalante Encinas; José Viana Lima Junior; Nilza Maria Scalissi; Américo Rubens Leite Dos Santos; Paulo Roberto Lazarini Journal: Eur Arch Otorhinolaryngol Date: 2020-09-28 Impact factor: 2.503
Authors: Edward C Kuan; Frederick Yoo; Jennifer Chyu; Angela Oh; Marvin Bergsneider; Marilene B Wang Journal: J Neurol Surg B Skull Base Date: 2017-11-07
Authors: Soroush Larjani; Eric Monteiro; Ian Witterick; Allan Vescan; Gelareh Zadeh; Fred Gentili; David P Goldstein; John R de Almeida Journal: J Otolaryngol Head Neck Surg Date: 2016-09-07