| Literature DB >> 22777565 |
Helen L Brooks1, Anne Rogers, Dharmi Kapadia, Jack Pilgrim, David Reeves, Ivaylo Vassilev.
Abstract
OBJECTIVES: To explore in the context of peoples' personal social networks, the contribution that pets make to 'the work' associated with the management of long-term conditions.Entities:
Keywords: Pets; illness work; long-term conditions; mixed methods; self-management; social networks
Mesh:
Year: 2012 PMID: 22777565 PMCID: PMC3785224 DOI: 10.1177/1742395312452620
Source DB: PubMed Journal: Chronic Illn ISSN: 1742-3953
Demographic information from sample of 300 participants
| % (n) | |
|---|---|
| Gender | |
| Male | 64.3 (193) |
| Female | 35.7 (107) |
| Age | Mean: 65 years (range: 20–93 years) |
| Condition | |
| Diabetes | 19.3 (58) |
| CHD | 40.0 (120) |
| Both | 40.7 (122) |
| Number of conditions | |
| 1 | 16.3 (49) |
| 2 | 31.0 (93) |
| 3 | 27.7 (83) |
| 4 | 14.3 (43) |
| Five or more | 10.7 (32) |
| Length of time since diagnosis | |
| 0–5 years | 27.3 (82) |
| 5–10 years | 27.0 (81) |
| 10+ years | 45.7 (137) |
| Ethnicity | |
| White British | 86.4 (259) |
| Black (African or Caribbean) | 3.7 (11) |
| Asian (Indian, Pakistani or Bangladeshi) | 8.0 (24) |
| Chinese | 0.3 (1) |
| Other ethnic origin | 1.6 (5) |
| Home ownership | |
| Owns outright or owns mortgaged | 62.3 (187) |
| Rents | 37.7 (113) |
| Pet ownership | |
| 0 | 81.3 (244) |
| 1 | 16.7 (50) |
| 2 | 1.3 (4) |
| 4 | 0.7 (2) |
| Type of pet ownership | |
| Dog | 53.0 (35) |
| Cat | 30.3 (20) |
| Budgie/parrot | 10.6 (7) |
| Fish | 4.5 (3) |
| Bearded dragon | 1.5 (1) |
The illness work framework
| Types of work | Definitions | ||
|---|---|---|---|
| Practical work | Practical Illness work | Work related to health management. | |
| Contingency/improvisation | Crisis prevention and management: ‘work that gets things back “on track” in the face of the unexpected, and modifies action to accommodate unanticipated contingencies’ (potential support) | ||
| Translation, mediation and embodiment | The translation of abstract knowledge into practical knowledge and then into practice. The difference between knowing and doing. Includes illness specific work related to diet, exercise and medication (regimen work). Symptom management and diagnostic-related work related to assessment of health status. | ||
| Coordination work | Involves combining different entities such as tasks, types of work and people, making them work together within a specific context. Also involves negotiations regarding the ways in which work is done, who does what, when, how and why. The organisation of tasks that need to be done. | ||
| Advocacy work | The negotiation of contributions and the work done by others on one’s behalf | ||
| Practical everyday work | Housekeeping and repairing; occupational work; child rearing; sentimental work; eating. Includes generic support related to diet and exercise (general shopping and unspecific personal care). | ||
| Everyday work – diet | Work related to non-specific diet related support (shopping, cooking, going for a meal) | ||
| Everyday work – exercise | Work related to non-specific exercise related support (walking, swimming, going to the gym) | ||
| Emotional work | Illness specific emotional work | Work related to comforting when worried or anxious about health related issues | |
| Everyday emotional work | Work related to comforting when worried or anxious about everyday issues. Well-being and companionship. | ||
| Biographical work | Biographical work | Work related to the actions taken to retain control over the life course and to give life meaning again. This includes the reassessment of personal expectations, capabilities, future plans, identity, relationships and strong emotional bonds. Includes illness-related and non-illness related biographical events. |
Drawn from the work of Corbin and Strauss.[25,26]
Illness work questions
| I will ask you a couple of questions about each person in your diagram and will ask you to rate each of them in terms of their contribution on a scale between 1 and 5, where 1 is not at all and 5 is a lot. Please start with the people in the centre of the diagram. |
| 1. This person helps me with the day-to-day management of my long-term condition. |
| 2. This person makes the day-to-day management of my long-term condition more difficult for me. |
| 3. This person helps me with the day-to-day running of my household. |
| 4. This person helps me value and enjoy life. |
| 5. This person helps me achieve personal goals. |
| 6. This person helps me when I need to re-arrange things due to health problems. |
| 7. This person helps me understand advice so I know what I have to do to manage my condition. |
| 8. This person helps me organise tasks related to my condition, including arranging appointments with health care staff, getting prescriptions etc. |
| 9. This person stands in for me or stands up for me when I am unwell or unable to stand up for myself. |
| 10. This person comforts me when I am worried or anxious about my health problems. |
| 11. This person makes me feel good about myself. |
| 12. This person makes me feel bad about myself. |
| 13. This person helps me with things related to my diet. |
| 14. This person can have a negative influence on my diet. |
| 15. This person helps me with things related to physical activities and exercise. |
| 16. This person discourages me from doing physical activities and exercise. |
| 17. This person helps me with things related to medications. |
Definitions of types of work used within the paper
| Practical work | Emotional work | Biographical work |
|---|---|---|
| Work related to housekeeping and repairing; occupational work; child rearing; support and activities related to diet and exercise, general shopping and unspecific personal care. | Work related to comforting when worried or anxious about everyday matters, including health, well-being and companionship. | Work related to the actions taken to retain control over the life course and to give life meaning again. This includes the reassessment of personal expectations, capabilities and future plans, personal identity, relationships and biographical events. |
| In addition, practical work incorporates the work related to taking medications, crisis prevention and management, regimen work, taking and interpreting measurements, understanding symptoms, making appointments, etc. |
Prompt questions for qualitative interviews
| 1. How do your people/pets help you manage your condition day to day? |
| 2. What do people/pets do to help you cope with your illness? |
| 3. Where or who do you go to find out more about your illness? |
| 4. Is there anything else that you find useful to help you cope with your illness? |
| 5. When you need advice about, or help with, your diet, who do you go to? |
| 6. When you need advice about, or help with, exercise, who do you go to? |
| 7. Where would you go, or who would you go to, for advice or help with relieving stress? |
| 8. When you need advice about, or help with, medications who would you turn to? |
| 9. a) Living with a long-term condition often means that you need to do things more slowly, take on additional tasks and other people may need to make compromises that are good for your health. Who in your diagram does these things? |
| b) Please describe in detail what would you do on a typical day starting from getting up in the morning. Please include tasks and activities that are not related to managing your condition, such as cooking, cleaning, making repairs, etc. Can you tell us how different people/pets on your diagram are involved with different activities? |
| 10. Who do you turn to when you are worried about your illness? |
| 11. a) Looking at your diagram, who do you think you would like to be more involved in helping you with your illness than they are at present? |
| b) What and who helps or hinders your care (related to diet/exercise/medication)? Can you think of examples? |
| 13. Who or what (e.g. people/pets) in your diagram gives you emotional support and encouragement? Can you think of examples? |
| 14. Who in your diagram would step in/stand up for you when you do not feel well enough to stand up for yourself? |
| 15. Who among the people or pets in your diagram do you help? How? |
Themes
| 1. The role of pets in long-term condition management. |
| 2. Specific roles and functions of pets in relation to chronic illness. |
| 3. Types of work done by pets and how this was actualised in everyday life. |
| 4. The negative influence of social networks on chronic illness management. |
| 5. The reciprocal nature of social networks and the associated benefits. |
Mean emotional, practical, biographical and negative work scores for different relationship categories
| Group mean (standard error) | |||
|---|---|---|---|
| Emotional work | 8.26 (0.46) | ||
| Partner or spouse | 34 | 4.96 (0.31) | |
| Close family | 141 | 4.91 (0.46) | |
| Other family | 41 | 4.56 (0.36) | |
| Pets | 66 | 3.71 (0.32) | |
| Friends or colleagues | 113 | 3.14 (0.53) | |
| Groups | 26 | 3.04 (0.64) | |
| Other relationships[ | 16 | 1.69 (0.31) | |
| Medical professionals | 114 | ||
| Total | 551 | ||
| Practical work | 7.47 (0.30) | ||
| Partner or spouse | 34 | 2.22 (0.17) | |
| Close family | 141 | 1.72 (0.18) | |
| Medical professionals | 114 | 1.70 (0.30) | |
| Other family | 41 | 1.30 (0.19) | |
| Friends or colleagues | 113 | 1.20 (0.45) | |
| Other relationships[ | 16 | 0.88 (0.23) | |
| Pets | 66 | 0.55 (0.36) | |
| Groups | 26 | ||
| Total | 551 | ||
| Biographical work | |||
| Partner or spouse | 34 | 7.29 (0.55) | |
| Close family | 141 | 3.60 (0.36) | |
| Other relationships[ | 16 | 2.60 (0.77) | |
| Pets | 66 | 2.54 (0.42) | |
| Other family | 41 | 2.34 (0.54) | |
| Groups | 26 | 2.11 (0.63) | |
| Friends or colleagues | 113 | 1.83 (0.38) | |
| Medical professionals | 114 | 0.79 (0.36) | |
| Total | 551 |
Other relationships included carers, volunteers and food delivery service.
Results from multivariate linear regression