Literature DB >> 22748759

Development of an instrument to measure parents' preferences and goals for the treatment of attention deficit-hyperactivity disorder.

Alexander G Fiks1, Stephanie Mayne, Cayce C Hughes, Elena Debartolo, Carina Behrens, James P Guevara, Thomas Power.   

Abstract

OBJECTIVES: To describe the development and validation of an instrument to measure parents' attention deficit-hyperactivity disorder (ADHD) treatment preferences and goals.
METHODS: Parents of children 6 to 12 years of age diagnosed with ADHD in the past 18 months were recruited from 8 primary care sites and an ADHD treatment center (autism excluded). A 16-item medication, 15-item behavior therapy preference scale and a 23-item goal scale, were developed after a review of the literature, 90 parent and clinician semistructured interviews, and input from parent advocates and professional experts were administered to parents. Parent cognitive interviews confirmed item readability, clarity, content, and response range. We conducted an exploratory factor analysis and assessed internal consistency and test-retest reliability and construct and concurrent validity.
RESULTS: We recruited 237 parents (mean child age 8.1 years, 51% black, 59% from primary care, 61% of children medication naive). Factor analyses identified 4 medication preference subscales (treatment acceptability, feasibility, stigma, and adverse effects, Cronbach's α 0.74-0.87); 3 behavior therapy subscales (treatment acceptability, feasibility, and adverse effects, α 0.76-0.83); and 3 goal subscales (academic achievement, behavioral compliance, and interpersonal relationships, α 0.83-0.86). The most strongly endorsed goal was academic achievement. The scales demonstrated construct validity, concurrent validity (r = 0.3-0.6) compared with the Treatment Acceptability Questionnaire and Impairment Rating Scale and moderate to excellent test-retest reliability (intraclass coefficient = 0.7-0.9).
CONCLUSIONS: We developed a valid and reliable instrument for measuring preferences and goals for ADHD treatment, which may help clinicians more easily comply with new national treatment guidelines for ADHD that emphasize shared decision making.
Copyright © 2012 Academic Pediatric Association. Published by Elsevier Inc. All rights reserved.

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Year:  2012        PMID: 22748759      PMCID: PMC3456970          DOI: 10.1016/j.acap.2012.04.009

Source DB:  PubMed          Journal:  Acad Pediatr        ISSN: 1876-2859            Impact factor:   3.107


  36 in total

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2.  ADHD: clinical practice guideline for the diagnosis, evaluation, and treatment of attention-deficit/hyperactivity disorder in children and adolescents.

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Journal:  Pediatrics       Date:  2011-10-16       Impact factor: 7.124

3.  Parent acceptability and feasibility of ADHD interventions: assessment, correlates, and predictive validity.

Authors:  D S Bennett; T J Power; A L Rostain; D E Carr
Journal:  J Pediatr Psychol       Date:  1996-10

4.  Contrasting parents' and pediatricians' perspectives on shared decision-making in ADHD.

Authors:  Alexander G Fiks; Cayce C Hughes; Angela Gafen; James P Guevara; Frances K Barg
Journal:  Pediatrics       Date:  2010-12-20       Impact factor: 7.124

5.  Child, parent, and therapist (dis)agreement on target problems in outpatient therapy: the therapist's dilemma and its implications.

Authors:  Kristin M Hawley; John R Weisz
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Review 6.  School-based interventions for students with attention-deficit/hyperactivity disorder.

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Journal:  Curr Psychiatry Rep       Date:  2009-10       Impact factor: 5.285

7.  National trends in the treatment of attention deficit hyperactivity disorder.

Authors:  Mark Olfson; Marc J Gameroff; Steven C Marcus; Peter S Jensen
Journal:  Am J Psychiatry       Date:  2003-06       Impact factor: 18.112

8.  Stimulant and psychosocial treatment of ADHD in Latino/Hispanic children.

Authors:  José J Bauermeister; Glorisa Canino; Milagros Bravo; Rafael Ramírez; Peter S Jensen; Ligia Chavez; Alfonso Martínez-Taboas; Julio Ribera; Margarita Alegría; Pedro García
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2003-07       Impact factor: 8.829

9.  Acceptability of alternative treatments for deviant child behavior.

Authors:  A E Kazdin
Journal:  J Appl Behav Anal       Date:  1980

10.  Stimulant treatment patterns and compliance in children and adults with newly treated attention-deficit/hyperactivity disorder.

Authors:  Amy Perwien; Jennifer Hall; Andrine Swensen; Ralph Swindle
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  13 in total

Review 1.  Parental preferences and goals regarding ADHD treatment.

Authors:  Alexander G Fiks; Stephanie Mayne; Elena Debartolo; Thomas J Power; James P Guevara
Journal:  Pediatrics       Date:  2013-09-02       Impact factor: 7.124

Review 2.  Systematic Review of Patients' and Parents' Preferences for ADHD Treatment Options and Processes of Care.

Authors:  Nicole K Schatz; Gregory A Fabiano; Charles E Cunningham; Susan dosReis; Daniel A Waschbusch; Stephanie Jerome; Kellina Lupas; Karen L Morris
Journal:  Patient       Date:  2015-12       Impact factor: 3.883

3.  Sharing of ADHD Information between Parents and Teachers Using an EHR-Linked Application.

Authors:  Jeremy J Michel; Stephanie Mayne; Robert W Grundmeier; James P Guevara; Nathan J Blum; Thomas J Power; Emily Coffin; Jeffrey M Miller; Alexander G Fiks
Journal:  Appl Clin Inform       Date:  2018-12-19       Impact factor: 2.342

4.  Assessing the Safety of Custom Web-Based Clinical Decision Support Systems in Electronic Health Records: A Case Study.

Authors:  Jeritt G Thayer; Jeffrey M Miller; Alexander G Fiks; Linda Tague; Robert W Grundmeier
Journal:  Appl Clin Inform       Date:  2019-04-03       Impact factor: 2.342

Review 5.  Knowledge and attitudes about attention-deficit/hyperactivity disorder (ADHD) and its treatment: the views of children, adolescents, parents, teachers and healthcare professionals.

Authors:  Maria Moldavsky; Kapil Sayal
Journal:  Curr Psychiatry Rep       Date:  2013-08       Impact factor: 5.285

6.  Coordinating Systems of Care Using Health Information Technology: Development of the ADHD Care Assistant.

Authors:  Thomas J Power; Jeremy Michel; Stephanie Mayne; Jeffrey Miller; Nathan J Blum; Robert W Grundmeier; James P Guevara; Alexander G Fiks
Journal:  Adv Sch Ment Health Promot       Date:  2016-06-27

7.  Six Stages of Engagement in ADHD Treatment Described by Diverse, Urban Parents.

Authors:  Andrea E Spencer; Jennifer Sikov; J Krystel Loubeau; Nicole Zolli; Tithi Baul; Megan Rabin; Syeda Hasan; Katherine Rosen; Olivia Buonocore; Julia Lejeune; Rohan Dayal; Lisa Fortuna; Christina Borba; Michael Silverstein
Journal:  Pediatrics       Date:  2021-09-16       Impact factor: 9.703

8.  Families' Priorities Regarding Hospital-to-Home Transitions for Children With Medical Complexity.

Authors:  JoAnna K Leyenaar; Emily R O'Brien; Laurel K Leslie; Peter K Lindenauer; Rita M Mangione-Smith
Journal:  Pediatrics       Date:  2016-12-02       Impact factor: 7.124

9.  Parents' goals for ADHD care in a clinical pediatric sample.

Authors:  Lucy McGoron; Raymond Sturner; Barbara Howard; Tammy D Barry; Karen Seymour; Theodore S Tomeny; Tanya M Morrel; Brandi M Ellis; Danielle Marks
Journal:  Clin Pediatr (Phila)       Date:  2014-09       Impact factor: 1.168

Review 10.  ADHD in children and youth: Part 2-Treatment.

Authors:  Mark E Feldman; Alice Charach; Stacey A Bélanger
Journal:  Paediatr Child Health       Date:  2018-10-24       Impact factor: 2.253

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