Literature DB >> 22745363

Divergent views of hope influencing communications between parents and hospital providers.

Cecelia I Roscigno1, Teresa A Savage, Karen Kavanaugh, Teresa T Moro, Sarah J Kilpatrick, Howard T Strassner, William A Grobman, Robert E Kimura.   

Abstract

This study evaluated parents' and health care providers' (HCPs) descriptions of hope following counseling of parents at risk of delivering an extremely premature infant. Data came from a longitudinal multiple case study investigation that examined the decision making and support needs of 40 families and their providers. Semistructured interviews were conducted before and after delivery. Divergent viewpoints of hope were found between parents and many HCPs and were subsequently coded using content analysis. Parents relied on hope as an emotional motivator, whereas most HCPs described parents' notions of hope as out of touch with reality. Parents perceived that such divergent beliefs about the role of hope negatively shaped communicative interactions and reduced trust with some of their providers. A deeper understanding of how varying views of hope might shape communications will uncover future research questions and lead to theory-based interventions aimed at improving the process of discussing difficult news with parents.

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Mesh:

Year:  2012        PMID: 22745363      PMCID: PMC3572714          DOI: 10.1177/1049732312449210

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  41 in total

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Authors:  Jennifer W Mack; Joanne Wolfe
Journal:  Curr Opin Pediatr       Date:  2006-02       Impact factor: 2.856

2.  Values parents apply to decision-making regarding delivery room resuscitation for high-risk newborns.

Authors:  Renee D Boss; Nancy Hutton; Leslie J Sulpar; Anna M West; Pamela K Donohue
Journal:  Pediatrics       Date:  2008-09       Impact factor: 7.124

3.  Parents' experiences following children's moderate to severe traumatic brain injury: a clash of cultures.

Authors:  Cecelia I Roscigno; Kristen M Swanson
Journal:  Qual Health Res       Date:  2011-05-25

Review 4.  Infants of borderline viability: ethical and clinical considerations.

Authors:  Malcolm Chiswick
Journal:  Semin Fetal Neonatal Med       Date:  2007-11-13       Impact factor: 3.926

5.  Caregivers attitudes for very premature infants: what if they knew?

Authors:  A Janvier; J Lantos; M Deschênes; E Couture; S Nadeau; K J Barrington
Journal:  Acta Paediatr       Date:  2008-03       Impact factor: 2.299

6.  Intensive care for extreme prematurity--moving beyond gestational age.

Authors:  Jon E Tyson; Nehal A Parikh; John Langer; Charles Green; Rosemary D Higgins
Journal:  N Engl J Med       Date:  2008-04-17       Impact factor: 91.245

7.  Hope and prognostic disclosure.

Authors:  Jennifer W Mack; Joanne Wolfe; E Francis Cook; Holcombe E Grier; Paul D Cleary; Jane C Weeks
Journal:  J Clin Oncol       Date:  2007-12-10       Impact factor: 44.544

8.  Prognosticating futures and the human experience of hope.

Authors:  Sally Thorne; Valerie Oglov; Elizabeth-Anne Armstrong; T Gregory Hislop
Journal:  Palliat Support Care       Date:  2007-09

9.  Quality of life of caregivers of very low-birthweight infants.

Authors:  Pamela K Donohue; Elana Maurin; Lee Kimzey; Marilee C Allen; Donna Strobino
Journal:  Birth       Date:  2008-09       Impact factor: 3.689

Review 10.  Collaborative communication in pediatric palliative care: a foundation for problem-solving and decision-making.

Authors:  Chris Feudtner
Journal:  Pediatr Clin North Am       Date:  2007-10       Impact factor: 3.278

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  16 in total

1.  Prospective parents' perspectives on antenatal decision making for the anticipated birth of a periviable infant.

Authors:  Brownsyne Tucker Edmonds; Teresa A Savage; Robert E Kimura; Sarah J Kilpatrick; Miriam Kuppermann; William Grobman; Karen Kavanaugh
Journal:  J Matern Fetal Neonatal Med       Date:  2017-11-05

2.  How healthcare provider talk with parents of children following severe traumatic brain injury is perceived in early acute care.

Authors:  Cecelia I Roscigno; Teresa A Savage; Gerald Grant; Gerry Philipsen
Journal:  Soc Sci Med       Date:  2013-04-28       Impact factor: 4.634

3.  Evaluating the Use of a Decision Aid for Parents Facing Extremely Premature Delivery: A Randomized Trial.

Authors:  Úrsula Guillén; Amy Mackley; Naomi Laventhal; Stephanie Kukora; Lori Christ; Matthew Derrick; Jennifer Batza; Sarvin Ghavam; Haresh Kirpalani
Journal:  J Pediatr       Date:  2019-04-02       Impact factor: 4.406

4.  Parent perceptions of early prognostic encounters following children's severe traumatic brain injury: 'locked up in this cage of absolute horror'.

Authors:  Cecelia I Roscigno; Gerald Grant; Teresa A Savage; Gerry Philipsen
Journal:  Brain Inj       Date:  2013-10-02       Impact factor: 2.311

5.  What information do parents need when facing end-of-life decisions for their child? A meta-synthesis of parental feedback.

Authors:  Vicki Xafis; Dominic Wilkinson; Jane Sullivan
Journal:  BMC Palliat Care       Date:  2015-04-30       Impact factor: 3.234

6.  Balancing obligations: should written information about life-sustaining treatment be neutral?

Authors:  Vicki Xafis; Dominic Wilkinson; Lynn Gillam; Jane Sullivan
Journal:  J Med Ethics       Date:  2014-04-24       Impact factor: 2.903

7.  Preferred prenatal counselling at the limits of viability: a survey among Dutch perinatal professionals.

Authors:  R Geurtzen; Arno Van Heijst; Rosella Hermens; Hubertina Scheepers; Mallory Woiski; Jos Draaisma; Marije Hogeveen
Journal:  BMC Pregnancy Childbirth       Date:  2018-01-03       Impact factor: 3.007

8.  Caring Decisions: The Development of a Written Resource for Parents Facing End-of-Life Decisions.

Authors:  Vicki Xafis; Lynn Gillam; Jenny Hynson; Jane Sullivan; Mary Cossich; Dominic Wilkinson
Journal:  J Palliat Med       Date:  2015-09-29       Impact factor: 2.947

Review 9.  Factors influencing the care provided for periviable babies in Australia: a narrative review.

Authors:  Susan Ireland; Robin Ray; Sarah Larkins; Lynn Woodward
Journal:  Reprod Health       Date:  2015-11-25       Impact factor: 3.223

Review 10.  Methodology or method? A critical review of qualitative case study reports.

Authors:  Nerida Hyett; Amanda Kenny; Virginia Dickson-Swift
Journal:  Int J Qual Stud Health Well-being       Date:  2014-05-07
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