Literature DB >> 22727864

Parents: critical stakeholders in expanding newborn screening.

Lainie Friedman Ross1, Darrel J Waggoner.   

Abstract

Mesh:

Year:  2012        PMID: 22727864     DOI: 10.1016/j.jpeds.2012.04.035

Source DB:  PubMed          Journal:  J Pediatr        ISSN: 0022-3476            Impact factor:   4.406


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  4 in total

1.  Newborn Screening for Lysosomal Storage Disorders: Views of Genetic Healthcare Providers.

Authors:  Emily C Lisi; Shawn E McCandless
Journal:  J Genet Couns       Date:  2015-08-29       Impact factor: 2.537

Review 2.  Newborn Screening for Lysosomal Storage Disorders.

Authors:  Roy W A Peake; Olaf A Bodamer
Journal:  J Pediatr Genet       Date:  2016-12-02

3.  Parental permission for pilot newborn screening research: guidelines from the NBSTRN.

Authors:  Jeffrey R Botkin; Michelle Huckaby Lewis; Michael S Watson; Kathryn J Swoboda; Rebecca Anderson; Susan A Berry; Natasha Bonhomme; Jeffrey P Brosco; Anne M Comeau; Aaron Goldenberg; Edward Goldman; Bradford Therrell; Jill Levy-Fisch; Beth Tarini; Benjamin Wilfond
Journal:  Pediatrics       Date:  2014-01-06       Impact factor: 7.124

4.  Stakeholder engagement in policy development: challenges and opportunities for human genomics.

Authors:  Amy A Lemke; Julie N Harris-Wai
Journal:  Genet Med       Date:  2015-03-12       Impact factor: 8.822

  4 in total

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