Literature DB >> 22696706

Adolescents with severe chronic fatigue syndrome can make a full recovery.

Mary Burgess1, Trudie Chalder.   

Abstract

The needs of children and adolescents severely affected by chronic fatigue syndrome, myalgic encephalomyelitis (CFS/ME) are currently inadequately addressed in the UK. Sadly, there are few specialists addressing the needs of these patients who are primarily bed-bound, wheelchair users or who can only leave home on an infrequent basis. Uncertainty about what to offer as well of a lack of funding may play a part. Action for Young people with ME (AYME) suggests that at least 350 severely affected children/adolescents are receiving little or inadequate care to help them overcome this debilitating illness. This case report illustrates how recovery can occur with pragmatic rehabilitation combined with a committed compassionate family based approach.

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Year:  2011        PMID: 22696706      PMCID: PMC3091076          DOI: 10.1136/bcr.01.2011.3716

Source DB:  PubMed          Journal:  BMJ Case Rep        ISSN: 1757-790X


  5 in total

1.  The course of severe chronic fatigue syndrome in childhood.

Authors:  L Rangel; M E Garralda; M Levin; H Roberts
Journal:  J R Soc Med       Date:  2000-03       Impact factor: 5.344

2.  Development of a fatigue scale.

Authors:  T Chalder; G Berelowitz; T Pawlikowska; L Watts; S Wessely; D Wright; E P Wallace
Journal:  J Psychosom Res       Date:  1993       Impact factor: 3.006

3.  The Work and Social Adjustment Scale: a simple measure of impairment in functioning.

Authors:  James C Mundt; Isaac M Marks; M Katherine Shear; John H Greist
Journal:  Br J Psychiatry       Date:  2002-05       Impact factor: 9.319

4.  Cognitive behaviour therapy for adolescents with chronic fatigue syndrome: randomised controlled trial.

Authors:  Maja Stulemeijer; Lieke W A M de Jong; Theo J W Fiselier; Sigrid W B Hoogveld; Gijs Bleijenberg
Journal:  BMJ       Date:  2004-12-07

5.  Family-focused cognitive behaviour therapy versus psycho-education for chronic fatigue syndrome in 11- to 18-year-olds: a randomized controlled treatment trial.

Authors:  T Chalder; V Deary; K Husain; R Walwyn
Journal:  Psychol Med       Date:  2009-11-06       Impact factor: 7.723

  5 in total
  4 in total

1.  Cognitive-behavorial and graded exercise therapies for chronic fatigue (syndrome) are associated with lower levels of work/school attendance.

Authors:  Frank N M Twisk
Journal:  J Behav Med       Date:  2019-03-28

2.  Psychological and demographic factors associated with fatigue and social adjustment in young people with severe chronic fatigue syndrome/myalgic encephalomyelitis: a preliminary mixed-methods study.

Authors:  Sheila Ali; Lucy Adamczyk; Mary Burgess; Trudie Chalder
Journal:  J Behav Med       Date:  2019-01-25

3.  What is the current NHS service provision for patients severely affected by chronic fatigue syndrome/myalgic encephalomyelitis? A national scoping exercise.

Authors:  Clare McDermott; Atheer Al Haddabi; Hiroko Akagi; Michelle Selby; Diane Cox; George Lewith
Journal:  BMJ Open       Date:  2014-07-01       Impact factor: 2.692

4.  Experiences of Living with Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.

Authors:  Victoria Strassheim; Julia L Newton; Tracy Collins
Journal:  Healthcare (Basel)       Date:  2021-02-05
  4 in total

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