Literature DB >> 22690133

Reflexive Research Ethics for Environmental Health and Justice: Academics and Movement-Building.

Alissa Cordner1, David Ciplet, Phil Brown, Rachel Morello-Frosch.   

Abstract

Community-engaged research on environmental problems has reshaped researcher-participant relationships, academic-community interaction, and the role of community partners in human subjects protection and ethical oversight. We draw on our own and others' research collaborations with environmental health and justice social movement organizations to discuss the ethical concerns that emerge in community-engaged research. In this paper we introduce the concept of reflexive research ethics: ethical guidelines and decision-making principles that depend on continual reflexivity concerning the relationships between researchers and participants. Seeing ethics in this way can help scientists conduct research that simultaneously achieves a high level of professional conduct and protects the rights, well-being, and autonomy of both researchers and the multiple publics affected by research. We highlight our research with community-based organizations in Massachusetts, California, and Alaska, and discuss the potential impacts of the community or social movement on the research process and the potential impacts of research on community or social movement goals. We conclude by discussing ways in which the ethical concerns that surface in community-engaged research have led to advances in ethical research practices. This type of work raises ethical questions whose answers are broadly relevant for social movement, environmental, and public health scholars.

Entities:  

Year:  2012        PMID: 22690133      PMCID: PMC3370411          DOI: 10.1080/14742837.2012.664898

Source DB:  PubMed          Journal:  Soc Mov Stud        ISSN: 1474-2829


  20 in total

1.  Moving to research partnerships in developing countries.

Authors:  A Costello; A Zumla
Journal:  BMJ       Date:  2000-09-30

2.  Ethical challenges for the "outside" researcher in community-based participatory research.

Authors:  Meredith Minkler
Journal:  Health Educ Behav       Date:  2004-12

3.  Partnerships for environmental and occupational justice: contributions to research, capacity and public health.

Authors:  Sherry Baron; Raymond Sinclair; Devon Payne-Sturges; Jerry Phelps; Harold Zenick; Gwen W Collman; Liam R O'Fallon
Journal:  Am J Public Health       Date:  2009-11       Impact factor: 9.308

Review 4.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

5.  Community First Communication: Reversing Information Disparities to Achieve Environmental Justice.

Authors:  Edward A Emmett; Chintan Desai
Journal:  Environ Justice       Date:  2010-09-01

6.  Brown Superfund Basic research Program: a multistakeholder partnership addresses real-world problems in contaminated communities.

Authors:  Laura Senier; Benjamin Hudson; Sarah Fort; Elizabeth Hoover; Rebecca Tillson; Phil Brown
Journal:  Environ Sci Technol       Date:  2008-07-01       Impact factor: 9.028

7.  Improving disclosure and consent: "is it safe?": new ethics for reporting personal exposures to environmental chemicals.

Authors:  Julia Green Brody; Rachel Morello-Frosch; Phil Brown; Ruthann A Rudel; Rebecca Gasior Altman; Margaret Frye; Cheryl A Osimo; Carla Pérez; Liesel M Seryak
Journal:  Am J Public Health       Date:  2007-07-31       Impact factor: 9.308

8.  Community-based participatory research as a tool to advance environmental health sciences.

Authors:  Liam R O'Fallon; Allen Dearry
Journal:  Environ Health Perspect       Date:  2002-04       Impact factor: 9.031

9.  Participant experiences in a breastmilk biomonitoring study: a qualitative assessment.

Authors:  Nerissa Wu; Michael D McClean; Phil Brown; Ann Aschengrau; Thomas F Webster
Journal:  Environ Health       Date:  2009-02-18       Impact factor: 5.984

Review 10.  Toxic ignorance and right-to-know in biomonitoring results communication: a survey of scientists and study participants.

Authors:  Rachel Morello-Frosch; Julia Green Brody; Phil Brown; Rebecca Gasior Altman; Ruthann A Rudel; Carla Pérez
Journal:  Environ Health       Date:  2009-02-28       Impact factor: 5.984

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  13 in total

1.  Ethics and Science in the Participatory Era: A Vignette-Based Delphi Study.

Authors:  Elizabeth Bromley; Lisa Mikesell; Dmitry Khodyakov
Journal:  J Empir Res Hum Res Ethics       Date:  2017-07-10       Impact factor: 1.742

2.  From subject to participant: ethics and the evolving role of community in health research.

Authors:  Elizabeth Bromley; Lisa Mikesell; Felica Jones; Dmitry Khodyakov
Journal:  Am J Public Health       Date:  2015-03-19       Impact factor: 9.308

Review 3.  Communicating results in post-Belmont era biomonitoring studies: lessons from genetics and neuroimaging research.

Authors:  Rachel Morello-Frosch; Julia Varshavsky; Max Liboiron; Phil Brown; Julia G Brody
Journal:  Environ Res       Date:  2014-11-25       Impact factor: 6.498

4.  Reflexive research ethics in fetal tissue xenotransplantation research.

Authors:  Bindu Panikkar; Natasha Smith; Phil Brown
Journal:  Account Res       Date:  2012       Impact factor: 2.622

5.  Environmental Research Translation: enhancing interactions with communities at contaminated sites.

Authors:  Monica D Ramirez-Andreotta; Mark L Brusseau; Janick F Artiola; Raina M Maier; A Jay Gandolfi
Journal:  Sci Total Environ       Date:  2014-08-29       Impact factor: 7.963

6.  Re-identification Risks in HIPAA Safe Harbor Data: A study of data from one environmental health study.

Authors:  Latanya Sweeney; Ji Su Yoo; Laura Perovich; Katherine E Boronow; Phil Brown; Julia Green Brody
Journal:  Technol Sci       Date:  2017-08-28

7.  Balancing Benefits and Risks of Immortal Data: Participants' Views of Open Consent in the Personal Genome Project.

Authors:  Oscar A Zarate; Julia Green Brody; Phil Brown; Mónica D Ramirez-Andreotta; Laura Perovich; Jacob Matz
Journal:  Hastings Cent Rep       Date:  2015-12-17       Impact factor: 2.683

Review 8.  Ethical community-engaged research: a literature review.

Authors:  Lisa Mikesell; Elizabeth Bromley; Dmitry Khodyakov
Journal:  Am J Public Health       Date:  2013-10-17       Impact factor: 9.308

9.  MOMENTS OF UNCERTAINTY: ETHICAL CONSIDERATIONS AND EMERGING CONTAMINANTS.

Authors:  Alissa Cordner; Phil Brown
Journal:  Sociol Forum (Randolph N J)       Date:  2013-09

10.  Combining Social Science and Environmental Health Research for Community Engagement.

Authors:  Alissa Cordner; Grace Poudrier; Jesse DiValli; Phil Brown
Journal:  Int J Environ Res Public Health       Date:  2019-09-19       Impact factor: 3.390

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