Literature DB >> 17666695

Improving disclosure and consent: "is it safe?": new ethics for reporting personal exposures to environmental chemicals.

Julia Green Brody1, Rachel Morello-Frosch, Phil Brown, Ruthann A Rudel, Rebecca Gasior Altman, Margaret Frye, Cheryl A Osimo, Carla Pérez, Liesel M Seryak.   

Abstract

The recent flood of research concerning pollutants in personal environmental and biological samples-blood, urine, breastmilk, household dust and air, umbilical cord blood, and other media-raises questions about whether and how to report results to individual study participants. Clinical medicine provides an expert-driven framework, whereas community-based participatory research emphasizes participants' right to know and the potential to inform action even when health effects are uncertain. Activist efforts offer other models. We consider ethical issues involved in the decision to report individual results in exposure studies and what information should be included. Our discussion is informed by our experience with 120 women in a study of 89 pollutants in homes and by interviews with other researchers and institutional review board staff.

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Year:  2007        PMID： 17666695      PMCID： PMC1963285          DOI： 10.2105/AJPH.2006.094813

Source DB:  PubMed          Journal:  Am J Public Health        ISSN： 0090-0036            Impact factor:   9.308


  15 in total

1.  Communicating their individual results to participants in an environmental exposure study: insights from clinical ethics.

Authors:  W Deck; T Kosatsky
Journal:  Environ Res       Date:  1999-02       Impact factor: 6.498

2.  Intellectual impairment in children with blood lead concentrations below 10 microg per deciliter.

Authors:  Richard L Canfield; Charles R Henderson; Deborah A Cory-Slechta; Christopher Cox; Todd A Jusko; Bruce P Lanphear
Journal:  N Engl J Med       Date:  2003-04-17       Impact factor: 91.245

Review 3.  Assessing children's exposure to hazardous environmental chemicals: an overview of selected research challenges and complexities.

Authors:  L L Needham; K Sexton
Journal:  J Expo Anal Environ Epidemiol       Date:  2000 Nov-Dec

4.  Phthalates, alkylphenols, pesticides, polybrominated diphenyl ethers, and other endocrine-disrupting compounds in indoor air and dust.

Authors:  Ruthann A Rudel; David E Camann; John D Spengler; Leo R Korn; Julia G Brody
Journal:  Environ Sci Technol       Date:  2003-10-15       Impact factor: 9.028

5.  Researching patient-professional interactions.

Authors:  Mike Bury
Journal:  J Health Serv Res Policy       Date:  2004-01

Review 6.  Lead.

Authors:  David C Bellinger
Journal:  Pediatrics       Date:  2004-04       Impact factor: 7.124

7.  Prenatal insecticide exposures and birth weight and length among an urban minority cohort.

Authors:  Robin M Whyatt; Virginia Rauh; Dana B Barr; David E Camann; Howard F Andrews; Robin Garfinkel; Lori A Hoepner; Diurka Diaz; Jessica Dietrich; Andria Reyes; Deliang Tang; Patrick L Kinney; Frederica P Perera
Journal:  Environ Health Perspect       Date:  2004-07       Impact factor: 9.031

8.  Lessons from the polybrominated diphenyl ethers (PBDEs): precautionary principle, primary prevention, and the value of community-based body-burden monitoring using breast milk.

Authors:  Kim Hooper; Jianwen She
Journal:  Environ Health Perspect       Date:  2003-01       Impact factor: 9.031

9.  Reporting pesticide assessment results to farmworker families: development, implementation, and evaluation of a risk communication strategy.

Authors:  Sara A Quandt; Alicia M Doran; Pamela Rao; Jane A Hoppin; Beverly M Snively; Thomas A Arcury
Journal:  Environ Health Perspect       Date:  2004-04       Impact factor: 9.031

10.  Contemporary-use pesticides in personal air samples during pregnancy and blood samples at delivery among urban minority mothers and newborns.

Authors:  Robin M Whyatt; Dana B Barr; David E Camann; Patrick L Kinney; John R Barr; Howard F Andrews; Lori A Hoepner; Robin Garfinkel; Yair Hazi; Andria Reyes; Judyth Ramirez; Yesenia Cosme; Frederica P Perera
Journal:  Environ Health Perspect       Date:  2003-05       Impact factor: 9.031
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  52 in total

1.  Disclosure of individualized research results: a precautionary approach.

Authors:  David B Resnik
Journal:  Account Res       Date:  2011-11       Impact factor: 2.622

2.  Linking exposure assessment science with policy objectives for environmental justice and breast cancer advocacy: the northern California household exposure study.

Authors:  Julia Green Brody; Rachel Morello-Frosch; Ami Zota; Phil Brown; Carla Pérez; Ruthann A Rudel
Journal:  Am J Public Health       Date:  2009-11       Impact factor: 9.308

Review 3.  Community-based participatory research for the study of air pollution: a review of motivations, approaches, and outcomes.

Authors:  Adwoa Commodore; Sacoby Wilson; Omar Muhammad; Erik Svendsen; John Pearce
Journal:  Environ Monit Assess       Date:  2017-07-06       Impact factor: 2.513

4.  Researcher and institutional review board perspectives on the benefits and challenges of reporting back biomonitoring and environmental exposure results.

Authors:  Jennifer Liss Ohayon; Elicia Cousins; Phil Brown; Rachel Morello-Frosch; Julia Green Brody
Journal:  Environ Res       Date:  2016-12-10       Impact factor: 6.498

5.  Pollution comes home and gets personal: women's experience of household chemical exposure.

Authors:  Rebecca Gasior Altman; Rachel Morello-Frosch; Julia Green Brody; Ruthann Rudel; Phil Brown; Mara Averick
Journal:  J Health Soc Behav       Date:  2008-12

6.  Communicating serum chemical concentrations to study participants: follow up survey.

Authors:  Alexandra J Buck; John E Vena; Bridget M McGuinness; Maureen A Cooney; Germaine M Louis
Journal:  Environ Health       Date:  2010-05-04       Impact factor: 5.984

7.  Institutional review board challenges related to community-based participatory research on human exposure to environmental toxins: a case study.

Authors:  Phil Brown; Rachel Morello-Frosch; J G Brody; Rebecca Gasior Altman; Ruthann A Rudel; Laura Senier; Carla Pérez; Ruth Simpson
Journal:  Environ Health       Date:  2010-07-16       Impact factor: 5.984

8.  Participatory testing and reporting in an environmental-justice community of Worcester, Massachusetts: a pilot project.

Authors:  Timothy J Downs; Laurie Ross; Danielle Mucciarone; Maria-Camila Calvache; Octavia Taylor; Robert Goble
Journal:  Environ Health       Date:  2010-07-06       Impact factor: 5.984

9.  Participant experiences in a breastmilk biomonitoring study: a qualitative assessment.

Authors:  Nerissa Wu; Michael D McClean; Phil Brown; Ann Aschengrau; Thomas F Webster
Journal:  Environ Health       Date:  2009-02-18       Impact factor: 5.984

Review 10.  Toxic ignorance and right-to-know in biomonitoring results communication: a survey of scientists and study participants.

Authors:  Rachel Morello-Frosch; Julia Green Brody; Phil Brown; Rebecca Gasior Altman; Ruthann A Rudel; Carla Pérez
Journal:  Environ Health       Date:  2009-02-28       Impact factor: 5.984
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