Literature DB >> 22638566

Disclosing the diagnosis of multiple sclerosis: the Profile Project.

Vittorio Martinelli1, A Ghezzi, E Montanari, M Radaelli, G Comi, R Bossa.   

Abstract

Communicating the diagnosis of multiple sclerosis (MS) is a challenging task, often undertaken with discomfort by most neurologists. Only a few studies have investigated patients' satisfaction with timing and way of receiving the diagnosis, but surveys regarding physicians' attitude towards diagnosis disclosure are even more limited. The goal of this work was to highlight Italian neurologists' behavioral and emotional approach to MS patients, making them sensitive to their difficulties and to the importance of an empathic relationship. The majority of Italian neurologists participating in our study have a good perception of their ability to manage this difficult communicating process and believe in the great effect this moment may have on a life-long disease experience. Improving communication skills may help the therapeutic alliance, enhancing patients' acceptance of the disease, as well as motivation and adherence to treatment.

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Year:  2012        PMID: 22638566     DOI: 10.1007/s00415-012-6548-9

Source DB:  PubMed          Journal:  J Neurol        ISSN: 0340-5354            Impact factor:   4.849


  16 in total

1.  Delivering the diagnosis of MS--results of a survey among patients and neurologists.

Authors:  C Heesen; J Kolbeck; S M Gold; H Schulz; K H Schulz
Journal:  Acta Neurol Scand       Date:  2003-05       Impact factor: 3.209

Review 2.  Four models of the physician-patient relationship.

Authors:  E J Emanuel; L L Emanuel
Journal:  JAMA       Date:  1992 Apr 22-29       Impact factor: 56.272

Review 3.  Breaking bad news. A review of the literature.

Authors:  J T Ptacek; T L Eberhardt
Journal:  JAMA       Date:  1996-08-14       Impact factor: 56.272

4.  Disclosing the diagnosis of multiple sclerosis.

Authors:  P G Papathanasopoulos; A Nikolakopoulou; N J Scolding
Journal:  J Neurol       Date:  2005-11-28       Impact factor: 4.849

Review 5.  Breaking bad news.

Authors:  G K VandeKieft
Journal:  Am Fam Physician       Date:  2001-12-15       Impact factor: 3.292

6.  To tell or not to tell the diagnosis of multiple sclerosis.

Authors:  M Elian; G Dean
Journal:  Lancet       Date:  1985-07-06       Impact factor: 79.321

7.  Patients with multiple sclerosis prefer early diagnosis.

Authors:  A C J W Janssens; J B de Boer; N F Kalkers; J Passchier; P A van Doorn; R Q Hintzen
Journal:  Eur J Neurol       Date:  2004-05       Impact factor: 6.089

8.  Physician scores on a national clinical skills examination as predictors of complaints to medical regulatory authorities.

Authors:  Robyn Tamblyn; Michal Abrahamowicz; Dale Dauphinee; Elizabeth Wenghofer; André Jacques; Daniel Klass; Sydney Smee; David Blackmore; Nancy Winslade; Nadyne Girard; Roxane Du Berger; Ilona Bartman; David L Buckeridge; James A Hanley
Journal:  JAMA       Date:  2007-09-05       Impact factor: 56.272

9.  Communicating the diagnosis of multiple sclerosis - a qualitative study.

Authors:  A Solari; N Acquarone; E Pucci; V Martinelli; M G Marrosu; M Trojano; C Borreani; M Messmer Uccelli
Journal:  Mult Scler       Date:  2007-03-15       Impact factor: 6.312

10.  Why patients go online: multiple sclerosis, the internet, and physician-patient communication.

Authors:  M Cameron Hay; Cynthia Strathmann; Eli Lieber; Kimberly Wick; Barbara Giesser
Journal:  Neurologist       Date:  2008-11       Impact factor: 1.398

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  4 in total

1.  Patient and Physician Perspectives on MSdialog, an Electronic PRO Diary in Multiple Sclerosis.

Authors:  Peter Greiner; Anna Sawka; Emma Imison
Journal:  Patient       Date:  2015-12       Impact factor: 3.883

2.  The Communication of Multiple Sclerosis Diagnosis: The Patients' Perspective.

Authors:  Maria Josè Messina; Gloria Dalla Costa; Mariaemma Rodegher; Lucia Moiola; Bruno Colombo; Giancarlo Comi; Vittorio Martinelli
Journal:  Mult Scler Int       Date:  2015-12-15

Review 3.  EMPATIA: A Guide for Communicating the Diagnosis of Neuromuscular Diseases.

Authors:  Isabella Araujo Mota Fernandes; Renata Oliveira Almeida Menezes; Guilhermina Rego
Journal:  Int J Environ Res Public Health       Date:  2022-08-09       Impact factor: 4.614

4.  Challenges to Ethically Managing Parkinson Disease: An Interview Study of Patient Perspectives.

Authors:  Shelagh T Shaw; Pirashanthie Vivekananda-Schmidt
Journal:  J Patient Exp       Date:  2017-05-24
  4 in total

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