Literature DB >> 15142227

Patients with multiple sclerosis prefer early diagnosis.

A C J W Janssens1, J B de Boer, N F Kalkers, J Passchier, P A van Doorn, R Q Hintzen.   

Abstract

The new diagnostic criteria for multiple sclerosis (MS) allow for a definite diagnosis in earlier stages of the disease. Yet, clinicians may hesitate to pursue a diagnosis of multiple sclerosis at the presentation of first symptoms because they consider an early diagnosis of limited benefit to patients. It is unknown whether patients themselves prefer to be informed in an early phase. We studied satisfaction with the timing of diagnosis in patients recently diagnosed with MS and found that 75% was satisfied, 24% favoured an earlier, and only 6% a later disclosure of the diagnosis. Patients who preferred an earlier diagnosis had a significantly longer interval between their first visit to the neurologist and the disclosure of diagnosis (P < 0.001). The probability that the patient was satisfied with the timing of diagnosis did not substantially decrease in the months following the first visit to the neurologist, leaving ample opportunity for a thorough evaluation of the early clinical course. We conclude that patients with MS prefer an early diagnosis.

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Year:  2004        PMID: 15142227     DOI: 10.1111/j.1468-1331.2004.00777.x

Source DB:  PubMed          Journal:  Eur J Neurol        ISSN: 1351-5101            Impact factor:   6.089


  10 in total

1.  Assessing subjective quality of life domains after multiple sclerosis diagnosis disclosure.

Authors:  Katia Mattarozzi; Federica Casini; Elisa Baldin; Martina Baldini; Alessandra Lugaresi; Paola Milani; Erika Pietrolongo; Alberto Gajofatto; Maurizio Leone; Trond Riise; Luca Vignatelli; Roberto D'Alessandro
Journal:  Health Expect       Date:  2015-04-24       Impact factor: 3.377

2.  Experience of an information aid for newly diagnosed multiple sclerosis patients: a qualitative study on the SIMS-Trial.

Authors:  Claudia Borreani; Andrea Giordano; Monica Falautano; Alessandra Lugaresi; Vittorio Martinelli; Franco Granella; Carla Tortorella; Imma Plasmati; Marta Radaelli; Deborah Farina; Eleonora Dalla Bella; Elisabetta Bianchi; Nicola Acquarone; Guido Miccinesi; Alessandra Solari
Journal:  Health Expect       Date:  2011-11-01       Impact factor: 3.377

3.  Disclosing the diagnosis of multiple sclerosis: the Profile Project.

Authors:  Vittorio Martinelli; A Ghezzi; E Montanari; M Radaelli; G Comi; R Bossa
Journal:  J Neurol       Date:  2012-05-26       Impact factor: 4.849

Review 4.  Life issues in multiple sclerosis.

Authors:  Rex D Simmons
Journal:  Nat Rev Neurol       Date:  2010-09-21       Impact factor: 42.937

5.  Communicating the diagnosis of multiple sclerosis: results of a survey among Greek neurologists.

Authors:  Panagiotis Papathanasopoulos; Lambros Messinis; Epameinondas Lyros; Anastasia Nikolakopoulou; Eftymia Gourzoulidou; Sonia Malefaki
Journal:  J Neurol       Date:  2008-12-20       Impact factor: 4.849

6.  The Communication of Multiple Sclerosis Diagnosis: The Patients' Perspective.

Authors:  Maria Josè Messina; Gloria Dalla Costa; Mariaemma Rodegher; Lucia Moiola; Bruno Colombo; Giancarlo Comi; Vittorio Martinelli
Journal:  Mult Scler Int       Date:  2015-12-15

7.  Exploring the predictive value of the evoked potentials score in MS within an appropriate patient population: a hint for an early identification of benign MS?

Authors:  Nicolò Margaritella; Laura Mendozzi; Massimo Garegnani; Raffaello Nemni; Elena Colicino; Elisabetta Gilardi; Luigi Pugnetti
Journal:  BMC Neurol       Date:  2012-08-22       Impact factor: 2.474

8.  Perceived needs and satisfaction with care in people with multiple sclerosis: a two-year prospective study.

Authors:  Charlotte Ytterberg; Sverker Johansson; Kristina Gottberg; Lotta Widén Holmqvist; Lena von Koch
Journal:  BMC Neurol       Date:  2008-09-29       Impact factor: 2.474

9.  The challenges of healthcare delivery to people with multiple sclerosis in Iran.

Authors:  Ahmadreza Yazdannik; Shahla Abolhassani; Fariba Taleghani; Ahmadreza Zamani
Journal:  J Educ Health Promot       Date:  2015-12-30

10.  Challenges to Ethically Managing Parkinson Disease: An Interview Study of Patient Perspectives.

Authors:  Shelagh T Shaw; Pirashanthie Vivekananda-Schmidt
Journal:  J Patient Exp       Date:  2017-05-24
  10 in total

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