OBJECTIVE: To quantify patterns of disability, care needs, and quality of life in a national community-dwelling sample of people with Parkinson's disease (PD) in Canada. METHODS: Data from Statistics Canada's Participation and Activity Limitations Survey was used in the analysis. This survey is a post-censual survey that collected data from 28,630 household residents with reported activity limitations in the 2006 Canadian census. Frequencies of specific impairments and care needs as well as mean quality of life ratings were estimated. These estimates were adjusted for age and sex using linear regression modeling. Sampling weights were used to adjust for design effects, ensuring that the estimates were representative of the national population. RESULTS: The estimated prevalence of PD was 0.1% (100 per 100,000 people), consistent with previous estimates. People with PD reported a significantly elevated prevalence of mobility (88.5%), communication (47.9%), pain (68.6%), memory (26.2%) and seeing (47.7%) limitations relative to those with disabilities of other origins. Significantly more people with PD required help with instrumental activities of daily living and activities of daily living. Health related quality of life, measured by the health utility index, was significantly lower in people with PD (mean value 0.46) compared to disabled people without PD (mean value 0.70). CONCLUSIONS: People living in the community with PD have a significant burden of disability. Health related quality of life is also quite poor in people with PD compared to other disabled populations. This study helps to quantify the significant care needs of people with PD.
OBJECTIVE: To quantify patterns of disability, care needs, and quality of life in a national community-dwelling sample of people with Parkinson's disease (PD) in Canada. METHODS: Data from Statistics Canada's Participation and Activity Limitations Survey was used in the analysis. This survey is a post-censual survey that collected data from 28,630 household residents with reported activity limitations in the 2006 Canadian census. Frequencies of specific impairments and care needs as well as mean quality of life ratings were estimated. These estimates were adjusted for age and sex using linear regression modeling. Sampling weights were used to adjust for design effects, ensuring that the estimates were representative of the national population. RESULTS: The estimated prevalence of PD was 0.1% (100 per 100,000 people), consistent with previous estimates. People with PD reported a significantly elevated prevalence of mobility (88.5%), communication (47.9%), pain (68.6%), memory (26.2%) and seeing (47.7%) limitations relative to those with disabilities of other origins. Significantly more people with PD required help with instrumental activities of daily living and activities of daily living. Health related quality of life, measured by the health utility index, was significantly lower in people with PD (mean value 0.46) compared to disabled people without PD (mean value 0.70). CONCLUSIONS:People living in the community with PD have a significant burden of disability. Health related quality of life is also quite poor in people with PD compared to other disabled populations. This study helps to quantify the significant care needs of people with PD.
Authors: Anthony E Lang; Ramon L Rodriguez; James T Boyd; Sylvain Chouinard; Cindy Zadikoff; Alberto J Espay; John T Slevin; Hubert H Fernandez; Mark F Lew; David A Stein; Per Odin; Victor S C Fung; Fabian Klostermann; Alfonso Fasano; Peter V Draganov; Nathan Schmulewitz; Weining Z Robieson; Susan Eaton; Krai Chatamra; Janet A Benesh; Jordan Dubow Journal: Mov Disord Date: 2015-12-23 Impact factor: 10.338
Authors: Pablo Martinez-Martin; Jose Manuel Rojo-Abuin; Alexandra Rizos; Carmen Rodriguez-Blazquez; Claudia Trenkwalder; Lauren Perkins; Anna Sauerbier; Per Odin; Angelo Antonini; Kallol Ray Chaudhuri Journal: NPJ Parkinsons Dis Date: 2017-03-15
Authors: Carmen Rodríguez-Blázquez; Mario Alvarez; Tomoko Arakaki; Víctor Campos Arillo; Pedro Chaná; William Fernández; Nélida Garretto; Juan Carlos Martínez-Castrillo; Mayela Rodríguez-Violante; Marcos Serrano-Dueñas; Diego Ballesteros; Jose Manuel Rojo-Abuin; Kallol Ray Chaudhuri; Marcelo Merello; Pablo Martínez-Martín Journal: Mov Disord Clin Pract Date: 2017-01-05