Literature DB >> 22417462

There's hope in the valley.

Elizabeth Elliott1, Jane Latimer, James Fitzpatrick, June Oscar, Maureen Carter.   

Abstract

Aboriginal women in the remote Fitzroy Valley region in Western Australia's Kimberley were concerned about high rates of alcohol use in pregnancy and its possible impact on child development. They successfully lobbied for restricted access to alcohol in 2007. In 2009 they developed a strategy for the diagnosis and prevention of Fetal Alcohol Spectrum Disorders (FASD) and the support of parents and carers of affected children. Aboriginal organisations then partnered with research and clinical groups from Sydney to conduct a FASD prevalence study. This commenced in 2010 following extensive community consultation and receipt of community consent. Data from this study are still being collected and will be used by the community to advocate for improved services and new models of health care. Prevention of FASD is important to optimise health and development for future generations of Aboriginal children and to ensure the transfer of culture and language from one generation to the next.
© 2012 The Authors. Journal of Paediatrics and Child Health © 2012 Paediatrics and Child Health Division (Royal Australasian College of Physicians).

Entities:  

Mesh:

Year:  2012        PMID: 22417462     DOI: 10.1111/j.1440-1754.2012.02422.x

Source DB:  PubMed          Journal:  J Paediatr Child Health        ISSN: 1034-4810            Impact factor:   1.954


  9 in total

Review 1.  Seeking consent for research with indigenous communities: a systematic review.

Authors:  Emily F M Fitzpatrick; Alexandra L C Martiniuk; Heather D'Antoine; June Oscar; Maureen Carter; Elizabeth J Elliott
Journal:  BMC Med Ethics       Date:  2016-10-22       Impact factor: 2.652

2.  Aboriginal health research in the remote Kimberley: an exploration of perceptions, attitudes and concerns of stakeholders.

Authors:  Frieda Mc Loughlin; Nyssa T Hadgraft; David Atkinson; Julia V Marley
Journal:  BMC Health Serv Res       Date:  2014-10-26       Impact factor: 2.655

3.  Research protocol for the Picture Talk Project: a qualitative study on research and consent with remote Australian Aboriginal communities.

Authors:  Emily F M Fitzpatrick; Maureen Carter; June Oscar; Tom Lawford; Alexandra L C Martiniuk; Heather A D'Antoine; Elizabeth J Elliott
Journal:  BMJ Open       Date:  2017-12-28       Impact factor: 2.692

4.  The Picture Talk Project: Starting a Conversation with Community Leaders on Research with Remote Aboriginal Communities of Australia.

Authors:  E F M Fitzpatrick; G Macdonald; A L C Martiniuk; H D'Antoine; J Oscar; M Carter; T Lawford; E J Elliott
Journal:  BMC Med Ethics       Date:  2017-05-11       Impact factor: 2.652

Review 5.  Family-centred interventions by primary healthcare services for Indigenous early childhood wellbeing in Australia, Canada, New Zealand and the United States: a systematic scoping review.

Authors:  Janya McCalman; Marion Heyeres; Sandra Campbell; Roxanne Bainbridge; Catherine Chamberlain; Natalie Strobel; Alan Ruben
Journal:  BMC Pregnancy Childbirth       Date:  2017-02-21       Impact factor: 3.007

6.  The picture talk project: Aboriginal community input on consent for research.

Authors:  Emily Fm Fitzpatrick; Gaynor Macdonald; Alexandra Lc Martiniuk; June Oscar; Heather D'Antoine; Maureen Carter; Tom Lawford; Elizabeth J Elliott
Journal:  BMC Med Ethics       Date:  2019-01-29       Impact factor: 2.652

7.  Bigiswun Kid Project: a longitudinal study of adolescents living with high rates of prenatal alcohol exposure, fetal alcohol spectrum disorder and early life trauma in remote Australian Aboriginal communities.

Authors:  Lauren J Rice; Tracey W Tsang; Emily Carter; Marmingee Hand; Jadnah Davies; Sue Thomas; Eric Bedford; Emma Bear; Cheyenne Carter; Lisa Cannon; Elizabeth J Elliott
Journal:  BMJ Open       Date:  2022-04-01       Impact factor: 2.692

8.  First Nations Australians' experiences of current alcohol policy in Central Australia: evidence of self-determination?

Authors:  Annalee E Stearne; K S Kylie Lee; Steve Allsop; Anthony Shakeshaft; Michael Wright
Journal:  Int J Equity Health       Date:  2022-09-08

9.  Development of a reliable questionnaire to assist in the diagnosis of Fetal Alcohol Spectrum Disorders (FASD).

Authors:  James P Fitzpatrick; Jane Latimer; Manuela Ferreira; Alexandra L C Martiniuk; Elizabeth Peadon; Maureen Carter; June Oscar; Emily Carter; Meredith Kefford; Rhonda Shandley; Harry Yungabun; Elizabeth J Elliott
Journal:  BMC Pediatr       Date:  2013-03-07       Impact factor: 2.125

  9 in total

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