Literature DB >> 22369631

Carers' perspectives of a weight loss intervention for adults with intellectual disabilities and obesity: a qualitative study.

D Spanos1, C R Hankey, S Boyle, P Koshy, S Macmillan, L Matthews, S Miller, V Penpraze, C Pert, N Robinson, C A Melville.   

Abstract

BACKGROUND: To date, no studies have explored the role of carers in supporting adults with intellectual disabilities (ID) and obesity during a weight loss intervention. The present study explored perceptions of carers supporting adults with ID, as they participated in a 6-month multi-component weight loss intervention (TAKE 5).
METHODS: Semi-structured interviews were used to explore the experiences of 24 carers. The transcripts were analysed qualitatively using thematic analysis.
RESULTS: Three themes emerged from the analysis: carers' perceptions of participants' health; barriers and facilitators to weight loss; and carers' perceptions of the weight loss intervention. Data analysis showed similarities between the experiences reported by the carers who supported participants who lost weight and participants who did not. Lack of sufficient support from people from the internal and external environment of individuals with ID and poor communication among carers, were identified as being barriers to change. The need for accessible resources tailored to aid weight loss among adults with ID was also highlighted.
CONCLUSION: This study identified specific facilitators and barriers experienced by carers during the process of supporting obese adults with ID to lose weight. Future research could utilise these findings to inform appropriate and effective weight management interventions for individuals with ID.
© 2012 The Authors. Journal of Intellectual Disability Research © 2012 Blackwell Publishing Ltd.

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Year:  2012        PMID: 22369631     DOI: 10.1111/j.1365-2788.2011.01530.x

Source DB:  PubMed          Journal:  J Intellect Disabil Res        ISSN: 0964-2633


  16 in total

1.  Caregivers' effect on weight management in adults with intellectual and developmental disabilities.

Authors:  L T Ptomey; C A Gibson; J Lee; D K Sullivan; R A Washburn; A M Gorczyca; J E Donnelly
Journal:  Disabil Health J       Date:  2017-02-12       Impact factor: 2.554

2.  Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines.

Authors:  William F Sullivan; Heidi Diepstra; John Heng; Shara Ally; Elspeth Bradley; Ian Casson; Brian Hennen; Maureen Kelly; Marika Korossy; Karen McNeil; Dara Abells; Khush Amaria; Kerry Boyd; Meg Gemmill; Elizabeth Grier; Natalie Kennie-Kaulbach; Mackenzie Ketchell; Jessica Ladouceur; Amanda Lepp; Yona Lunsky; Shirley McMillan; Ullanda Niel; Samantha Sacks; Sarah Shea; Katherine Stringer; Kyle Sue; Sandra Witherbee
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

3. 

Authors:  William F Sullivan; Heidi Diepstra; John Heng; Shara Ally; Elspeth Bradley; Ian Casson; Brian Hennen; Maureen Kelly; Marika Korossy; Karen McNeil; Dara Abells; Khush Amaria; Kerry Boyd; Meg Gemmill; Elizabeth Grier; Natalie Kennie-Kaulbach; Mackenzie Ketchell; Jessica Ladouceur; Amanda Lepp; Yona Lunsky; Shirley McMillan; Ullanda Niel; Samantha Sacks; Sarah Shea; Katherine Stringer; Kyle Sue; Sandra Witherbee
Journal:  Can Fam Physician       Date:  2018-04       Impact factor: 3.275

4.  Remote delivery of weight management for adults with intellectual and developmental disabilities: Rationale and design for a 24 month randomized trial.

Authors:  Lauren T Ptomey; Richard A Washburn; Matthew S Mayo; J Leon Greene; Robert H Lee; Amanda N Szabo-Reed; Jeffery J Honas; Joseph R Sherman; Joseph E Donnelly
Journal:  Contemp Clin Trials       Date:  2018-08-24       Impact factor: 2.226

5.  Exploring physical self-concept perceptions in athletes with intellectual disabilities: the participation of Unified Sports experiences.

Authors:  Cheng-Chen Pan; Ronald Davis
Journal:  Int J Dev Disabil       Date:  2018-05-10

6.  A qualitative study exploring why adults with intellectual disabilities and obesity want to lose weight and views of their carers.

Authors:  N Jones; C A Melville; L Harris; L Bleazard; C R Hankey
Journal:  BMC Obes       Date:  2015-12-18

7.  Remote Exercise for Adults with Down Syndrome.

Authors:  Lauren T Ptomey; Amanda N Szabo; Erik A Willis; J Leon Greene; Jessica C Danon; Richard A Washburn; Daniel E Forsha; Joseph E Donnelly
Journal:  Transl J Am Coll Sports Med       Date:  2018-04-15

8.  Piloting a manualised weight management programme (Shape Up-LD) for overweight and obese persons with mild-moderate learning disabilities: study protocol for a pilot randomised controlled trial.

Authors:  Rebecca J Beeken; Dimitrios Spanos; Sally Fovargue; Rachael Hunter; Rumana Omar; Angela Hassiotis; Michael King; Jane Wardle; Helen Croker
Journal:  Trials       Date:  2013-03-12       Impact factor: 2.279

9.  Walk Well: a randomised controlled trial of a walking intervention for adults with intellectual disabilities: study protocol.

Authors:  Fiona Mitchell; Craig Melville; Kirsten Stalker; Lynsay Matthews; Alex McConnachie; Heather Murray; Andrew Walker; Nanette Mutrie
Journal:  BMC Public Health       Date:  2013-07-01       Impact factor: 3.295

Review 10.  Weight management interventions in adults with intellectual disabilities and obesity: a systematic review of the evidence.

Authors:  Dimitrios Spanos; Craig Andrew Melville; Catherine Ruth Hankey
Journal:  Nutr J       Date:  2013-09-23       Impact factor: 3.271

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