Literature DB >> 22314637

The Genetic Information Nondiscrimination Act (GINA): public policy and medical practice in the age of personalized medicine.

Eric A Feldman1.   

Abstract

Survey data suggest that many people fear genetic discrimination by health insurers or employers. In fact, such discrimination has not yet been a significant problem. This article examines the fear and reality of genetic discrimination in the United States, describes how Congress sought to prohibit such discrimination by passing the Genetic Information Nondiscrimination Act of 2008 (GINA), and explores the implications of GINA for general internists and their institutions. It concludes that medical providers and health care institutions must be familiar with the general intent and specific terms of GINA, and should continue to collect genetic information that can contribute to the high quality provision of medical treatment. Not doing so violates their medical mission and diminishes the quality of care patients deserve.

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Year:  2012        PMID: 22314637      PMCID: PMC3358381          DOI: 10.1007/s11606-012-1988-6

Source DB:  PubMed          Journal:  J Gen Intern Med        ISSN: 0884-8734            Impact factor:   5.128


  7 in total

1.  Genetic discrimination in the workplace: an overview of existing protections.

Authors:  Melinda B Kaufmann
Journal:  Loyola Univ Chic Law J       Date:  1999

2.  European practices of genetic information and insurance: lessons for the Genetic Information Nondiscrimination Act.

Authors:  Ine Van Hoyweghen; Klasien Horstman
Journal:  JAMA       Date:  2008-07-16       Impact factor: 56.272

3.  The Genetic Information Nondiscrimination Act--a half-step toward risk sharing.

Authors:  Russell Korobkin; Rahul Rajkumar
Journal:  N Engl J Med       Date:  2008-07-24       Impact factor: 91.245

4.  Health law - genetics - Congress restricts use of genetic information by insurers and employers. - Genetic Information Nondiscrimination Act of 2008, Pub. L. No. 110-233, 122 Stat. 881 (to be codified in scattered sections of 26, 29, and 42 U.S.C.).

Authors: 
Journal:  Harv Law Rev       Date:  2009-01

5.  Keeping pace with the times--the Genetic Information Nondiscrimination Act of 2008.

Authors:  Kathy L Hudson; M K Holohan; Francis S Collins
Journal:  N Engl J Med       Date:  2008-06-19       Impact factor: 91.245

6.  Genomic risk profiling: attitudes and use in personal and clinical care of primary care physicians who offer risk profiling.

Authors:  Susanne B Haga; Madeline M Carrig; Julianne M O'Daniel; Lori A Orlando; Ley A Killeya-Jones; Geoffrey S Ginsburg; Alex Cho
Journal:  J Gen Intern Med       Date:  2011-02-11       Impact factor: 5.128

7.  Exclusion of genetic information from the medical record: ethical and medical dilemmas.

Authors:  Robert Klitzman
Journal:  JAMA       Date:  2010-09-08       Impact factor: 56.272

  7 in total
  16 in total

1.  Cancer Survivorship Care: An Opportunity to Revisit Cancer Genetics.

Authors:  Kathryn J Ruddy; Betsy C Risendal; Judy E Garber; Ann H Partridge
Journal:  J Clin Oncol       Date:  2015-12-28       Impact factor: 44.544

2.  Participatory workplace wellness programs: reward, penalty, and regulatory conflict.

Authors:  Jennifer L Pomeranz
Journal:  Milbank Q       Date:  2015-06       Impact factor: 4.911

3.  Health Information Privacy Laws in the Digital Age: HIPAA Doesn't Apply.

Authors:  Kim Theodos; Scott Sittig
Journal:  Perspect Health Inf Manag       Date:  2020-12-07

Review 4.  Incorporating Pharmacogenomics into Health Information Technology, Electronic Health Record and Decision Support System: An Overview.

Authors:  Abdullah Alanazi
Journal:  J Med Syst       Date:  2016-12-17       Impact factor: 4.460

5.  Personal genomic information management and personalized medicine: challenges, current solutions, and roles of HIM professionals.

Authors:  Amal Alzu'bi; Leming Zhou; Valerie Watzlaf
Journal:  Perspect Health Inf Manag       Date:  2014-04-01

6.  Patient and provider perspectives on the development of personalized medicine: a mixed-methods approach.

Authors:  Lauren Puryear; Natalie Downs; Andrea Nevedal; Eleanor T Lewis; Kelly E Ormond; Maria Bregendahl; Carlos J Suarez; Sean P David; Steven Charlap; Isabella Chu; Steven M Asch; Neda Pakdaman; Sang-Ick Chang; Mark R Cullen; Latha Palaniappan
Journal:  J Community Genet       Date:  2017-12-27

7.  Ethics in prion disease.

Authors:  Kendra Bechtel; Michael D Geschwind
Journal:  Prog Neurobiol       Date:  2013-07-29       Impact factor: 11.685

8.  Investigating Married Adults' Communal Coping with Genetic Health Risk and Perceived Discrimination.

Authors:  Rachel A Smith; Alan Sillars; Ryan P Chesnut; Xun Zhu
Journal:  Commun Monogr       Date:  2017-11-24

9.  Informed Consent Template and Guidelines on the Ethical Practice in Human Genetics and Human Genomic Research; Initiatives of the Universiti Sains Malaysia.

Authors:  Teguh Haryo Sasongko; Zamh Zabidi-Hussin; Nor Hayati Othman; Hans Van Rostenberghe
Journal:  Malays J Med Sci       Date:  2015-11

Review 10.  Next-generation sequencing diagnostics for neurological diseases/disorders: from a clinical perspective.

Authors:  Jia Nee Foo; Jianjun Liu; Eng-King Tan
Journal:  Hum Genet       Date:  2013-03-23       Impact factor: 4.132

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