Literature DB >> 22313939

Sharing individual research results with biospecimen contributors: point.

Rihab Yassin1, Carol Weil, Nicole Lockhart.   

Abstract

Entities:  

Mesh：

Year:  2012        PMID： 22313939      PMCID： PMC3296291          DOI： 10.1158/1055-9965.EPI-11-0853

Source DB:  PubMed          Journal:  Cancer Epidemiol Biomarkers Prev        ISSN： 1055-9965            Impact factor:   4.254


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  8 in total

1.  Informing clinical trial participants about study results.

Authors:  Ann H Partridge; Eric P Winer
Journal:  JAMA       Date:  2002-07-17       Impact factor: 56.272

Review 2.  Disclosure of research results from cancer genomic studies: state of the science.

Authors:  Lynn G Dressler
Journal:  Clin Cancer Res       Date:  2009-06-23       Impact factor: 12.531

3.  Offering individual genetic research results: context matters.

Authors:  Laura M Beskow; Wylie Burke
Journal:  Sci Transl Med       Date:  2010-06-30       Impact factor: 17.956

4.  Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.

Authors:  Richard R Fabsitz; Amy McGuire; Richard R Sharp; Mona Puggal; Laura M Beskow; Leslie G Biesecker; Ebony Bookman; Wylie Burke; Esteban Gonzalez Burchard; George Church; Ellen Wright Clayton; John H Eckfeldt; Conrad V Fernandez; Rebecca Fisher; Stephanie M Fullerton; Stacey Gabriel; Francine Gachupin; Cynthia James; Gail P Jarvik; Rick Kittles; Jennifer R Leib; Christopher O'Donnell; P Pearl O'Rourke; Laura Lyman Rodriguez; Sheri D Schully; Alan R Shuldiner; Rebecca K F Sze; Joseph V Thakuria; Susan M Wolf; Gregory L Burke
Journal:  Circ Cardiovasc Genet       Date:  2010-12

5.  The emergence of an ethical duty to disclose genetic research results: international perspectives.

Authors:  Bartha Maria Knoppers; Yann Joly; Jacques Simard; Francine Durocher
Journal:  Eur J Hum Genet       Date:  2006-07-26       Impact factor: 4.246

Review 6.  Managing incidental findings in human subjects research: analysis and recommendations.

Authors:  Susan M Wolf; Frances P Lawrenz; Charles A Nelson; Jeffrey P Kahn; Mildred K Cho; Ellen Wright Clayton; Joel G Fletcher; Michael K Georgieff; Dale Hammerschmidt; Kathy Hudson; Judy Illes; Vivek Kapur; Moira A Keane; Barbara A Koenig; Bonnie S Leroy; Elizabeth G McFarland; Jordan Paradise; Lisa S Parker; Sharon F Terry; Brian Van Ness; Benjamin S Wilfond
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

7.  Managing incidental findings and research results in genomic research involving biobanks and archived data sets.

Authors:  Susan M Wolf; Brittney N Crock; Brian Van Ness; Frances Lawrenz; Jeffrey P Kahn; Laura M Beskow; Mildred K Cho; Michael F Christman; Robert C Green; Ralph Hall; Judy Illes; Moira Keane; Bartha M Knoppers; Barbara A Koenig; Isaac S Kohane; Bonnie Leroy; Karen J Maschke; William McGeveran; Pilar Ossorio; Lisa S Parker; Gloria M Petersen; Henry S Richardson; Joan A Scott; Sharon F Terry; Benjamin S Wilfond; Wendy A Wolf
Journal:  Genet Med       Date:  2012-04       Impact factor: 8.822

8.  Subjects matter: a survey of public opinions about a large genetic cohort study.

Authors:  David Kaufman; Juli Murphy; Joan Scott; Kathy Hudson
Journal:  Genet Med       Date:  2008-11       Impact factor: 8.822
  8 in total
  4 in total

1.  A Community-Driven Intervention for Improving Biospecimen Donation in African American Communities.

Authors:  Kushal Patel; Wendelyn Inman; Jemal Gishe; Owen Johnson; Elizabeth Brown; Mohamed Kanu; Rosemary Theriot; Maureen Sanderson; Pamela Hull; Margaret Hargreaves
Journal:  J Racial Ethn Health Disparities       Date:  2017-02-08

2.  Contrasting the ethical perspectives of biospecimen research among individuals with familial risk for hereditary cancer and biomedical researchers: implications for researcher training.

Authors:  Gwendolyn P Quinn; Alexis Koskan; Ivana Sehovic; Tuya Pal; Cathy Meade; Clement K Gwede
Journal:  Genet Test Mol Biomarkers       Date:  2014-04-30

Review 3.  The evolution of biobanking best practices.

Authors:  Jim Vaught; Nicole C Lockhart
Journal:  Clin Chim Acta       Date:  2012-05-03       Impact factor: 3.786

Review 4.  Funding considerations for the disclosure of genetic incidental findings in biobank research.

Authors:  L Black; D Avard; M H Zawati; B M Knoppers; J Hébert; G Sauvageau
Journal:  Clin Genet       Date:  2013-06-10       Impact factor: 4.438
  4 in total

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