Literature DB >> 22264111

Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities.

Meghan M Burke1, Julie Lounds Taylor, Richard Urbano, Robert M Hodapp.   

Abstract

With the growing life expectancy for individuals with intellectual and developmental disabilities, siblings will increasingly assume responsibility for the care of their brother or sister with intellectual and developmental disabilities. Using a 163-item survey completed by 757 siblings, the authors identified factors related to future caregiving expectations. Siblings expected to assume greater caregiving responsibility for their brother or sister with disabilities if they were female, had closer relationships with and lived closer to their brother or sister with intellectual and developmental disabilities, and were the lone sibling without a disability. Siblings who expected to assume higher levels of caregiving had parents who were currently more able to care for their brother or sister with disabilities. With a better understanding of who intends to fulfill future caregiving roles, support can be provided to these siblings.

Entities:  

Mesh:

Year:  2012        PMID: 22264111     DOI: 10.1352/1944-7558-117.1.33

Source DB:  PubMed          Journal:  Am J Intellect Dev Disabil        ISSN: 1944-7558


  6 in total

1.  Genetic disorders of intellectual disability: expanding our concepts of phenotypes and of family outcomes.

Authors:  Robert M Hodapp; Elisabeth M Dykens
Journal:  J Genet Couns       Date:  2012-08-24       Impact factor: 2.537

2.  Adult Siblings Who Have a Brother or Sister with Autism: Between-Family and Within-Family Variations in Sibling Relationships.

Authors:  Gael I Orsmond; Daniel Fulford
Journal:  J Autism Dev Disord       Date:  2018-12

3.  Subjective Poverty Moderates the Association Between Carer Status and Psychological Outcomes of Adult Siblings of People with Intellectual and Developmental Disabilities.

Authors:  Nikita K Hayden; Richard P Hastings; Clare Kassa; Frances Danylec
Journal:  J Autism Dev Disord       Date:  2022-03-19

4.  Parent and Self-Report Ratings on the Perceived Levels of Social Vulnerability of Adults with Williams Syndrome.

Authors:  Emma Lough; Marisa H Fisher
Journal:  J Autism Dev Disord       Date:  2016-11

5.  Who is responsible for providing care? Investigating the role of care tasks and past experiences in a cross-sectional survey in the Netherlands.

Authors:  R J Hoefman; T M Meulenkamp; J D De Jong
Journal:  BMC Health Serv Res       Date:  2017-07-11       Impact factor: 2.655

6.  A Population-Based Study of the Behavioral and Emotional Adjustment of Older Siblings of Children with and without Intellectual Disability.

Authors:  Nikita K Hayden; Richard P Hastings; Vasiliki Totsika; Emma Langley
Journal:  J Abnorm Child Psychol       Date:  2019-08
  6 in total

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