Literature DB >> 27506644

Parent and Self-Report Ratings on the Perceived Levels of Social Vulnerability of Adults with Williams Syndrome.

Emma Lough1, Marisa H Fisher2.   

Abstract

The current study took a multi-informant approach to compare parent to self-report ratings of social vulnerability of adults with Williams syndrome (WS). Participants included 102 pairs of adults with WS and their parents. Parents completed the Social Vulnerability Questionnaire and adults with WS completed an adapted version of the questionnaire. Parents consistently reported higher levels of social vulnerability for their son/daughter than the individual with WS reported, with the exception of emotional abuse. The lower ratings of social vulnerability by adults with WS, compared to their parents, offer new information about their insight into their own vulnerability. These findings highlight the importance of teaching self-awareness as a part of a multi-informant approach to interventions designed to target social vulnerability.

Entities:  

Keywords:  Intellectual disability; Social vulnerability; Victimisation; Williams syndrome

Mesh:

Year:  2016        PMID: 27506644     DOI: 10.1007/s10803-016-2885-3

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  23 in total

1.  Longitudinal trajectories of intellectual and adaptive functioning in adolescents and adults with Williams syndrome.

Authors:  M H Fisher; M D Lense; E M Dykens
Journal:  J Intellect Disabil Res       Date:  2016-06-08

2.  The transitions of caregiving: subjective and objective definitions.

Authors:  M M Seltzer; L W Li
Journal:  Gerontologist       Date:  1996-10

3.  The Williams syndrome cognitive profile.

Authors:  C B Mervis; B F Robinson; J Bertrand; C A Morris; B P Klein-Tasman; S C Armstrong
Journal:  Brain Cogn       Date:  2000-12       Impact factor: 2.310

4.  Who reports it best? A comparison between parent-report, self-report, and the real life social behaviors of adults with Williams syndrome.

Authors:  Marisa H Fisher; Maria P Mello; Elisabeth M Dykens
Journal:  Res Dev Disabil       Date:  2014-08-31

5.  Internet-facilitated commercial sexual exploitation of children: findings from a nationally representative sample of law enforcement agencies in the United States.

Authors:  Kimberly J Mitchell; Lisa M Jones; David Finkelhor; Janis Wolak
Journal:  Sex Abuse       Date:  2010-09-17

6.  Gender differences in silencing following childhood sexual abuse.

Authors:  Patrick J O'Leary; James Barber
Journal:  J Child Sex Abus       Date:  2008

Review 7.  The social phenotype of Williams syndrome.

Authors:  Anna Järvinen; Julie R Korenberg; Ursula Bellugi
Journal:  Curr Opin Neurobiol       Date:  2013-01-15       Impact factor: 6.627

8.  Prevalence estimation of Williams syndrome.

Authors:  Petter Strømme; Per G Bjørnstad; Kjersti Ramstad
Journal:  J Child Neurol       Date:  2002-04       Impact factor: 1.987

9.  The views and experiences of people with intellectual disabilities concerning advocacy: a focus group study.

Authors:  Penny Llewellyn; Ruth Northway
Journal:  J Intellect Disabil       Date:  2008-09

10.  Making sense of Cronbach's alpha.

Authors:  Mohsen Tavakol; Reg Dennick
Journal:  Int J Med Educ       Date:  2011-06-27
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  3 in total

1.  Autism Spectrum Symptomatology in Children with Williams Syndrome Who Have Phrase Speech or Fluent Language.

Authors:  Bonita P Klein-Tasman; Faye van der Fluit; Carolyn B Mervis
Journal:  J Autism Dev Disord       Date:  2018-09

2.  A Distance-Delivered Social Skills Program for Young Adults with Williams Syndrome: Evaluating Feasibility and Preliminary Efficacy.

Authors:  Marisa H Fisher; Rebecca R Kammes; Rhonda S Black; Kristin Houck; Katie Cwiakala
Journal:  J Autism Dev Disord       Date:  2022-05-16

Review 3.  Williams syndrome.

Authors:  Beth A Kozel; Boaz Barak; Chong Ae Kim; Carolyn B Mervis; Lucy R Osborne; Melanie Porter; Barbara R Pober
Journal:  Nat Rev Dis Primers       Date:  2021-06-17       Impact factor: 65.038

  3 in total

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