Literature DB >> 22195113

Development and early usage patterns of a consumer-facing family health history tool.

Nathan C Hulse1, Pallavi Ranade-Kharkar, Herman Post, Grant M Wood, Marc S Williams, Peter J Haug.   

Abstract

Personalized medicine will require detailed clinical patient profiles, and a particular focus on capturing data that is useful in forecasting risk. A detailed family health history is considered a critical component of these profiles, insomuch that it has been coined as 'the best genetic test available'. Despite this, tools aimed at capturing this information for use in electronic health records have been characterized as inadequate. In this manuscript we detail the creation of a patient-facing family health history tool known as OurFamilyHealth, whose long-term emphasis is to facilitate risk assessment and clinical decision support. We present the rationale for such a tool, describe its development and release as a component of Intermountain Healthcare's patient portal, and detail early usage statistics surrounding the application. Data derived from the tool since its release are also compared against family history charting patterns in Intermountain's electronic health records, revealing differences in data availability.

Entities:  

Mesh:

Year:  2011        PMID: 22195113      PMCID: PMC3243155     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  8 in total

1.  The family history--more important than ever.

Authors:  Alan E Guttmacher; Francis S Collins; Richard H Carmona
Journal:  N Engl J Med       Date:  2004-11-25       Impact factor: 91.245

2.  Deriving consumer-facing disease concepts for family health histories using multi-source sampling.

Authors:  Nathan C Hulse; Grant M Wood; Peter J Haug; Marc S Williams
Journal:  J Biomed Inform       Date:  2010-04-09       Impact factor: 6.317

3.  The family in family practice: is it a reality?

Authors:  J H Medalie; S J Zyzanski; D Langa; K C Stange
Journal:  J Fam Pract       Date:  1998-05       Impact factor: 0.493

4.  Health family trees: a tool for finding and helping young family members of coronary and cancer prone pedigrees in Texas and Utah.

Authors:  R R Williams; S C Hunt; G K Barlow; R M Chamberlain; A D Weinberg; H P Cooper; J P Carbonari; A M Gotto
Journal:  Am J Public Health       Date:  1988-10       Impact factor: 9.308

5.  New standards and enhanced utility for family health history information in the electronic health record: an update from the American Health Information Community's Family Health History Multi-Stakeholder Workgroup.

Authors:  W Gregory Feero; Mary Beth Bigley; Kristin M Brinner
Journal:  J Am Med Inform Assoc       Date:  2008-08-28       Impact factor: 4.497

6.  Family history-taking in community family practice: implications for genetic screening.

Authors:  L S Acheson; G L Wiesner; S J Zyzanski; M A Goodwin; K C Stange
Journal:  Genet Med       Date:  2000 May-Jun       Impact factor: 8.822

7.  Are electronic health records ready for genomic medicine?

Authors:  Maren T Scheuner; Han de Vries; Benjamin Kim; Robin C Meili; Sarah H Olmstead; Stephanie Teleki
Journal:  Genet Med       Date:  2009-07       Impact factor: 8.822

8.  Patient interest in recording family histories of cancer via the Internet.

Authors:  Christian Simon; Louise Acheson; Christopher Burant; Nancy Gerson; Sarah Schramm; Susan Lewis; Georgia Wiesner
Journal:  Genet Med       Date:  2008-12       Impact factor: 8.822

  8 in total
  20 in total

1.  Profiling Fast Healthcare Interoperability Resources (FHIR) of Family Health History based on the Clinical Element Models.

Authors:  Jaehoon Lee; Nathan C Hulse; Grant M Wood; Thomas A Oniki; Stanley M Huff
Journal:  AMIA Annu Symp Proc       Date:  2017-02-10

2.  Leveraging the Value of Human Relationships to Improve Health Outcomes. Lessons learned from the OpenMRS Electronic Health Record System.

Authors:  Suranga N Kasthurirathne; Burke W Mamlin; Theresa Cullen
Journal:  Appl Clin Inform       Date:  2017-02-01       Impact factor: 2.342

3.  A model for patient-direct screening and referral for familial cancer risk.

Authors:  Kristin B Niendorf; Melissa A Geller; Rachel Isaksson Vogel; Timothy R Church; Anna Leininger; Angela Bakke; Robert D Madoff
Journal:  Fam Cancer       Date:  2016-10       Impact factor: 2.375

4.  Multi-source development of an integrated model for family health history.

Authors:  Elizabeth S Chen; Elizabeth W Carter; Tamara J Winden; Indra Neil Sarkar; Yan Wang; Genevieve B Melton
Journal:  J Am Med Inform Assoc       Date:  2014-10-21       Impact factor: 4.497

Review 5.  Applying theory to characterize impediments to dissemination of community-facing family health history tools: a review of the literature.

Authors:  Caitlin G Allen; Debra Duquette; Yue Guan; Colleen M McBride
Journal:  J Community Genet       Date:  2019-07-02

Review 6.  What characterizes cancer family history collection tools? A critical literature review.

Authors:  J E Cleophat; H Nabi; S Pelletier; K Bouchard; M Dorval
Journal:  Curr Oncol       Date:  2018-08-14       Impact factor: 3.677

7.  Will family health history tools work for complex families? Scenario-based testing of a web-based consumer application.

Authors:  Jane Peace; William Bisanar; Nathan Licht
Journal:  AMIA Annu Symp Proc       Date:  2012-11-03

8.  Patient experience with family history tool: analysis of patients' experience sharing their family health history through patient-computer dialogue in a patient portal.

Authors:  Adarsha S Bajracharya; Bradley H Crotty; Hollis B Kowoloff; Charles Safran; Warner V Slack
Journal:  J Am Med Inform Assoc       Date:  2019-07-01       Impact factor: 4.497

Review 9.  Review and Comparison of Electronic Patient-Facing Family Health History Tools.

Authors:  Brandon M Welch; Kevin Wiley; Lance Pflieger; Rosaline Achiangia; Karen Baker; Chanita Hughes-Halbert; Heath Morrison; Joshua Schiffman; Megan Doerr
Journal:  J Genet Couns       Date:  2018-03-06       Impact factor: 2.537

10.  Genetic counselors' current use of personal health records-based family histories in genetic clinics and considerations for their future adoption.

Authors:  Chaney Widmer; Jonathan P Deshazo; Joann Bodurtha; John Quillin; Heather Creswick
Journal:  J Genet Couns       Date:  2012-12-16       Impact factor: 2.537

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