Literature DB >> 19092442

Patient interest in recording family histories of cancer via the Internet.

Christian Simon1, Louise Acheson, Christopher Burant, Nancy Gerson, Sarah Schramm, Susan Lewis, Georgia Wiesner.   

Abstract

PURPOSE: This study investigated the interest of mammogram patients in using electronic tools for recording their family histories of cancer (FHC).
METHODS: Semistructured interviews were conducted with 65 patients visiting a breast center at a referral hospital in Cleveland, Ohio.
RESULTS: Most (n = 40; 62%) respondents expressed interest in using an electronic tool for recording FHC and associated its use with a range of benefits to themselves, their families, and their health care providers. Women who were not interested (n = 25; 38%) in using an electronic tool for recording FHC were concerned about privacy issues, computer proficiency, and giving up the opportunity to provide family history information directly to the health care provider. Interest in using an electronic tool for recording FHC was not significantly associated with age, race, level of education or income, personal or FHC, or Internet access and frequency of use.
CONCLUSION: Electronic documentation of FHC was seen as largely desirable. However, clinical services to facilitate systematic family history documentation are likely to require more than one avenue for collecting and communicating this information, as not everyone who wants to provide a FHC to a health care provider is comfortable using the Internet to do so.

Entities:  

Mesh:

Year:  2008        PMID: 19092442      PMCID: PMC3342847          DOI: 10.1097/GIM.0b013e31818de708

Source DB:  PubMed          Journal:  Genet Med        ISSN: 1098-3600            Impact factor:   8.822


  22 in total

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Review 2.  Breast cancer susceptibility and the DNA damage response.

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3.  Family history of cancer and risk of breast cancer.

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4.  In search of a familial cancer risk assessment tool.

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Journal:  J Gen Intern Med       Date:  2005-04       Impact factor: 5.128

Review 7.  Patients with a family history of cancer: identification and management.

Authors:  Margaret M Eberl; Annette Y Sunga; Carolyn D Farrell; Martin C Mahoney
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8.  Cancer and the computerized family: towards a clinical ethics of "indirect" Internet use.

Authors:  Christian Simon; Sarah Schramm
Journal:  Med Health Care Philos       Date:  2008-02-19

9.  Breast, colorectal, and skin cancer screening practices and family history of cancer in U.S. women.

Authors:  Mona Shah; Kangmin Zhu; Richard C Palmer; Ismail Jatoi; Craig Shriver; Hongyu Wu
Journal:  J Womens Health (Larchmt)       Date:  2007-05       Impact factor: 2.681

10.  "Are you at risk for hereditary breast cancer?": development of a personal risk assessment tool for hereditary breast and ovarian cancer.

Authors:  Wendy F Cohn; Susan M Jones; Susan Miesfeldt
Journal:  J Genet Couns       Date:  2008-01-08       Impact factor: 2.537

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  13 in total

1.  Veterans' experience in using the online Surgeon General's family health history tool.

Authors:  Nedal Arar; Joann Seo; Hanna E Abboud; Michael Parchman; Polly Noel
Journal:  Per Med       Date:  2011-09-01       Impact factor: 2.512

2.  Development and early usage patterns of a consumer-facing family health history tool.

Authors:  Nathan C Hulse; Pallavi Ranade-Kharkar; Herman Post; Grant M Wood; Marc S Williams; Peter J Haug
Journal:  AMIA Annu Symp Proc       Date:  2011-10-22

3.  Profiling Fast Healthcare Interoperability Resources (FHIR) of Family Health History based on the Clinical Element Models.

Authors:  Jaehoon Lee; Nathan C Hulse; Grant M Wood; Thomas A Oniki; Stanley M Huff
Journal:  AMIA Annu Symp Proc       Date:  2017-02-10

Review 4.  Personal health records: a scoping review.

Authors:  N Archer; U Fevrier-Thomas; C Lokker; K A McKibbon; S E Straus
Journal:  J Am Med Inform Assoc       Date:  2011 Jul-Aug       Impact factor: 4.497

5.  Barriers in identification and referral to genetic counseling for familial cancer risk: the perspective of genetic service providers.

Authors:  Sharon J Rolnick; Alanna K Rahm; Jody M Jackson; Larissa Nekhlyudov; Katrina A B Goddard; Terry Field; Catherine McCarty; Cynthia Nakasato; Douglas Roblin; Christopher P Anderson; Rodolfo Valdez
Journal:  J Genet Couns       Date:  2011-04-19       Impact factor: 2.537

6.  Use of health information technology among racial and ethnic underserved communities.

Authors:  Michael Christopher Gibbons
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7.  Effect of preventive messages tailored to family history on health behaviors: the Family Healthware Impact Trial.

Authors:  Mack T Ruffin; Donald E Nease; Ananda Sen; Wilson D Pace; Catharine Wang; Louise S Acheson; Wendy S Rubinstein; Suzanne O'Neill; Robert Gramling
Journal:  Ann Fam Med       Date:  2011 Jan-Feb       Impact factor: 5.166

8.  Comparing electronic health record portals to obtain patient-entered family health history in primary care.

Authors:  Michael F Murray; Monica A Giovanni; Elissa Klinger; Elise George; Lucas Marinacci; George Getty; Phyllis Brawarsky; Beatriz Rocha; E John Orav; David W Bates; Jennifer S Haas
Journal:  J Gen Intern Med       Date:  2013-04-16       Impact factor: 5.128

9.  Population-based family history-specific risks for colorectal cancer: a constellation approach.

Authors:  David P Taylor; Randall W Burt; Marc S Williams; Peter J Haug; Lisa A Cannon-Albright
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10.  An internal performance assessment of CancerGene Connect: an electronic tool to streamline, measure and improve the genetic counseling process.

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Journal:  J Genet Couns       Date:  2014-06-12       Impact factor: 2.537

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