Literature DB >> 22181560

Pacing as a strategy to improve energy management in myalgic encephalomyelitis/chronic fatigue syndrome: a consensus document.

Ellen M Goudsmit1, Jo Nijs, Leonard A Jason, Karen E Wallman.   

Abstract

PURPOSE: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition characterized by a number of symptoms which typically worsen following minimal exertion. Various strategies to manage the limited energy levels have been proposed. Of these, pacing has been consistently rated as one of the most helpful in surveys conducted by patient groups. This review is a response to the paucity of the information on pacing in the scientific literature.
METHOD: We describe the principle of pacing and how this can be adapted to meet individual abilities and preferences. A critical evaluation of the research was conducted to ascertain the benefits and limitations of this strategy.
RESULTS: Based on various studies, it is proposed that pacing can help to stabilize the condition and avoid post-exertional malaise.
CONCLUSION: Pacing offers practitioners an additional therapeutic option which is acceptable to the majority of patients and can reduce the severity of the exertion-related symptoms of ME/CFS.
© 2012 Informa UK, Ltd.

Entities:  

Mesh:

Year:  2011        PMID: 22181560     DOI: 10.3109/09638288.2011.635746

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  28 in total

1.  Assessing the Psychometric Properties of an Activity Pacing Questionnaire for Chronic Pain and Fatigue.

Authors:  Deborah Antcliff; Malcolm Campbell; Steve Woby; Philip Keeley
Journal:  Phys Ther       Date:  2015-04-23

2.  Energy envelope maintenance among patients with myalgic encephalomyelitis and chronic fatigue syndrome: Implications of limited energy reserves.

Authors:  Kelly O'connor; Madison Sunnquist; Laura Nicholson; Leonard A Jason; Julia L Newton; Elin B Strand
Journal:  Chronic Illn       Date:  2017-12-12

3.  Targeting mitochondrial dysfunction in the treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) - a clinical audit.

Authors:  Sarah Myhill; Norman E Booth; John McLaren-Howard
Journal:  Int J Clin Exp Med       Date:  2012-11-20

4.  Activity Pacing Self-Management in Chronic Fatigue Syndrome: A Randomized Controlled Trial.

Authors:  Daphne Kos; Inge van Eupen; Jill Meirte; Deborah Van Cauwenbergh; Greta Moorkens; Mira Meeus; Jo Nijs
Journal:  Am J Occup Ther       Date:  2015 Sep-Oct

5.  Dismissing chronic illness: A qualitative analysis of negative health care experiences.

Authors:  Stephanie McManimen; Damani McClellan; Jamie Stoothoff; Kristen Gleason; Leonard A Jason
Journal:  Health Care Women Int       Date:  2019-03-04

6.  Examining the energy envelope and associated symptom patterns in chronic fatigue syndrome: does coping matter?

Authors:  Abigail A Brown; Meredyth A Evans; Leonard A Jason
Journal:  Chronic Illn       Date:  2013-04-12

7.  Energy Conservation/Envelope Theory Interventions to Help Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

Authors:  Leonard A Jason; Molly Brown; Abigail Brown; Meredyth Evans; Samantha Flores; Elisa Grant-Holler; Madison Sunnquist
Journal:  Fatigue       Date:  2012-08-08

8.  Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

Authors:  Leonard A Jason; Kristen Barker; Abigail Brown
Journal:  Rev Health Care       Date:  2012-01-01

9.  Defining and measuring recovery from myalgic encephalomyelitis and chronic fatigue syndrome: the physician perspective.

Authors:  Andrew R Devendorf; Carly T Jackson; Madison Sunnquist; Leonard A Jason
Journal:  Disabil Rehabil       Date:  2017-10-05       Impact factor: 3.033

10.  Latent class analysis of a heterogeneous international sample of patients with myalgic encephalomyelitis/chronic fatigue syndrome.

Authors:  Kayla A Huber; Madison Sunnquist; Leonard A Jason
Journal:  Fatigue       Date:  2018-07-04
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