Literature DB >> 30829147

Dismissing chronic illness: A qualitative analysis of negative health care experiences.

Stephanie McManimen1, Damani McClellan1, Jamie Stoothoff1, Kristen Gleason1, Leonard A Jason1.   

Abstract

In the US, medical training is inadequate regarding the symptomatology, prognosis, and treatment for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). As a result, many physicians lack the appropriate level of knowledge about effective methods for ME and CFS symptom reduction and often suggest inappropriate treatments, such as increased exercise or psychiatric services. The authors' purpose in this study was to analyze negative patient experiences with health care professionals. Patients with ME and CFS who reported experiencing a dismissive physician attitude were asked to detail the encounter via open-ended response on an international, online survey. Participant responses were thematically coded and analyzed using processes outlined by Patton. Emergent themes related to perceived physician attitudes and how they impact patient wellbeing are described and their implications discussed. Additionally, we highlight suggestions for how the health care system can effectively approach this often marginalized patient group.

Entities:  

Mesh:

Year:  2019        PMID: 30829147      PMCID: PMC6567989          DOI: 10.1080/07399332.2018.1521811

Source DB:  PubMed          Journal:  Health Care Women Int        ISSN: 0739-9332


  32 in total

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Authors:  P D White; K A Goldsmith; A L Johnson; L Potts; R Walwyn; J C DeCesare; H L Baber; M Burgess; L V Clark; D L Cox; J Bavinton; B J Angus; G Murphy; M Murphy; H O'Dowd; D Wilks; P McCrone; T Chalder; M Sharpe
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  4 in total

1.  Experiences of Living with Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.

Authors:  Victoria Strassheim; Julia L Newton; Tracy Collins
Journal:  Healthcare (Basel)       Date:  2021-02-05

2.  "I feel like my body is broken": exploring the experiences of people living with long COVID.

Authors:  Amanda Wurz; S Nicole Culos-Reed; Kelli Franklin; Jessica DeMars; James G Wrightson; Rosie Twomey
Journal:  Qual Life Res       Date:  2022-07-11       Impact factor: 3.440

3.  Chronic Fatigue and Postexertional Malaise in People Living With Long COVID: An Observational Study.

Authors:  Rosie Twomey; Jessica DeMars; Kelli Franklin; S Nicole Culos-Reed; Jason Weatherald; James G Wrightson
Journal:  Phys Ther       Date:  2022-04-01

4.  Support amid uncertainty: Long COVID illness experiences and the role of online communities.

Authors:  David Russell; Naomi J Spence; Jo-Ana D Chase; Tatum Schwartz; Christa M Tumminello; Erin Bouldin
Journal:  SSM Qual Res Health       Date:  2022-10-04
  4 in total

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