| Literature DB >> 22155649 |
Cornelia F Van Uden-Kraan1, Constance H C Drossaert, Erik Taal, Willem M Smit, Hein J Bernelot Moens, Mart A F J Van de Laar.
Abstract
BACKGROUND: Although peer-to-peer contact might empower patients in various ways, studies show that only a few patients actually engage in support groups.Entities:
Mesh:
Year: 2011 PMID: 22155649 PMCID: PMC3278092 DOI: 10.2196/jmir.1718
Source DB: PubMed Journal: J Med Internet Res ISSN: 1438-8871 Impact factor: 5.428
Demographic and health characteristics of the participants and social support factors (602 ≤ n ≤ 679)
| Female | 571 (84.3%) | |
| Male | 106 (15.7%) | |
| Mean (SD) | 54 (12.9) | |
| Minimum | 18 | |
| Maximum | 75 | |
| Single | 128 (19.5%) | |
| Married/cohabiting | 530 (80.5%) | |
| Low | 404 (59.9%) | |
| Middle | 176 (26.1%) | |
| High | 94 (13.9%) | |
| Employed | 212 (32.2%) | |
| Unemployed | 447 (67.8%) | |
| Breast cancer | 195 (28.7%) | |
| Fibromyalgia | 212 (31.2%) | |
| Rheumatoid arthritis | 272 (40.1%) | |
| Mean (SD) | 7.1 (7.8) | |
| Minimum | 0 | |
| Maximum | 59 | |
| Physical well-being | 38.6 (11.3) | |
| Mental well-being | 43.9 (6.7) | |
| Social support (score 1–4) | 2.6 (0.66) | |
Use of peer support (n = 679) during the preceding year
| Type of peer support | Never | Once | Several times | Regularly | ||||
| n | % | n | % | n | % | n | % | |
| How often did you have contact with peers at patient meetings during the past year? | 614 | 90.4 | 26 | 3.8 | 26 | 3.8 | 13 | 1.9 |
| How often did you have contact with peers via the Internet during the past year? | 649 | 95.6 | 7 | 1.0 | 17 | 2.5 | 6 | 0.9 |
| How often did you have contact with (an) acquaintance(s) with the same disease during the past year? | 326 | 48.0 | 35 | 5.2 | 216 | 31.8 | 102 | 15.0 |
| How often did you have contact with peers at patient organization venues during the past year? | 643 | 94.7 | 15 | 2.2 | 12 | 1.8 | 9 | 1.3 |
Mean scores (range 1–5) for determinants of the theory of planned behavior toward face-to-face and online peer support
| Determinant | Face-to-face peer | Online peer support | ||
| Mean | SD | Mean | SD | |
| Intentiona | 2.4 | 1.2 | 2.0 | 0.95 |
| Attitudea | 3.7 | 1.1 | 3.2 | 1.1 |
| Advantagesa | 3.5 | 0.85 | 3.2 | 0.86 |
| Disadvantagesa | 2.9 | 0.88 | 3.2 | 0.85 |
| Subjective norma | 3.0 | 0.69 | 2.8 | 0.67 |
| Perceived behavioral controla | 4.1 | 1.2 | 3.9 | 1.4 |
| Barriersb | 2.8 | 0.80 | 2.8 | 0.91 |
a P < .001 for paired-sample t tests comparing face-to-face versus online peer support.
b No differences in amount of barriers between face-to-face and online peer support could be determined, because the questionnaire asked about different barriers.
Mean item scores (range 1–5) on attitude toward peer support
| Face-to-face peer support | Online peer support | ||||
| Mean | SD | Mean | SD | ||
| Offers a good opportunity to share your experiences | 3.8 | 1.1 | 3.6 | 1.1 | |
| provides recognition and understanding | 3.8 | 1.1 | 3.6 | 1.0 | |
| provides support | 3.7 | 1.1 | 3.4 | 1.0 | |
| is informative | 3.5 | 1.1 | 3.4 | 1.0 | |
| is comforting | 3.4 | 1.0 | 3.1 | 1.0 | |
| you feel empowered as a patient | 3.4 | 1.1 | 3.1 | 1.1 | |
| provides reliable information | 3.3 | 1.1 | 3.1 | 1.0 | |
| you can cope better with your illness | 3.2 | 1.1 | 3.0 | 1.1 | |
| you can accept your illness more easily | 3.2 | 1.1 | 2.9 | 1.1 | |
| you are occupied too much with your illness | 3.2 | 1.4 | 3.6 | 1.3 | |
| is too informal | 2.9 | 1.1 | 3.2 | 1.0 | |
| makes people more concerned about the consequences of their disease | 2.9 | 1.2 | 3.1 | 1.2 | |
| is too shallow | 2.7 | 1.1 | 3.2 | 1.0 | |
| takes too much time | 2.7 | 1.3 | 2.9 | 1.3 | |
Mean item scores (range 1–5) for barriers to peer support
| How difficult or how easy is it for you... | Mean | SD | |
| to find a suitable face-to-face peer support group? | 3.0 | 1.0 | |
| to find the time and the opportunity to contact peers face-to-face? | 2.9 | 0.97 | |
| considering your illness to visit face-to-face peer support groups? | 2.9 | 1.0 | |
| to afford the cost involved with face-to-face peer contact? | 2.8 | 1.0 | |
| to talk about your illness with peers face-to-face? | 2.7 | 1.0 | |
| to find a suitable online peer support group? | 3.1 | 1.1 | |
| to talk about your illness on the Internet? | 3.1 | 1.1 | |
| to verbally express your illness on the Internet? | 3.1 | 1.1 | |
| considering your illness to type or sit behind the computer for a long period of time? | 3.1 | 1.2 | |
| to find the time and the opportunity to contact peers via the Internet? | 3.0 | 1.0 | |
| to afford the costs involved with peer-to-peer contact via the Internet? | 2.6 | 1.1 | |
| to work with the Internet? | 2.3 | 1.3 | |
| to obtain access to the Internet? | 2.2 | 1.2 | |
Extent to which intention to seek online peer support and face-to-face peer support can be predicted by determinants of the theory of planned behavior
| Determinant | Intention to seek face-to-face peer | Intention to seek online peer | |||||
| Beta | SE | Beta | SE | ||||
| Attitude | 0.22*** | 0.05 | 0.19*** | 0.05 | |||
| Advantages | 0.17** | 0.05 | 0.20*** | 0.05 | |||
| Disadvantages | –0.19*** | 0.04 | –0.11** | 0.04 | |||
| Subjective norm | 0.22*** | 0.04 | 0.19*** | 0.04 | |||
| Perceived behavioral control | 0.03 | 0.04 | 0.16** | 0.05 | |||
| Barriers | –0.02 | 0.04 | 0.12* | 0.05 | |||
| Attitude | .46** | .19*** | 0.05 | .38** | .15** | 0.05 | |
| Advantages | .46** | .17** | 0.05 | .40** | .18*** | 0.05 | |
| Disadvantages | –.33** | –.19*** | 0.04 | –.19** | –.10* | 0.04 | |
| Subjective norm | .37** | .19*** | 0.04 | .30** | .17*** | 0.04 | |
| Perceived behavioral control | .19** | .00 | 0.03 | .24** | .11* | 0.04 | |
| Barriers | –.18** | –.09* | 0.04 | –.07 | .11* | 0.05 | |
| Social support factors | .02 | –.06 | 0.04 | –.02 | –.01 | 0.04 | |
| Physical health | –.14** | –.13** | 0.04 | –.23** | –.08 | 0.04 | |
| Mental health | –.10** | –.09* | 0.04 | –.23** | –.12** | 0.04 | |
| Time since diagnosis | –.06 | .07 | 0.04 | –.14* | –.02 | 0.04 | |
| Arthritis versus breast cancer | –.02 | –.08 | 0.05 | –.21** | –.05 | 0.05 | |
| Arthritis versus fibromyalgia | .13** | .01 | 0.05 | .30** | .03 | 0.06 | |
| Sex (male vs female) | .11** | .08* | 0.04 | .03 | –.04 | 0.04 | |
| Age (years) | –.15** | .00 | 0.05 | –.34** | –.14** | 0.05 | |
| Marital status (married/cohabiting vs single) | .07 | .02 | 0.04 | .09* | .00 | 0.04 | |
| Support group past behavior | .30** | .15*** | 0.04 | .27** | .13** | 0.04 | |
| .07*** | .10*** | ||||||
* P < .05, ** P < .01, *** P < .001.