Literature DB >> 22147497

Internet and electronic resources for inflammatory bowel disease: a primer for providers and patients.

Kyle J Fortinsky1, Marc R Fournier, Eric I Benchimol.   

Abstract

Patients with inflammatory bowel disease (IBD) are increasingly turning to the Internet to research their condition and engage in discourse on their experiences. This has resulted in new dynamics in the relationship between providers and their patients, with misinformation and advertising potentially presenting barriers to the cooperative patient-provider partnership. This article addresses important issues of online IBD-related health information and social media activity, such as quality, reliability, objectivity, and privacy. We reviewed the medical literature on the quality of online information provided to IBD patients, and summarized the most commonly accessed Websites related to IBD. We also assessed the activity on popular social media sites (such as Facebook, Twitter, and YouTube), and evaluated currently available applications for use by IBD patients and providers on mobile phones and tablets. Through our review of the literature and currently available resources, we developed a list of recommended online resources to strengthen patient participation in their care by providing reliable, comprehensive educational material.
Copyright © 2011 Crohn's & Colitis Foundation of America, Inc.

Entities:  

Mesh:

Year:  2011        PMID: 22147497     DOI: 10.1002/ibd.22834

Source DB:  PubMed          Journal:  Inflamm Bowel Dis        ISSN: 1078-0998            Impact factor:   5.325


  9 in total

1.  Initial Assessment of Post-traumatic Stress in a US Cohort of Inflammatory Bowel Disease Patients.

Authors:  Tiffany H Taft; Alyse Bedell; Meredith R Craven; Livia Guadagnoli; Sarah Quinton; Stephen B Hanauer
Journal:  Inflamm Bowel Dis       Date:  2019-08-20       Impact factor: 5.325

2.  Quality analysis of patient information on surgical treatment of haemorrhoids on the internet.

Authors:  T M Yeung; N D D'Souza
Journal:  Ann R Coll Surg Engl       Date:  2013-07       Impact factor: 1.891

3.  A Clinical Trial of Translation of Evidence Based Interventions to Mobile Tablets and Illness Specific Internet Sites.

Authors:  Carol E Smith; Ubolrat Piamjariyakul; Marilyn Werkowitch; Donna Macan Yadrich; Noreen Thompson; Dedrick Hooper; Eve-Lynn Nelson
Journal:  Int J Sens Netw Data Commun       Date:  2016-03-15

4.  Internet Searches About Therapies Do Not Impact Willingness to Accept Prescribed Therapy in Inflammatory Bowel Disease Patients.

Authors:  Alexandra Feathers; Tommy Yen; Laura Yun; Garrett Strizich; Arun Swaminath
Journal:  Dig Dis Sci       Date:  2015-12-10       Impact factor: 3.199

5.  Cancer patients on Twitter: a novel patient community on social media.

Authors:  Yuya Sugawara; Hiroto Narimatsu; Atsushi Hozawa; Li Shao; Katsumi Otani; Akira Fukao
Journal:  BMC Res Notes       Date:  2012-12-27

Review 6.  Web-based interventions for ulcerative colitis and Crohn's disease: systematic review and future directions.

Authors:  Colleen Stiles-Shields; Laurie Keefer
Journal:  Clin Exp Gastroenterol       Date:  2015-05-11

7.  How Twitter Is Studied in the Medical Professions: A Classification of Twitter Papers Indexed in PubMed.

Authors:  Shirley Ann Williams; Melissa Terras; Claire Warwick
Journal:  Med 2 0       Date:  2013-07-18

8.  Download Alert: Understanding Gastroenterology Patients' Perspectives on Health-Related Smartphone Apps.

Authors:  Jasmine K Zia; Thai Le; Sean Munson; Margaret M Heitkemper; George Demiris
Journal:  Clin Transl Gastroenterol       Date:  2015-07-02       Impact factor: 4.488

Review 9.  Too many crying babies: a systematic review of pain management practices during immunizations on YouTube.

Authors:  Denise Harrison; Margaret Sampson; Jessica Reszel; Koowsar Abdulla; Nick Barrowman; Jordi Cumber; Ann Fuller; Claudia Li; Stuart Nicholls; Catherine M Pound
Journal:  BMC Pediatr       Date:  2014-05-29       Impact factor: 2.125

  9 in total

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