Literature DB >> 22114235

Making sense of risk: an interpretative phenomenological analysis of vulnerability to heart disease.

Victoria Senior1, Jonathan A Smith, Susan Michie, Theresa M Marteau.   

Abstract

This study investigates perceptions of familial hypercholesterolaemia (FH) and its genetic basis in patients diagnosed with, and receiving treatment for, FH. Semi-structured interviews were conducted with seven patients. Transcripts were analysed using interpretative phenomenological analysis (IPA). Participants reported engaging in an active process of seeking causes for their FH. FH was invariably attributed to genes. In some cases diet and stress were also considered as causes of FH. Causal attributions appear to be both a determinant and a result of behavioural strategies to reduce risk. On the whole, FH was perceived as unproblematic, a perception that appeared to reflect downward social comparison processes. Nonetheless, participants reported acting in ways consonant with the perception of an increased risk of heart attack, in particular, being vigilant to symptoms of a possible heart attack.

Entities:  

Year:  2002        PMID: 22114235     DOI: 10.1177/1359105302007002455

Source DB:  PubMed          Journal:  J Health Psychol        ISSN: 1359-1053


  9 in total

Review 1.  Illness representations, self-regulation, and genetic counseling: a theoretical review.

Authors:  Shoshana Shiloh
Journal:  J Genet Couns       Date:  2006-10       Impact factor: 2.537

2.  "Awakening to" a new meaning of being at-risk for arrhythmogenic right ventricular cardiomyopathy: a grounded theory study.

Authors:  April Manuel; Fern Brunger
Journal:  J Community Genet       Date:  2015-01-27

3.  Perceived vulnerability to heart disease in patients with familial hypercholesterolemia: a qualitative interview study.

Authors:  Jan C Frich; Leiv Ose; Kirsti Malterud; Per Fugelli
Journal:  Ann Fam Med       Date:  2006 May-Jun       Impact factor: 5.166

4.  A qualitative study of patients' perceptions of the value of molecular diagnosis for familial hypercholesterolemia (FH).

Authors:  Nina Hallowell; Nicholas Jenkins; Margaret Douglas; Simon Walker; Robert Finnie; Mary Porteous; Julia Lawton
Journal:  J Community Genet       Date:  2016-11-19

5.  Patients' perceptions and experiences of familial hypercholesterolemia, cascade genetic screening and treatment.

Authors:  Sarah J Hardcastle; Ellen Legge; Chris S Laundy; Sarah J Egan; Rosemary French; Gerald F Watts; Martin S Hagger
Journal:  Int J Behav Med       Date:  2015-02

6.  Patient accounts of diagnostic testing for familial hypercholesterolaemia: comparing responses to genetic and non-genetic testing methods.

Authors:  Gareth J Hollands; David Armstrong; Angela Macfarlane; Martin A Crook; Theresa M Marteau
Journal:  BMC Med Genet       Date:  2012-09-21       Impact factor: 2.103

7.  "Am I carrier?" The patient's lived experience of thrombophilia genetic screening and its outcome.

Authors:  Guendalina Graffigna; Daniela Leone; Elena Vegni
Journal:  Health Psychol Behav Med       Date:  2014-06-04

8.  Family history of diabetes: exploring perceptions of people at risk in the Netherlands.

Authors:  Miranda Pijl; Lidewij Henneman; Liesbeth Claassen; Symone B Detmar; Giel Nijpels; Danielle R M Timmermans
Journal:  Prev Chronic Dis       Date:  2009-03-16       Impact factor: 2.830

9.  Enablers and barriers to treatment adherence in heterozygous familial hypercholesterolaemia: a qualitative evidence synthesis.

Authors:  Fiona J Kinnear; Elaine Wainwright; Rachel Perry; Fiona E Lithander; Graham Bayly; Alyson Huntley; Jennifer Cox; Julian Ph Shield; Aidan Searle
Journal:  BMJ Open       Date:  2019-07-31       Impact factor: 2.692

  9 in total

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