Literature DB >> 22109874

A pilot study of knowledge and interest of genetic counseling and testing for hereditary breast and ovarian cancer syndrome among Puerto Rican women.

Susan T Vadaparampil1, Gwendolyn P Quinn, Julie Dutil, Marieva Puig, Teri L Malo, Jessica McIntyre, Rossybelle Perales, Euna M August, Zuheily Closser.   

Abstract

This study explored baseline levels of knowledge and attitude toward genetic testing (GT) for hereditary breast and ovarian cancer among Puerto Rican women. A secondary aim was to evaluate whether these factors differed between respondents in Puerto Rico and Tampa. Puerto Rican women with a personal or family history of breast or ovarian cancer who live in Puerto Rico (n = 25) and Tampa (n = 20) were interviewed. Both groups were interested in obtaining GT; women living in Puerto Rico were more likely to report they would get GT within 6 months (p = 0.005). The most commonly cited barrier was cost; the most commonly cited facilitator was provider recommendation. There was no difference in overall knowledge between Tampa (M = 5.15, SD = 1.63) and Puerto Rico (M = 5.00, SD = 1.87) participants (p = 0.78). Involving health care providers in recruitment and highlighting that GT may be available at minimal or no cost in the USA and Puerto Rico may facilitate participation.

Entities:  

Year:  2011        PMID: 22109874      PMCID: PMC3215781          DOI: 10.1007/s12687-011-0058-9

Source DB:  PubMed          Journal:  J Community Genet        ISSN: 1868-310X


  46 in total

1.  Tailoring breast cancer treatment to genetic status: the challenges ahead.

Authors:  Mary B Daly
Journal:  J Clin Oncol       Date:  2004-04-05       Impact factor: 44.544

2.  Latino populations: a unique opportunity for the study of race, genetics, and social environment in epidemiological research.

Authors:  Esteban González Burchard; Luisa N Borrell; Shweta Choudhry; Mariam Naqvi; Hui-Ju Tsai; Jose R Rodriguez-Santana; Rocio Chapela; Scott D Rogers; Rui Mei; William Rodriguez-Cintron; Jose F Arena; Rick Kittles; Eliseo J Perez-Stable; Elad Ziv; Neil Risch
Journal:  Am J Public Health       Date:  2005-10-27       Impact factor: 9.308

3.  Beliefs and interest in cancer risk in an underserved Latino cohort.

Authors:  Charité N Ricker; Sue Hiyama; Susan Fuentes; Nancy Feldman; Vasanth Kumar; Gwen C Uman; Raluca Nedelcu; Kathleen R Blazer; Deborah J MacDonald; Jeffrey N Weitzel
Journal:  Prev Med       Date:  2006-10-06       Impact factor: 4.018

4.  Preferences for hereditary breast and ovarian cancer information among Mexican, Cuban and Puerto Rican women at risk.

Authors:  Gwendolyn P Quinn; Jessica McIntyre; Susan T Vadaparampil
Journal:  Public Health Genomics       Date:  2010-02-12       Impact factor: 2.000

5.  Fear, hope and social desirability bias among women at high risk for HIV in West Africa.

Authors:  Greg Guest; Arwen Bunce; Laura Johnson; Betty Akumatey; Lawrence Adeokun
Journal:  J Fam Plann Reprod Health Care       Date:  2005-10

6.  Redes En Acción. Increasing Hispanic participation in cancer research, training, and awareness.

Authors:  Amelie G Ramirez; Gregory A Talavera; Jose Marti; Frank J Penedo; Martha A Medrano; Aida L Giachello; Eliseo J Pérez-Stable
Journal:  Cancer       Date:  2006-10-15       Impact factor: 6.860

7.  Characteristics of BRCA1 mutations in a population-based case series of breast and ovarian cancer.

Authors:  H Anton-Culver; P F Cohen; M E Gildea; A Ziogas
Journal:  Eur J Cancer       Date:  2000-06       Impact factor: 9.162

8.  Controlled trial of pretest education approaches to enhance informed decision-making for BRCA1 gene testing.

Authors:  C Lerman; B Biesecker; J L Benkendorf; J Kerner; A Gomez-Caminero; C Hughes; M M Reed
Journal:  J Natl Cancer Inst       Date:  1997-01-15       Impact factor: 13.506

9.  Appropriateness of breast-conserving treatment of breast carcinoma in women with germline mutations in BRCA1 or BRCA2: a clinic-based series.

Authors:  Mark Robson; Tiffany Svahn; Beryl McCormick; Patrick Borgen; Clifford A Hudis; Larry Norton; Kenneth Offit
Journal:  Cancer       Date:  2005-01-01       Impact factor: 6.860

10.  Perceived cancer risk: why is it lower among nonwhites than whites?

Authors:  Heather Orom; Marc T Kiviniemi; Willie Underwood; Levi Ross; Vickie L Shavers
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2010-02-16       Impact factor: 4.254

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  17 in total

1.  Genomic Disparities in Breast Cancer Among Latinas.

Authors:  Filipa Lynce; Kristi D Graves; Lina Jandorf; Charite Ricker; Eida Castro; Laura Moreno; Bianca Augusto; Laura Fejerman; Susan T Vadaparampil
Journal:  Cancer Control       Date:  2016-10       Impact factor: 3.302

2.  Identification of the prevalent BRCA1 and BRCA2 mutations in the female population of Puerto Rico.

Authors:  Julie Dutil; Jose L Colon-Colon; Jaime L Matta; Rebecca Sutphen; Miguel Echenique
Journal:  Cancer Genet       Date:  2012-05

3.  Comparison of Health Communication Channels for Reaching Hispanics About Biobanking: a Pilot Trial.

Authors:  Jessica McIntyre; Julio Jiménez; Yonaira M Rivera; Steven K Sutton; Gloria Asencio; Eida M Castro-Figueroa; Clement K Gwede; Thomas H Brandon; Susan T Vadaparampil; Vani N Simmons; Johanna Corchado; Laura Moreno; Kristen J Wells; Gwendolyn P Quinn
Journal:  J Cancer Educ       Date:  2018-08       Impact factor: 2.037

4.  Breast cancer genetic testing awareness, attitudes and intentions of Latinas living along the US-Mexico border: a qualitative study.

Authors:  Patricia Chalela; José A Pagán; Dejun Su; Edgar Muñoz; Amelie G Ramirez
Journal:  J Community Med Health Educ       Date:  2012

Review 5.  Genetic risk assessments in individuals at high risk for inherited breast cancer in the breast oncology care setting.

Authors:  Tuya Pal; Susan T Vadaparampil
Journal:  Cancer Control       Date:  2012-10       Impact factor: 3.302

6.  Perceptions of genetic testing and genomic medicine among drug users.

Authors:  David C Perlman; Camila Gelpí-Acosta; Samuel R Friedman; Ashly E Jordan; Holly Hagan
Journal:  Int J Drug Policy       Date:  2014-06-24

7.  Awareness of genetic counseling and perceptions of its purpose: a survey of the Canadian public.

Authors:  Melissa Maio; Prescilla Carrion; Elyse Yaremco; Jehannine C Austin
Journal:  J Genet Couns       Date:  2013-08-21       Impact factor: 2.537

8.  Mainstreaming genetics in palliative care: barriers and suggestions for clinical genetic services.

Authors:  A Dearing; N Taverner
Journal:  J Community Genet       Date:  2017-11-20

Review 9.  Clinical Cancer Genetics Disparities among Latinos.

Authors:  Marcia Cruz-Correa; Julyann Pérez-Mayoral; Julie Dutil; Miguel Echenique; Rafael Mosquera; Keila Rivera-Román; Sharee Umpierre; Segundo Rodriguez-Quilichini; Maria Gonzalez-Pons; Myrta I Olivera; Sherly Pardo
Journal:  J Genet Couns       Date:  2016-12-12       Impact factor: 2.537

10.  A pilot randomized trial of an educational intervention to increase genetic counseling and genetic testing among Latina breast cancer survivors.

Authors:  Claire C Conley; Eida M Castro-Figueroa; Laura Moreno; Julie Dutil; Jennifer D García; Carolina Burgos; Charité Ricker; Jongphil Kim; Kristi D Graves; Kimlin Tam Ashing; Gwendolyn P Quinn; Hatem Soliman; Susan T Vadaparampil
Journal:  J Genet Couns       Date:  2020-09-16       Impact factor: 2.537

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