Literature DB >> 22032025

Ethical tensions in genetic counselling research.

Mary-Anne Young1.   

Abstract

Ethical tensions are recognised as part of the everyday practice of conducting research and practising genetic counselling. What are the conceptual frameworks that can assist researchers and genetic counsellors to deal with ethical tensions when conducting research? How might the overlap that arises from being a researcher and clinical genetic counsellor be dealt with? This article uses a case study to consider the ethical tensions between conducting research in genetic counselling and maintaining a clinical practice as a genetic counsellor. It examines the reconciliation of the dual roles of researcher and genetic counsellor. It explores conceptual frameworks that can combine the needs of ethical research practice, while maintaining ethical clinical practice.

Mesh:

Year:  2011        PMID: 22032025     DOI: 10.1007/bf03351326

Source DB:  PubMed          Journal:  Monash Bioeth Rev        ISSN: 1321-2753


  9 in total

1.  Nuance, complexity, and context: qualitative methods in genetic counseling research.

Authors:  Diane Beeson
Journal:  J Genet Couns       Date:  1997-03       Impact factor: 2.537

2.  Reflexivity: a personal journey during data collection.

Authors:  Mary Carolan
Journal:  Nurse Res       Date:  2003

3.  (Mis)alignments in counseling for Huntington's Disease predictive testing: clients' responses to reflective frames.

Authors:  Srikant Sarangi; Kristina Bennert; Lucy Howell; Angus Clarke; Peter Harper; Jonathon Gray
Journal:  J Genet Couns       Date:  2005-02       Impact factor: 2.537

4.  Educating genetic counselors in Australia: developing an international perspective.

Authors:  Margaret A Sahhar; Mary-Anne Young; Leslie J Sheffield; Maryanne Aitken
Journal:  J Genet Couns       Date:  2005-08       Impact factor: 2.537

5.  "Not as bad as it could have been": assessing and mitigating harm during research interviews on sensitive topics.

Authors:  K Kavanaugh; L Ayres
Journal:  Res Nurs Health       Date:  1998-02       Impact factor: 2.228

6.  Average risks of breast and ovarian cancer associated with BRCA1 or BRCA2 mutations detected in case Series unselected for family history: a combined analysis of 22 studies.

Authors:  A Antoniou; P D P Pharoah; S Narod; H A Risch; J E Eyfjord; J L Hopper; N Loman; H Olsson; O Johannsson; A Borg; B Pasini; P Radice; S Manoukian; D M Eccles; N Tang; E Olah; H Anton-Culver; E Warner; J Lubinski; J Gronwald; B Gorski; H Tulinius; S Thorlacius; H Eerola; H Nevanlinna; K Syrjäkoski; O-P Kallioniemi; D Thompson; C Evans; J Peto; F Lalloo; D G Evans; D F Easton
Journal:  Am J Hum Genet       Date:  2003-04-03       Impact factor: 11.025

7.  Subject, project or self? Thoughts on ethical dilemmas for social and medical researchers.

Authors:  J A Batchelor; C M Briggs
Journal:  Soc Sci Med       Date:  1994-10       Impact factor: 4.634

8.  Confidentiality.

Authors:  L Gillam; J M Little
Journal:  Med J Aust       Date:  2001-03-19       Impact factor: 7.738

9.  Expertise in research ethics: is there any such thing?

Authors:  Lynn Gillam
Journal:  Monash Bioeth Rev       Date:  2004-07
  9 in total
  1 in total

1.  Connecting patients, researchers and clinical genetics services: the experiences of participants in the Australian Ovarian Cancer Study (AOCS).

Authors:  Ashley Crook; Loren Plunkett; Laura E Forrest; Nina Hallowell; Samantha Wake; Kathryn Alsop; Margaret Gleeson; David Bowtell; Gillian Mitchell; Mary-Anne Young
Journal:  Eur J Hum Genet       Date:  2014-05-14       Impact factor: 4.246

  1 in total

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