Literature DB >> 22007988

Healthcare transitions for adolescents with chronic life-threatening conditions using a Delphi method to identify research priorities for clinicians and academics in Canada.

M Fletcher-Johnston1, S K Marshall, L Straatman.   

Abstract

PURPOSE: Research has only begun to examine the complexity of transition to adulthood under illness conditions. A Delphi method may be utilized to identify pertinent research priorities for academics and clinicians in adolescent healthcare transitions and prioritize a framework for an ongoing programme of research.
METHODS: Through a comprehensive recruitment strategy throughout Canada, 114 clinicians and academics were invited to participate in this national study. Three phases were conducted until consensus could be achieved for the five most pressing research priorities.
RESULTS: Thirty-eight respondents completed at least one of the three phases of the process. All responses were analysed, and five questions in phase 3 achieving a level of consensus ranging 64-80% were identified as the top five research priorities. These questions included: skills and knowledge adolescents require for the transition process, how to measure success, the factors that influence a successful transition and whether good transitions improve health outcomes.
CONCLUSIONS: The results of this study can inform and prioritize a framework for an ongoing programme of research in Canada. The inclusion of clinicians and academics ensures that the research agenda incorporates perspectives from the front-line work of individuals providing care to this population as well as individuals from the academic community with important knowledge and skills related to research approaches and methods.
© 2011 Blackwell Publishing Ltd.

Mesh:

Year:  2011        PMID: 22007988     DOI: 10.1111/j.1365-2214.2011.01318.x

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  15 in total

1.  Prioritizing core components of successful transitions from child to adult mental health care: a national Delphi survey with youth, caregivers, and health professionals.

Authors:  Kristin Cleverley; Emma McCann; David O'Brien; Julia Davies; Kathryn Bennett; Sarah Brennenstuhl; Lynn Courey; Joanna Henderson; Lianne Jeffs; Joshua Miller; Tony Pignatiello; Jessica Rong; Emily Rowland; Katye Stevens; Peter Szatmari
Journal:  Eur Child Adolesc Psychiatry       Date:  2021-06-05       Impact factor: 4.785

2.  Assessment of identity and quality of life in diabetic and renal transplant adolescents in comparison to healthy adolescents.

Authors:  Tziona Lugasi; Marie Achille; Tom Blydt-Hansen; Marie-José Clermont; Louis Geoffroy; Laurent Legault; Véronique Phan; Lorraine E Bell
Journal:  J Clin Psychol Med Settings       Date:  2013-09

Review 3.  Transition care: future directions in education, health policy, and outcomes research.

Authors:  Niraj Sharma; Kitty O'Hare; Richard C Antonelli; Gregory S Sawicki
Journal:  Acad Pediatr       Date:  2014 Mar-Apr       Impact factor: 3.107

Review 4.  Transition care for children with special health care needs.

Authors:  Alaina M Davis; Rebekah F Brown; Julie Lounds Taylor; Richard A Epstein; Melissa L McPheeters
Journal:  Pediatrics       Date:  2014-10-06       Impact factor: 7.124

5.  Health transition experiences of Canadian ventilator-assisted adolescents and their family caregivers: A qualitative interview study.

Authors:  Craig M Dale; Judy King; Reshma Amin; Sherri Katz; Douglas McKim; Jeremy Road; Louise Rose
Journal:  Paediatr Child Health       Date:  2017-06-14       Impact factor: 2.253

6.  Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study.

Authors:  Stephanie Sivell; Victoria Lidstone; Mark Taubert; Catherine Thompson; Annmarie Nelson
Journal:  BMJ Support Palliat Care       Date:  2014-03-26       Impact factor: 3.568

7.  Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care.

Authors:  Karen Cook; Harold Siden; Susan Jack; Lehana Thabane; Gina Browne
Journal:  Nurs Res Pract       Date:  2013-08-12

8.  You never transition alone! Exploring the experiences of youth with chronic health conditions, parents and healthcare providers on self-management.

Authors:  T Nguyen; D Henderson; D Stewart; O Hlyva; Z Punthakee; J W Gorter
Journal:  Child Care Health Dev       Date:  2016-04-22       Impact factor: 2.508

9.  Measuring satisfaction with health care in young persons with inflammatory bowel disease--an instrument development and validation study.

Authors:  Andrea Sadlo; Julia Altevers; Jenny Peplies; Birgit Kaltz; Martin Claßen; Alexandra Bauer; Sibylle Koletzko; Antje Timmer
Journal:  BMC Health Serv Res       Date:  2014-03-01       Impact factor: 2.655

10.  Identifying research priorities for public health research to address health inequalities: use of Delphi-like survey methods.

Authors:  S Turner; E Ollerhead; A Cook
Journal:  Health Res Policy Syst       Date:  2017-10-09
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