Literature DB >> 21861066

Coping in caregivers of youth with spinal cord injury.

Kimberly B Dasch1, Heather F Russell, Erin H Kelly, Julie A Gorzkowski, Mary Jane Mulcahey, Randal R Betz, Lawrence C Vogel.   

Abstract

This study examined coping among caregivers of youth with spinal cord injuries (SCI). Using a cross-sectional survey study design, 164 caregivers completed a demographics questionnaire and the Brief COPE. Their children, youth with SCI ages 7-18, completed the Kidcope. T-tests were conducted to examine differences in caregiver coping by demographic and injury-related factors. Further, logistic regression models were evaluated to examine predictive relationships between caregiver coping and youth coping. Several demographic and injury-related factors were related to caregiver coping, including caregiver gender, race, and education, as well as youth gender, age at injury, and time since injury. In the logistic regressions, two caregiver coping strategies were related to youth coping: caregiver self-blame coping was related to youth self-criticism, and caregiver behavioral disengagement coping (giving up attempts to cope) was related to youth blaming others coping. The findings suggest that caregiver coping may play a role in the coping of their children, and should be considered when addressing coping among youth with SCI.

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Mesh:

Year:  2011        PMID: 21861066     DOI: 10.1007/s10880-011-9258-z

Source DB:  PubMed          Journal:  J Clin Psychol Med Settings        ISSN: 1068-9583


  19 in total

1.  Girls with spinal cord injury: social and job-related participation and psychosocial outcomes.

Authors:  Julie A Gorzkowski; Erin H Kelly; Sara J Klaas; Lawrence C Vogel
Journal:  Rehabil Psychol       Date:  2010-02

Review 2.  Pediatric spinal injuries.

Authors:  Janice S Hayes; Trish Arriola
Journal:  Pediatr Nurs       Date:  2005 Nov-Dec

Review 3.  Relating parent and family functioning to the psychological adjustment of children with chronic health conditions: what have we learned? What do we need to know?

Authors:  D Drotar
Journal:  J Pediatr Psychol       Date:  1997-04

4.  Health-related quality of life after pediatric spinal cord injury.

Authors:  Sylvia I Garma; Erin H Kelly; Erica Z Daharsh; Lawrence C Vogel
Journal:  J Pediatr Psychol       Date:  2010-04-30

5.  You want to measure coping but your protocol's too long: consider the brief COPE.

Authors:  C S Carver
Journal:  Int J Behav Med       Date:  1997

6.  Relationships between the psychological characteristics of youth with spinal cord injury and their primary caregivers.

Authors:  E H Kelly; C J Anderson; S I Garma; H F Russell; S J Klaas; J A Gorzkowski; L C Vogel
Journal:  Spinal Cord       Date:  2010-07-06       Impact factor: 2.772

7.  Illness representations and coping as predictors of emotional well-being in adolescents with type 1 diabetes.

Authors:  K A Edgar; T C Skinner
Journal:  J Pediatr Psychol       Date:  2003 Oct-Nov

8.  Anxiety and depression in children and adolescents with spinal cord injuries.

Authors:  Caroline J Anderson; Erin H Kelly; Sara J Klaas; Heather Russell; Erica Daharsh; Lawrence C Vogel
Journal:  Dev Med Child Neurol       Date:  2009-03-09       Impact factor: 5.449

9.  Rehabilitation and future participation of youth following spinal cord injury: caregiver perspectives.

Authors:  L A House; H F Russell; E H Kelly; A Gerson; L C Vogel
Journal:  Spinal Cord       Date:  2009-06-16       Impact factor: 2.772

10.  Not all patients want to participate in decision making. A national study of public preferences.

Authors:  Wendy Levinson; Audiey Kao; Alma Kuby; Ronald A Thisted
Journal:  J Gen Intern Med       Date:  2005-06       Impact factor: 5.128

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  10 in total

1.  It is a marathon rather than a sprint: an initial exploration of unmet needs and support preferences of caregivers of children with SCI.

Authors:  Susan L Ryerson Espino; Erin H Kelly; Anne Rivelli; Kathy Zebracki; Lawrence C Vogel
Journal:  Spinal Cord       Date:  2017-11-30       Impact factor: 2.772

2.  A Qualitative Study of Caregiving for Adolescents and Young Adults With Spinal Cord Injuries: Lessons From Lived Experiences.

Authors:  Carol Haywood; Elizabeth Pyatak; Natalie Leland; Benjamin Henwood; Mary C Lawlor
Journal:  Top Spinal Cord Inj Rehabil       Date:  2019

3.  Parental coping in the neonatal intensive care unit.

Authors:  Richard J Shaw; Rebecca S Bernard; Amy Storfer-Isser; William Rhine; Sarah M Horwitz
Journal:  J Clin Psychol Med Settings       Date:  2013-06

4.  Correlation between health-related quality of life in veterans with chronic spinal cord injury and their caregiving spouses.

Authors:  Mohammad Hosein Ebrahimzadeh; Farideh Golhasani-Keshtan; Bibi Soheila Shojaee
Journal:  Arch Trauma Res       Date:  2014-11-25

5.  Development of the Parent Forum: An in-person approach to supporting caregivers of youth with spinal cord injury.

Authors:  Anne L Rivelli; Erin H Kelly; Susan Ryerson Espino; Lawrence C Vogel
Journal:  J Spinal Cord Med       Date:  2019-05-14       Impact factor: 1.985

6.  A Systematic Review of the Scientific Literature for Rehabilitation/Habilitation Among Individuals With Pediatric-Onset Spinal Cord Injury.

Authors:  Amanda McIntyre; Cristina Sadowsky; Andrea Behrman; Rebecca Martin; Marika Augutis; Caitlin Cassidy; Randal Betz; Per Ertzgaard; M J Mulcahey
Journal:  Top Spinal Cord Inj Rehabil       Date:  2022-04-12

7.  Coping and participation in youth with spinal cord injury.

Authors:  Jennifer J Lindwall; Heather F Russell; Erin H Kelly; Sara J Klaas; Mary Jane Mulcahey; Randal R Betz; Lawrence C Vogel
Journal:  Top Spinal Cord Inj Rehabil       Date:  2012

8.  The relationship between socio-demographic characteristics, family environment, and caregiver coping in families of children with cancer.

Authors:  Elizabeth A Gage-Bouchard; Katie A Devine; Charles E Heckler
Journal:  J Clin Psychol Med Settings       Date:  2013-12

9.  Obstacles to community participation among youth with spinal cord injury.

Authors:  Julie Gorzkowski; Erin H Kelly; Sara J Klaas; Lawrence C Vogel
Journal:  J Spinal Cord Med       Date:  2011-11       Impact factor: 1.985

10.  Relationships Between Caregiver Characteristics and Health-Related Quality of Life Among Youth with Spinal Cord Injury.

Authors:  Erin H Kelly; Anne L Riordan; Kathy Zebracki; Sara Thorpe; Lawrence C Vogel
Journal:  Top Spinal Cord Inj Rehabil       Date:  2016
  10 in total

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