Literature DB >> 21849332

Enabling distributed electronic research data collection for a rural Appalachian tobacco cessation study.

Tara B Borlawsky1, Omkar Lele, Daniel Jensen, Nancy E Hood, Mary Ellen Wewers.   

Abstract

Tobacco use is increasingly prevalent among vulnerable populations, such as people living in rural Appalachian communities. Owing to limited access to a reliable internet service in such settings, there is no widespread adoption of electronic data capture tools for conducting community-based research. By integrating the REDCap data collection application with a custom synchronization tool, the authors have enabled a workflow in which field research staff located throughout the Ohio Appalachian region can electronically collect and share research data. In addition to allowing the study data to be exchanged in near-real-time among the geographically distributed study staff and centralized study coordinator, the system architecture also ensures that the data are stored securely on encrypted laptops in the field and centrally behind the Ohio State University Medical Center enterprise firewall. The authors believe that this approach can be easily applied to other analogous study designs and settings.

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Mesh:

Year:  2011        PMID: 21849332      PMCID: PMC3241173          DOI: 10.1136/amiajnl-2011-000354

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  8 in total

1.  Breaking the translational barriers: the value of integrating biomedical informatics and translational research.

Authors:  Philip R O Payne; Stephen B Johnson; Justin B Starren; Hugh H Tilson; David Dowdy
Journal:  J Investig Med       Date:  2005-05       Impact factor: 2.895

2.  Key informants' perspectives prior to beginning a cervical cancer study in Ohio Appalachia.

Authors:  Mira L Katz; Mary Ellen Wewers; Nancy Single; Electra D Paskett
Journal:  Qual Health Res       Date:  2007-01

3.  Reengineering clinical research with informatics.

Authors:  Thomas K Chung; Rita Kukafka; Stephen B Johnson
Journal:  J Investig Med       Date:  2006-09       Impact factor: 2.895

4.  Clinical research informatics: challenges, opportunities and definition for an emerging domain.

Authors:  Peter J Embi; Philip R O Payne
Journal:  J Am Med Inform Assoc       Date:  2009-03-04       Impact factor: 4.497

5.  Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

Authors:  Paul A Harris; Robert Taylor; Robert Thielke; Jonathon Payne; Nathaniel Gonzalez; Jose G Conde
Journal:  J Biomed Inform       Date:  2008-09-30       Impact factor: 6.317

6.  Vital signs: current cigarette smoking among adults aged >or=18 years --- United States, 2009.

Authors: 
Journal:  MMWR Morb Mortal Wkly Rep       Date:  2010-09-10       Impact factor: 17.586

7.  Effectiveness of a nurse-managed, lay-led tobacco cessation intervention among ohio appalachian women.

Authors:  Mary Ellen Wewers; Amy K Ferketich; Judith Harness; Electra D Paskett
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2009-12       Impact factor: 4.254

8.  Recruitment of minority and underserved populations in the United States: the Centers for Population Health and Health Disparities experience.

Authors:  Electra D Paskett; Katherine W Reeves; John M McLaughlin; Mira L Katz; Ann Scheck McAlearney; Mack T Ruffin; Chanita Hughes Halbert; Cristina Merete; Faith Davis; Sarah Gehlert
Journal:  Contemp Clin Trials       Date:  2008-07-31       Impact factor: 2.226

  8 in total
  7 in total

1.  Risk Factors for Smoking in Rural Women: The Role of Gender-Based Sexual and Intimate Partner Violence.

Authors:  Julianna M Nemeth; Amy E Bonomi; Bo Lu; Richard G Lomax; Mary Ellen Wewers
Journal:  J Womens Health (Larchmt)       Date:  2016-08-22       Impact factor: 2.681

2.  The clinical assessment and remote administration tablet.

Authors:  Jessica A Turner; Susan R Lane; H Jeremy Bockholt; Vince D Calhoun
Journal:  Front Neuroinform       Date:  2011-12-27       Impact factor: 4.081

3.  Clinical research informatics: a conceptual perspective.

Authors:  Michael G Kahn; Chunhua Weng
Journal:  J Am Med Inform Assoc       Date:  2012-04-20       Impact factor: 4.497

4.  Software and hardware infrastructure for research in electrophysiology.

Authors:  Roman Mouček; Petr Ježek; Lukáš Vařeka; Tomáš Rondík; Petr Brůha; Václav Papež; Pavel Mautner; Jiří Novotný; Tomáš Prokop; Jan Stěbeták
Journal:  Front Neuroinform       Date:  2014-03-07       Impact factor: 4.081

5.  The REDCap Mobile Application: a data collection platform for research in regions or situations with internet scarcity.

Authors:  Paul A Harris; Giovanni Delacqua; Robert Taylor; Scott Pearson; Michelle Fernandez; Stephany N Duda
Journal:  JAMIA Open       Date:  2021-09-13

Review 6.  Project, toolkit, and database of neuroinformatics ecosystem: A summary of previous studies on "Frontiers in Neuroinformatics".

Authors:  Xin Li; Huadong Liang
Journal:  Front Neuroinform       Date:  2022-09-26       Impact factor: 3.739

7.  Mobile electronic versus paper case report forms in clinical trials: a randomized controlled trial.

Authors:  Robert Fleischmann; Anne-Marie Decker; Antje Kraft; Knut Mai; Sein Schmidt
Journal:  BMC Med Res Methodol       Date:  2017-12-01       Impact factor: 4.615

  7 in total

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