Literature DB >> 21843388

Ethical endgames: broad consent for narrow interests; open consent for closed minds.

Jan Reinert Karlsen, Jan Helge Solbakk, Søren Holm.   

Abstract

Mesh:

Year:  2011        PMID: 21843388     DOI: 10.1017/S0963180111000314

Source DB:  PubMed          Journal:  Camb Q Healthc Ethics        ISSN: 0963-1801            Impact factor:   1.284


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  11 in total

1.  Health Research with Big Data: Time for Systemic Oversight.

Authors:  Effy Vayena; Alessandro Blasimme
Journal:  J Law Med Ethics       Date:  2018-03-27       Impact factor: 1.718

2.  Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?

Authors:  Kristin Solum Steinsbekk; Bjørn Kåre Myskja; Berge Solberg
Journal:  Eur J Hum Genet       Date:  2013-01-09       Impact factor: 4.246

3.  Eliciting meta consent for future secondary research use of health data using a smartphone application - a proof of concept study in the Danish population.

Authors:  Thomas Ploug; Søren Holm
Journal:  BMC Med Ethics       Date:  2017-08-15       Impact factor: 2.652

4.  Legal & ethical compliance when sharing biospecimen.

Authors:  Tomas Klingstrom; Erik Bongcam-Rudloff; Jane Reichel
Journal:  Brief Funct Genomics       Date:  2018-01-01       Impact factor: 4.241

5.  The social dimension of biobanking: objectives and challenges.

Authors:  E V Bryzgalina; K Y Alasania; T A Varkhotov; S M Gavrilenko; E M Shkomova
Journal:  Life Sci Soc Policy       Date:  2017-09-13

Review 6.  Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.

Authors:  Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2016-03-03       Impact factor: 8.929

7.  Meta Consent - A Flexible Solution to the Problem of Secondary Use of Health Data.

Authors:  Thomas Ploug; Søren Holm
Journal:  Bioethics       Date:  2016-09-15       Impact factor: 1.898

8.  Biomedical Big Data: New Models of Control Over Access, Use and Governance.

Authors:  Effy Vayena; Alessandro Blasimme
Journal:  J Bioeth Inq       Date:  2017-10-05       Impact factor: 1.352

9.  In Defence of informed consent for health record research - why arguments from 'easy rescue', 'no harm' and 'consent bias' fail.

Authors:  Thomas Ploug
Journal:  BMC Med Ethics       Date:  2020-08-20       Impact factor: 2.652

10.  Broad consent under the GDPR: an optimistic perspective on a bright future.

Authors:  Dara Hallinan
Journal:  Life Sci Soc Policy       Date:  2020-01-06
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