Literature DB >> 21813820

A qualitative study of interference with communicative participation across communication disorders in adults.

Carolyn Baylor1, Michael Burns, Tanya Eadie, Deanna Britton, Kathryn Yorkston.   

Abstract

PURPOSE: To explore the similarities and differences in self-reported restrictions in communicative participation across different communication disorders in community-dwelling adults.
METHOD: Interviews were conducted with 44 adults representing 7 different medical conditions: spasmodic dysphonia, multiple sclerosis, stroke, stuttering, Parkinson's disease, amyotrophic lateral sclerosis, and laryngectomy. This article represents a secondary analysis of qualitative data collected in cognitive interviews during development of the Communicative Participation Item Bank. The data were analyzed to identify themes in participants' experiences related to communicative participation.
RESULTS: Participants described many situations in which they experienced interference in communicative participation. Two themes emerged from the data. The first theme was Interference is both "functional" and "emotional," in which participants defined interference as limitations in accomplishing tasks and emotional consequences. The second theme was "It depends"-sources of interference, in which participants described many variables that contribute to interference in participation. Participants had limited control of some variables such as symptoms and environmental contexts, but personal decisions and priorities also influenced participation.
CONCLUSIONS: Despite different impairments and activity limitations, participants described similar communicative participation restrictions. These similarities may have theoretical and clinical implications in terms of how we assess, treat, and study the participation restrictions associated with communication disorders.

Entities:  

Mesh:

Year:  2011        PMID: 21813820      PMCID: PMC3296484          DOI: 10.1044/1058-0360(2011/10-0084)

Source DB:  PubMed          Journal:  Am J Speech Lang Pathol        ISSN: 1058-0360            Impact factor:   2.408


  43 in total

1.  Family education seminars and social functioning of adults with chronic aphasia.

Authors:  J J Hinckley; M E Packard
Journal:  J Commun Disord       Date:  2001 May-Jun       Impact factor: 2.288

Review 2.  The ICF: a proposed framework for comprehensive rehabilitation of individuals who use alaryngeal speech.

Authors:  Tanya L Eadie
Journal:  Am J Speech Lang Pathol       Date:  2003-05       Impact factor: 2.408

3.  Environmental factors that influence communication between patients and their healthcare providers in acute hospital stroke units: an observational study.

Authors:  Robyn O'Halloran; Linda Worrall; Louise Hickson
Journal:  Int J Lang Commun Disord       Date:  2010-03-26       Impact factor: 3.020

4.  Communication after laryngectomy: an assessment of quality of life.

Authors:  M M Carr; J A Schmidbauer; L Majaess; R L Smith
Journal:  Otolaryngol Head Neck Surg       Date:  2000-01       Impact factor: 3.497

5.  Training volunteers as conversation partners using "Supported Conversation for Adults with Aphasia" (SCA): a controlled trial.

Authors:  A Kagan; S E Black; F J Duchan; N Simmons-Mackie; P Square
Journal:  J Speech Lang Hear Res       Date:  2001-06       Impact factor: 2.297

6.  Work integration issues go beyond the nature of the communication disorder.

Authors:  Linda J Garci; Chantal Laroche; Jacques Barrette
Journal:  J Commun Disord       Date:  2002 Mar-Apr       Impact factor: 2.288

7.  Outcomes of botulinum toxin treatment for patients with spasmodic dysphonia.

Authors:  M S Benninger; G Gardner; C Grywalski
Journal:  Arch Otolaryngol Head Neck Surg       Date:  2001-09

8.  Longitudinal effects of botulinum toxin injections on voice-related quality of life (V-RQOL) for patients with adductory spasmodic dysphonia.

Authors:  N D Hogikyan; W P Wodchis; C Spak; P R Kileny
Journal:  J Voice       Date:  2001-12       Impact factor: 2.009

9.  Changes in vocal loudness following intensive voice treatment (LSVT) in individuals with Parkinson's disease: a comparison with untreated patients and normal age-matched controls.

Authors:  L O Ramig; S Sapir; C Fox; S Countryman
Journal:  Mov Disord       Date:  2001-01       Impact factor: 10.338

10.  Communicating in the real world: accounts from people who stammer.

Authors:  Isobel Crichton-Smith
Journal:  J Fluency Disord       Date:  2002       Impact factor: 2.538

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  23 in total

1.  Speech and Communicative Participation in Patients With Facial Paralysis.

Authors:  James H Kim; Laurel M Fisher; Lindsay Reder; Edie R Hapner; Jon-Paul Pepper
Journal:  JAMA Otolaryngol Head Neck Surg       Date:  2018-08-01       Impact factor: 6.223

2.  The Effect of Noise on Relationships Between Speech Intelligibility and Self-Reported Communication Measures in Tracheoesophageal Speakers.

Authors:  Tanya L Eadie; Devon Sawin Otero; Susan Bolt; Mara Kapsner-Smith; Jessica R Sullivan
Journal:  Am J Speech Lang Pathol       Date:  2016-08-01       Impact factor: 2.408

3.  Achieving Participation-Focused Intervention Through Shared Decision Making: Proposal of an Age- and Disorder-Generic Framework.

Authors:  Carolyn Baylor; Meghan Darling-White
Journal:  Am J Speech Lang Pathol       Date:  2020-05-28       Impact factor: 2.408

4.  The relationship between communicative participation and postlaryngectomy speech outcomes.

Authors:  Tanya L Eadie; Devon Otero; Steven Cox; Jordan Johnson; Carolyn R Baylor; Kathryn M Yorkston; Philip C Doyle
Journal:  Head Neck       Date:  2015-12-29       Impact factor: 3.147

5.  Communicative participation and quality of life in head and neck cancer.

Authors:  Tanya L Eadie; Kristin Lamvik; Carolyn R Baylor; Kathryn M Yorkston; Jiseon Kim; Dagmar Amtmann
Journal:  Ann Otol Rhinol Laryngol       Date:  2014-04       Impact factor: 1.547

6.  Phase 1/2 Trial of 5-Fraction Stereotactic Radiosurgery With 5-mm Margins With Concurrent and Adjuvant Temozolomide in Newly Diagnosed Supratentorial Glioblastoma: Health-Related Quality of Life Results.

Authors:  Erqi L Pollom; Dylann Fujimoto; Jacob Wynne; Kira Seiger; Leslie A Modlin; Lisa R Jacobs; Melissa Azoulay; Rie von Eyben; Laurie Tupper; Iris C Gibbs; Steven L Hancock; Gordon Li; Steven D Chang; John R Adler; Griffith R Harsh; Ciara Harraher; Seema Nagpal; Reena P Thomas; Lawrence D Recht; Clara Y H Choi; Scott G Soltys
Journal:  Int J Radiat Oncol Biol Phys       Date:  2017-02-07       Impact factor: 7.038

7.  Relationship between perceived social support and patient-reported communication outcomes across communication disorders: a systematic review.

Authors:  Tanya Eadie; Mara Kapsner-Smith; Susan Bolt; Cara Sauder; Kathryn Yorkston; Carolyn Baylor
Journal:  Int J Lang Commun Disord       Date:  2018-07-24       Impact factor: 3.020

8.  Variables associated with communicative participation in Parkinson's disease and its relationship to measures of health-related quality-of-life.

Authors:  Megan J McAuliffe; Carolyn R Baylor; Kathryn M Yorkston
Journal:  Int J Speech Lang Pathol       Date:  2016-06-27       Impact factor: 2.484

9.  The Communicative Participation Item Bank (CPIB): item bank calibration and development of a disorder-generic short form.

Authors:  Carolyn Baylor; Kathryn Yorkston; Tanya Eadie; Jiseon Kim; Hyewon Chung; Dagmar Amtmann
Journal:  J Speech Lang Hear Res       Date:  2013-07-01       Impact factor: 2.297

10.  How does difficulty communicating affect the social relationships of older adults? An exploration using data from a national survey.

Authors:  Andrew D Palmer; Jason T Newsom; Karen S Rook
Journal:  J Commun Disord       Date:  2016-06-22       Impact factor: 2.288

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