Literature DB >> 21813815

Online solutions to support needs and preferences of parents of children with asthma and allergies.

Miriam Stewart1, Nicole Letourneau, Jeffrey R Masuda, Sharon Anderson, Shawna McGhan.   

Abstract

Many families of children with asthma and allergies experience support deficits and isolation. However, support interventions have not been designed to meet their needs. Consequently, parents' intervention preferences were elicited, and an online peer support group intervention was designed based on these preferences and piloted in the study described. In-depth interviews with 44 parents elicited preferences for support interventions for both children and parents. Many said they felt alone and wanted support from others in similar situations. Based on the parents' preferences for accessible online peer support groups, a pilot online intervention was designed and implemented. Parents received information and reassurance from other parents in peer support sessions. Parents appreciated the accessibility and anonymity of the online support group. This innovative online peer support intervention, informed by parents' preferences, could be adapted and tested in intervention trials and guide programs and practice for families affected by asthma, allergies, and other chronic conditions.
© The Author(s) 2011

Entities:  

Mesh:

Year:  2011        PMID: 21813815     DOI: 10.1177/1074840711415416

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  8 in total

1.  Managing uncertainty in the context of clubfoot care: exploring the value of uncertainty management theory and the sense of virtual community.

Authors:  Florin Oprescu; Shelly Campo; John Lowe; Julie Andsager; Jose A Morcuende
Journal:  Iowa Orthop J       Date:  2013

2.  Use of social networking sites by parents of very low birth weight infants: experiences and the potential of a dedicated site.

Authors:  Tatjana I Gabbert; Boris Metze; Christoph Bührer; Lars Garten
Journal:  Eur J Pediatr       Date:  2013-08-03       Impact factor: 3.183

3.  The Child Illness and Resilience Program (CHiRP): a study protocol of a stepped care intervention to improve the resilience and wellbeing of families living with childhood chronic illness.

Authors:  Katrina M Hamall; Todd R Heard; Kerry J Inder; Katherine M McGill; Frances Kay-Lambkin
Journal:  BMC Psychol       Date:  2014-03-11

4.  A web-based psychological support program for caregivers of children with cystic fibrosis: a pilot study.

Authors:  Astrid Fidika; Marion Herle; Christine Lehmann; Christa Weiss; Christine Knaevelsrud; Lutz Goldbeck
Journal:  Health Qual Life Outcomes       Date:  2015-02-04       Impact factor: 3.186

5.  Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity - a scoping review.

Authors:  Sally Bradshaw; Danai Bem; Karen Shaw; Beck Taylor; Christopher Chiswell; Mary Salama; Eve Bassett; Geetinder Kaur; Carole Cummins
Journal:  BMC Pediatr       Date:  2019-08-30       Impact factor: 2.125

6.  Parents and carers' experiences of seeking health information and support online for long-term physical childhood conditions: a systematic review and thematic synthesis of qualitative research.

Authors:  Bethan Mair Treadgold; Emma Teasdale; Ingrid Muller; Amanda Roberts; Neil Coulson; Miriam Santer
Journal:  BMJ Open       Date:  2020-12-28       Impact factor: 2.692

7.  Online information exchanges for parents of children with a rare health condition: key findings from an online support community.

Authors:  Florin Oprescu; Shelly Campo; John Lowe; Julie Andsager; Jose A Morcuende
Journal:  J Med Internet Res       Date:  2013-01-22       Impact factor: 5.428

8.  How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities.

Authors:  Sagar Joglekar; Nishanth Sastry; Neil S Coulson; Stephanie Jc Taylor; Anita Patel; Robbie Duschinsky; Amrutha Anand; Matt Jameson Evans; Chris J Griffiths; Aziz Sheikh; Pietro Panzarasa; Anna De Simoni
Journal:  J Med Internet Res       Date:  2018-07-11       Impact factor: 5.428

  8 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.