Literature DB >> 21785871

Measuring health outcomes of adolescents: report from a pilot study.

Yemi Oluboyede1, Sandy Tubeuf, Chris McCabe.   

Abstract

There is a need to understand the practicality, validity and reliability of using utility measures with children and adolescents. We designed a pilot study in order to help guide the selection of an appropriate health-related quality-of-life (HRQoL) questionnaire for adolescents to be used in the context of a large randomised controlled trial (RCT) of family therapy versus standard treatment for adolescents aged 11-17 years. The pilot study was carried out on a school sample of adolescents in the same age range as the RCT. Adolescents were asked to fill in three HRQoL questionnaires: the standard EQ-5D, the licensed Health Utilities Index HUI, and the child-friendly version of the standard EQ-5D: the EQ-5D for youth (EQ-5D-Y). This report explores the problems with the language and concepts embodied within those HRQoL questionnaires and open discussion regarding how we can value the health of adolescents for cost-utility analysis in a larger study.

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Mesh：

Year:  2011        PMID： 21785871     DOI： 10.1007/s10198-011-0340-0

Source DB:  PubMed          Journal:  Eur J Health Econ        ISSN： 1618-7598


  16 in total

1.  EuroQol--a new facility for the measurement of health-related quality of life.

Authors: 
Journal:  Health Policy       Date:  1990-12       Impact factor: 2.980

2.  A comparison of the performance of the EQ-5D and the EQ-5D-Y health-related quality of life instruments in South African children.

Authors:  Jennifer Jelsma
Journal:  Int J Rehabil Res       Date:  2010-06       Impact factor: 1.479

3.  Sociodemographic and neighbourhood determinants of health-related quality of life among grade-five students in Canada.

Authors:  X Y Wu; A Ohinmaa; P J Veugelers
Journal:  Qual Life Res       Date:  2010-05-06       Impact factor: 4.147

4.  Comparison of EQ-5D, HUI, and SF-36-derived societal health state values among spine patient outcomes research trial (SPORT) participants.

Authors:  Christine M McDonough; Margaret R Grove; Tor D Tosteson; Jon D Lurie; Alan S Hilibrand; Anna N A Tosteson
Journal:  Qual Life Res       Date:  2005-06       Impact factor: 4.147

5.  The EQ-5D and the Health Utilities Index for permanent sequelae after meningitis: a head-to-head comparison.

Authors:  Rianne Oostenbrink; Henriëtte A A Moll; Marie-Louise Essink-Bot
Journal:  J Clin Epidemiol       Date:  2002-08       Impact factor: 6.437

6.  Children and adult perceptions of childhood asthma.

Authors:  G H Guyatt; E F Juniper; L E Griffith; D H Feeny; P J Ferrie
Journal:  Pediatrics       Date:  1997-02       Impact factor: 7.124

Review 7.  Generic health-related quality-of-life assessment in children and adolescents: methodological considerations.

Authors:  Ulrike Ravens-Sieberer; Michael Erhart; Nora Wille; Ralf Wetzel; Jennifer Nickel; Monika Bullinger
Journal:  Pharmacoeconomics       Date:  2006       Impact factor: 4.981

8.  Development of the EQ-5D-Y: a child-friendly version of the EQ-5D.

Authors:  Nora Wille; Xavier Badia; Gouke Bonsel; Kristina Burström; Gulia Cavrini; Nancy Devlin; Ann-Charlotte Egmar; Wolfgang Greiner; Narcis Gusi; Michael Herdman; Jennifer Jelsma; Paul Kind; Luciana Scalone; Ulrike Ravens-Sieberer
Journal:  Qual Life Res       Date:  2010-04-20       Impact factor: 4.147

Review 9.  A review of health utilities across conditions common in paediatric and adult populations.

Authors:  Jean-Eric Tarride; Natasha Burke; Matthias Bischof; Robert B Hopkins; Linda Goeree; Kaitryn Campbell; Feng Xie; Daria O'Reilly; Ron Goeree
Journal:  Health Qual Life Outcomes       Date:  2010-01-27       Impact factor: 3.186

10.  How do children at special schools and their parents perceive their HRQoL compared to children at open schools?

Authors:  Jennifer Jelsma; Lebogang Ramma
Journal:  Health Qual Life Outcomes       Date:  2010-07-21       Impact factor: 3.186
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  5 in total

1.  Parental Health Spillover in Cost-Effectiveness Analysis: Evidence from Self-Harming Adolescents in England.

Authors:  Sandy Tubeuf; Eirini-Christina Saloniki; David Cottrell
Journal:  Pharmacoeconomics       Date:  2019-04       Impact factor: 4.981

2.  Measuring Health Utilities in Children and Adolescents: A Systematic Review of the Literature.

Authors:  Dominic Thorrington; Ken Eames
Journal:  PLoS One       Date:  2015-08-14       Impact factor: 3.240

3.  Effectiveness of systemic family therapy versus treatment as usual for young people after self-harm: a pragmatic, phase 3, multicentre, randomised controlled trial.

Authors:  David J Cottrell; Alexandra Wright-Hughes; Michelle Collinson; Paula Boston; Ivan Eisler; Sarah Fortune; Elizabeth H Graham; Jonathon Green; Allan O House; Michael Kerfoot; David W Owens; Eirini-Christina Saloniki; Mima Simic; Fiona Lambert; Justine Rothwell; Sandy Tubeuf; Amanda J Farrin
Journal:  Lancet Psychiatry       Date:  2018-02-12       Impact factor: 27.083

Review 4.  Preference-based measures to obtain health state utility values for use in economic evaluations with child-based populations: a review and UK-based focus group assessment of patient and parent choices.

Authors:  Jane L Wolstenholme; Danielle Bargo; Kay Wang; Anthony Harnden; Ulla Räisänen; Lucy Abel
Journal:  Qual Life Res       Date:  2018-03-21       Impact factor: 4.147

5.  The effect of measles on health-related quality of life: a patient-based survey.

Authors:  Dominic Thorrington; Mary Ramsay; Albert Jan van Hoek; W John Edmunds; Roberto Vivancos; Antoaneta Bukasa; Ken Eames
Journal:  PLoS One       Date:  2014-09-09       Impact factor: 3.240
  5 in total

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