Literature DB >> 21724715

Patient-reported outcomes in chronic gout: a report from OMERACT 10.

Jasvinder A Singh1, Will J Taylor, Lee S Simon, Puja P Khanna, Lisa K Stamp, Fiona M McQueen, Tuhina Neogi, Angelo L Gaffo, Michael A Becker, Patricia A MacDonald, Omar Dabbous, Vibeke Strand, Nicola D Dalbeth, Daniel Aletaha, N Lawrence Edwards, H Ralph Schumacher.   

Abstract

OBJECTIVE: To summarize the endorsement of measures of patient-reported outcome (PRO) domains in chronic gout at the 2010 Outcome Measures in Rheumatology Meeting (OMERACT 10).
METHODS: During the OMERACT 10 gout workshop, validation data were presented for key PRO domains including pain [pain by visual analog scale (VAS)], patient global (patient global VAS), activity limitation [Health Assessment Questionnaire-Disability Index (HAQ-DI)], and a disease-specific measure, the Gout Assessment Questionnaire version 2.0 (GAQ v2.0). Data were presented on all 3 aspects of the OMERACT filters of truth, discrimination, and feasibility. One PRO, health-related quality of life measurement with the Medical Outcomes Study Short-form 36 (SF-36), was previously endorsed at OMERACT 9.
RESULTS: One measure for each of the 3 PRO of pain, patient global, and activity limitation was endorsed by > 70% of the OMERACT delegates to have appropriate validation data. Specifically, pain measurement by VAS was endorsed by 85%, patient global assessment by VAS by 73%, and activity limitation by HAQ-DI by 71%. GAQ v2.0 received 30% vote and was not endorsed due to several concerns including low internal consistency and lack of familiarity with the measure. More validation studies are needed for this measure.
CONCLUSION: With the endorsement of one measure each for pain, patient global, SF-36, and activity limitation, all 4 PRO for chronic gout have been endorsed. Future validation studies are needed for the disease-specific measure, GAQ v2.0. Validation for PRO for acute gout will be the focus of the next validation exercise for the OMERACT gout group.

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Year:  2011        PMID: 21724715      PMCID: PMC3850171          DOI: 10.3899/jrheum.110271

Source DB:  PubMed          Journal:  J Rheumatol        ISSN: 0315-162X            Impact factor:   4.666


  20 in total

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3.  The Health Assessment Questionnaire Disability Index is a valid measure of physical function in gout.

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4.  Minimally important differences of the gout impact scale in a randomized controlled trial.

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5.  Application of the health assessment questionnaire disability index to various rheumatic diseases.

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7.  Evaluation of an instrument assessing influence of Gout on health-related quality of life.

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8.  Outcome domains for studies of acute and chronic gout.

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9.  The effect of serum urate on gout flares and their associated costs: an administrative claims analysis.

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  35 in total

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Review 2.  Outcome measures in acute gout: a systematic literature review.

Authors:  Nicola Dalbeth; Cathy S Zhong; Rebecca Grainger; Dinesh Khanna; Puja P Khanna; Jasvinder A Singh; Fiona M McQueen; William J Taylor
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3.  OMERACT endorsement of measures of outcome for studies of acute gout.

Authors:  Jasvinder A Singh; William J Taylor; Nicola Dalbeth; Lee S Simon; John Sundy; Rebecca Grainger; Rieke Alten; Lyn March; Vibeke Strand; George Wells; Dinesh Khanna; Fiona McQueen; Naomi Schlesinger; Annelies Boonen; Maarten Boers; Kenneth G Saag; H Ralph Schumacher; N Lawrence Edwards
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4.  Clinical characteristics of foot ulceration in people with chronic gout.

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6.  Experiences of gout-related disability from the patients' perspective: a mixed methods study.

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Review 7.  Mechanisms of joint damage in gout: evidence from cellular and imaging studies.

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8.  Improvement in OMERACT domains and renal function with regular treatment for gout: a 12-month follow-up cohort study.

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Review 9.  Patient-reported outcomes in core domain sets for rheumatic diseases.

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10.  Performance of Gout Impact Scale in a longitudinal observational study of patients with gout.

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