Literature DB >> 21703869

Comparing sexual minority cancer survivors recruited through a cancer registry to convenience methods of recruitment.

Ulrike Boehmer1, Melissa A Clark, Alison Timm, Mark Glickman, Mairead Sullivan.   

Abstract

PURPOSE: Sexual minority women, defined as having a lesbian or bisexual identity or reporting a preference for a female partner, are not considered by cancer surveillance. This study assesses the representativeness of sexual minority breast cancer survivors, defined as having a lesbian or bisexual identity or reporting a preference for a female partner, who were recruited into a convenience sample compared with a population-based registry sample of sexual minority breast cancer survivors.
METHODS: Long-term survivors of non-metastatic breast cancer who self-reported as sexual minority were recruited from a cancer registry and subsequently from the community using convenience recruitment methods. Sexual minority breast cancer survivors who screened eligible participated in a telephone survey about their quality of life and factors associated therewith.
RESULTS: Participants in the convenience sample were similar to the registry-based sample with respect to adjustment to cancer, physical health, trust in physician, coping, social support, and sexual minority experiences. Compared with the convenience sample, breast cancer survivors in the registry sample were more likely married, more educated, diagnosed more recently, at an earlier stage of cancer, and more likely treated with breast-conserving surgery; they differed on adjuvant therapies. DISCUSSION: Because sexual minority breast cancer survivors who volunteered for the community-based sample shared most characteristics of the sample recruited from the cancer registry, we concluded that the community sample had comparable representational quality. In the absence of cancer surveillance of sexual minorities, thoughtful convenience recruitment methods provide good representational quality convenience samples.
Copyright © 2011 Jacobs Institute of Women's Health. Published by Elsevier Inc. All rights reserved.

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Year:  2011        PMID: 21703869     DOI: 10.1016/j.whi.2011.03.003

Source DB:  PubMed          Journal:  Womens Health Issues        ISSN: 1049-3867


  9 in total

1.  University of Hawai'i Cancer Center connection: The vital role of cancer registries in the recruitment of an understudied minority population into a breast cancer study: Breast Cancer Risk Model for the Pacific.

Authors:  Rachael T Leon Guerrero; Grazyna Badowski; Alisha Yamanaka; Michelle Blas-Laguana; Renata Bordallo; Arielle Buyum; Lynne Wilkens; Rachel Novotny
Journal:  Hawaii J Med Public Health       Date:  2014-10

2.  Differences in Coping with Breast Cancer Between Lesbian and Heterosexual Women: A Life Course Perspective.

Authors:  Christopher W Wheldon; Megan C Roberts; Ulrike Boehmer
Journal:  J Womens Health (Larchmt)       Date:  2018-08-21       Impact factor: 2.681

3.  Health-related quality of life in breast cancer survivors of different sexual orientations.

Authors:  Ulrike Boehmer; Mark Glickman; Jacqui Milton; Michael Winter
Journal:  Qual Life Res       Date:  2011-06-10       Impact factor: 4.147

4.  Fear of cancer recurrence in survivor and caregiver dyads: differences by sexual orientation and how dyad members influence each other.

Authors:  Ulrike Boehmer; Yorghos Tripodis; Angela R Bazzi; Michael Winter; Melissa A Clark
Journal:  J Cancer Surviv       Date:  2016-02-22       Impact factor: 4.442

5.  Parents' supportive reactions to sexual orientation disclosure associated with better health: results from a population-based survey of LGB adults in Massachusetts.

Authors:  Emily F Rothman; Mairead Sullivan; Susan Keyes; Ulrike Boehmer
Journal:  J Homosex       Date:  2012

6.  Recruiting an underserved, difficult to reach population into a cancer trial: Strategies from the Restore-2 Rehabilitation Trial for gay and bisexual prostate cancer patients.

Authors:  B R Simon Rosser; Morgan Wright; Chris J Hoefer; Elizabeth J Polter; Nidhi Kohli; Christopher W Wheldon; Ryan Haggart; Kristine Mc Talley; Darryl Mitteldorf; Gunna Kilian; Badrinath R Konety; Michael W Ross; William West
Journal:  Clin Trials       Date:  2022-03-01       Impact factor: 2.599

7.  Long-term breast cancer survivors' symptoms and morbidity: differences by sexual orientation?

Authors:  Ulrike Boehmer; Mark Glickman; Michael Winter; Melissa A Clark
Journal:  J Cancer Surviv       Date:  2013-01-18       Impact factor: 4.442

8.  Comparing substance use and mental health outcomes among sexual minority and heterosexual women in probability and non-probability samples.

Authors:  Laurie A Drabble; Karen F Trocki; Rachael A Korcha; Jamie L Klinger; Cindy B Veldhuis; Tonda L Hughes
Journal:  Drug Alcohol Depend       Date:  2018-02-21       Impact factor: 4.492

Review 9.  The support that partners or caregivers provide sexual minority women who have cancer: A systematic review.

Authors:  Tess Thompson; Katie Heiden-Rootes; Miriam Joseph; L Anne Gilmore; LaShaune Johnson; Christine M Proulx; Emily L Albright; Maria Brown; Jane A McElroy
Journal:  Soc Sci Med       Date:  2020-07-18       Impact factor: 4.634

  9 in total

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